Between October 1993 and July 2017, more than 1000 patients affected by the Neuro-Cranio-Vertebral Syndrome and/or the Filum Disease with Arnold Chiari I, Syringomyelia and Scoliosis (in different diagnostic combinations) have been treated according to the guidelines of the FILUM SYSTEM®.
There are no published studies to date about the Filum Disease with regards to genetic inheritance. Nevertheless, due to the abovementioned conditions that the Filum Disease is made up of and our own studies about our clinical experience that are in course of publication, we know that there is a clear hereditary component. Also, if we add the high frequency of the disease with 20% of the world population, it is understandable that in many families there is more than one affected person.
At ICSEB we give relatives of patients advise or an early detection of the Filum Disease so that the FILUM SYSTEM® can be applied as soon as possible also in their cases.
In this Family Testimonials section, operated patients have offered their availability share their experience together as to show an example of how the disease can affect several members of the same family.
We highly appreciate their open-hearted and selfless involvement by expressing their views on our exclusive treatment method.
NOTE: The opinions expressed in the testimonials are those of the authors and do not necessarily reflect the views of the Institut Chiari & Siringomielia & Escoliosis de Barcelona.
Published by ICSEB at 29 April, 2016
MR images of Melaine Before the SFT After the SFT Video Testimonio de Asibe Asibe Asllani. Cord Traction Syndrome. Descent of the cerebellar tonsils (DCT). Idiopathic Scoliosis. Melanie Ambrogi. Cord traction syndrome. Descent of the cerebellar tonsils (DCT). Idiopathic Syringomyelia. Jennifer Ambrogi. Cord Traction Syndrome. Descent of the cerebellar tonsils (DCT). Idiopathic Scoliosis. Valentina…
Published by ICSEB at 13 December, 2011
Vinyet Aguiló Asín. Medullary Traction Syndrome. Idiopathic scoliosis. Date of surgery: Octobre 2011 My name Vinyet Aguiló Asín, I´m six years old and I´m a patient of Dr. Royo, just like my mother, Sònia Asín. When I was four years old, my parents noticed that one of my shoulders was lower that the other. We…
Published by ICSEB at 13 December, 2011
Sònia Asín. Medullary Traction Syndrome. Idiopathic scoliosis. Surgery date: October 2000 My name is Sònia Asín and I am Dr. Royo´s patient, more specifically his 12th case. My life had always been tied to scoliosis since I was diagnosed when I was nine years old. The diagnosis was made because I was always complaining…
Published by ICSEB at 5 October, 2007
Antonia Egea Hernandez. Arnold Chiari Syndrome My name is Antonia , I am 56 years old and this is my story: 18 years ago I suffered dizziness continuously, headaches, pain in the arms and I was left without force. My fingertips fell asleep, and every time I had less balance (which made me feel very…
Published by ICSEB at 7 April, 2007
Carmen Egea Hernández. Arnold Chiari I Syndrome, Cervical Syringomyelia, Idiopathic Scoliosis cervicdorsolumbar. Date of intervention: April 2007 I am Carmen Egea Hernandez, and they were treating me for vertigos for more than 15 years.. I had dizziness, loss of stability, headaches that doctors translated to migranes, also pain in the eyes, arms, shoulders, in general,…
Published by ICSEB at 20 June, 2006
Date of intervention: June 2006 I am 23 years of age and I am the son of Florentina Blanco (another case of Idiopathic scoliosis intervened of the Filum terminal by Dr. Royo), I live on the outskirts of Barcelona (Cornella) and right now I am a new person, I do not have any pain. The…
Published by ICSEB at 7 July, 2001
Date of intervention: July 2001 Hello I am Florentina Blanco Rodriguez, I am 51 years old, my son is Juan Blanco Cabaco (another case of scoliosis operated on filum terminale by Dr. Royo), I live on the outskirts of Barcelona (Cornellà). From adolescence I suffered scoliosis, my parents took me to many doctors, in those…
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