Between October 1993 and July 2017, more than 1000 patients affected by the Neuro-Cranio-Vertebral Syndrome and/or the Filum Disease with Arnold-Chiari I, Syringomyelia and Scoliosis (in different diagnostic combinations) have been treated according to the guidelines of the FILUM SYSTEM®.
In the majority of cases a positive evolution was obtained, with a high patient satisfaction rate.
For some years now, patients in the follow-up postoperative phase have been invited to write testimonials about their clinical history for our website.
We highly appreciate their open-hearted and selfless involvement by expressing their views on our exclusive treatment methods.
NOTE: The opinions expressed in the testimonials are those of the authors and do not necessarily reflect the views of the Institut Chiari & Siringomielia & Escoliosis de Barcelona.
Published by ICSEB on 4 September, 2017 with the patient's consent
Surgery date: June 2011 Hi everybody! I want to share an article with you that I wrote in 2010 where I describe my difficult journey trying to find a physician who would heal me. Back then I did not know if what was being offered in Spain was the truth or not, so to get…
Published by ICSEB on 26 May, 2017 with the patient's consent
Surgery date: July 2015 My son started to have symptoms at the age of three. We saw different paediatricians and neurologists and they ordered magnetic resonance scans of the skull and brain. Nothing indicated the diagnosis. He was treated as a boy with headaches and asthma, but there was something that told that that was…
Published by ICSEB on 19 January, 2017 with the patient's consent
Surgery date: March 2016 We are writing this testimonial hoping that others with the same conditions as our daughter Kazuko who have found the Institut Chiari de Barcelona website will consider a foreign medical centre as an alternative to treat. We can only thank the team at the Institut Chiari de Barcelona. When our daughter…
Published by ICSEB on 5 February, 2015 with the patient's consent
Date of Surgery: January 2013 Hello, My name is Luz Belliard. I am 53 years old. I am from Dominican Republic and l live in Boston, MA. 4 years ago (16/12/2010), I was operated for “Arnold Chiari Syndrome” at Mass General Hospital in Boston. It was a very risky brain surgery that lasted 7…
Published by ICSEB on 2 April, 2014 with the patient's consent
EMIL, 5 years old Date of surgery: November 2012 Emil (born November 2008) fell ill in August 2010: he stopped walking; he was completely flaccid (his development had been normal before). The doctors did not know what was going on. They carried out different exams and reached the conclusion that he probably had myelitis. They…
Published by ICSEB on 1 June, 2013 with the patient's consent
Fecha de intervención: marzo 2011 Me llamo Maria Cristina, vivo en Italia y tengo 27 años. Con la edad de 9 años empecé a sufrir de cefaleas y los doctores me curaron por sinusitis, migraña y cefalea, sin obtener resultados. En Octubre de 1999 tuve un episodio de mal de cabeza que se alargó por…
Published by ICSEB on 26 July, 2012 with the patient's consent
Surgery date: January 2011 My story is long and painful however I will share small details with you as my personal testimony. Apparently, I was born healthy and strong but at 8 years I began to have rare sensations as if I had received a strong hit in the chest, dizziness, sciatica, neck stiffness, severe…
Published by ICSEB on 9 November, 2011 with the patient's consent
Date of surgery: May 2009 My name is Diego Tasca and I am a patient with a diagnosis of a rare disease called Arnold Chiari Syndrome (ACHI). I discovered all this in 2003, when I suffered a cardiorespiratory arrest. I was taken to the E.R. of Piove Di Sacco hospital, and, after a cardiopulmonary resuscitation,…
Published by ICSEB on 20 October, 2011 with the patient's consent
Date of surgery: February 2011 Life testimonial My name is Victoria Elena Estrada, I am Colombian, from Medellín, I am 51 years old, and I was diagnosed with Arnold Chiari I syndrome four years ago and I had a decompression, which did not work. I felt relatively well for six months and then the symptoms…
Published by ICSEB on 19 April, 2011 with the patient's consent
Date of surgery: May 2010 Andorra 10th of April 2011 Hi, my name is Paula Gonçalves Fernández, I am 36 years old. After many years of consulting, thousands of tests of all kinas and without any result, in the month of July 2009, Dr. Miralles from Andorra, after seeing all the tests I was told…
Published by ICSEB on 10 December, 2008 with the patient's consent
Date of intervention: December 2008 Hello my name is Kerrin Allen and I am from Sydney, Australia. I am very fortunate to have found Dr Royo and his team at the Chiari, Syringomyelia & Scoliosis Institute of Barcelona. It helped me a great deal reading other patients stories, and I am happy to share details…
Published by ICSEB on 31 August, 2008 with the patient's consent
Date of intervention: January 2008 My name is Rosalia Mocciaro, I´m a 59 year old woman, born in Sicilia and a resident of Palermo. I´m a graduate of biology and my profession is teaching. Until the age of 55, I didn´t know that I was suffering from a rare disease called Arnold Chiari Syndromeand Siringomelia….
Published by ICSEB on 2 April, 2008 with the patient's consent
Date of intervention: April 2008 My SFT ( Section of the Filum Terminale) My name is Christian Seguin. My surgery was due to an insistent petition from some of the members of the association that wanted me to express myself about my experience with the filum terminale. I had decided to keep in silence while I…
Published by ICSEB on 14 July, 2007 with the patient's consent
Date of intervention: July 2007 Hello my name is Enara Gorbeña, I am 21 years old and suffer from Arnold Chiari I, Syringomyelia and Scoliosis. My problems started when I was eight, when they diagnosed me with a 26 degree Scoliosis that they pretended to correct using an orthopedic brace and persistent swimming. When I…
Published by ICSEB on 14 December, 2006 with the patient's consent
Date of intervention: December 2006 Hello, I am called Herminia, i live in Malaga and am 57 years old. What I want from my testimony is to be able to help patients understand that there is hope, and like I, we thought that our future was destined to a wheelchair. I have been suffering symptoms…
Published by ICSEB on 15 October, 2006 with the patient's consent
Date of intervention: October 2006 My name is Bruno Portelli I am a 35 year old Italian. I have been sick since I was 16. It all happened suddenly starting with Dyplopia (double vision) and a loss of balance, getting worse until they diagnosed me with Syringomyelia with Syringobulbia associated with Idiopathic Scoliosis. At that…
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