SFT after suboccipital craniectomy (SOC)


Between October 1993 and July 2017, more than 1000 patients affected by the Neuro-Cranio-Vertebral Syndrome and/or the Filum Disease with Arnold-Chiari I, Syringomyelia and Scoliosis (in different diagnostic combinations) have been treated according to the guidelines of the FILUM SYSTEM®.

In the majority of cases a positive evolution was obtained, with a high patient satisfaction rate.

For some years now, patients in the follow-up postoperative phase have been invited to write testimonials about their clinical history for our website.

We highly appreciate their open-hearted and selfless involvement by expressing their views on our exclusive treatment methods.

NOTE: The opinions expressed in the testimonials are those of the authors and do not necessarily reflect the views of the Institut Chiari & Siringomielia & Escoliosis de Barcelona.


Nieves Wang, Cord-Traction Syndrome. Arnold-Chiari Syndrome Type I, cervical disc disease.

Published by at 4 September, 2017

Surgery date: June 2011 Hi everybody! I want to share an article with you that I wrote in 2010 where I describe my difficult journey trying to find a physician who would heal me. Back then I did not know if what was being offered in Spain was the truth or not, so to get…  

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Leonardo Coutinho, Neuro-Cranio-Vertebral Syndrome with a Descent of the Cerebellar Tonsils.

Published by at 26 May, 2017

Surgery date: July 2015 My son started to have symptoms at the age of three. We saw different paediatricians and neurologists and they ordered magnetic resonance scans of the skull and brain. Nothing indicated the diagnosis. He was treated as a boy with headaches and asthma, but there was something that told that that was…  

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Kazuko Suzuki: Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the cerebellar tonsils, syringomyelia, Scoliosis, Disc Disease.

Published by at 19 January, 2017

Surgery date: March 2016 We are writing this testimonial hoping that others with the same conditions as our daughter Kazuko who have found the Institut Chiari de Barcelona website will consider a foreign medical centre as an alternative to treat. We can only thank the team at the Institut Chiari de Barcelona. When our daughter…  

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Luz Belliard. Cord traction syndrome, Idiopathic Scoliosis, Descent of Cerebellar Tonsils (DCT)

Published by at 5 February, 2015

Date of Surgery: January 2013   Hello, My name is Luz Belliard. I am 53 years old. I am from Dominican Republic and l live in Boston, MA. 4 years ago (16/12/2010), I was operated for “Arnold Chiari Syndrome” at Mass General Hospital in Boston. It was a very risky brain surgery that lasted 7…  

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Emil. Cord Traction Syndrome. Arnold Chiari I Syndrome. Idiopathic Syringomyelia.

Published by at 2 April, 2014

EMIL, 5 years old Date of surgery: November 2012 Emil (born November 2008) fell ill in August 2010: he stopped walking; he was completely flaccid (his development had been normal before). The doctors did not know what was going on. They carried out different exams and reached the conclusion that he probably had myelitis. They…  

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Maria Cristina Zucchetti: Síndrome de tracción medular. Síndrome de Arnold Chiari I intervenido. Escoliosis y Siringomielia idiopática

Published by at 1 June, 2013

Fecha de intervención: marzo 2011 Me llamo Maria Cristina, vivo en Italia y tengo 27 años. Con la edad de 9 años empecé a sufrir de cefaleas y los doctores me curaron por sinusitis, migraña y cefalea, sin obtener resultados. En Octubre de 1999 tuve un episodio de mal de cabeza que se alargó por…  

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Carmen, Cord Traction Syndrome, Arnold Chiari I. Syringomyelia, Idiopathic Scoliosis

Published by at 26 July, 2012

Surgery date: January 2011 My story is long and painful however I will share small details with you as my personal testimony. Apparently, I was born healthy and strong but at 8 years I began to have rare sensations as if I had received a strong hit in the chest, dizziness, sciatica, neck stiffness, severe…  

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Diego Tasca. Medullary traction myelopathy. Arnold Chiari I Syndrome. Thoracic scoliosis. Paramedian cervical central cord ischemia.

Published by at 9 November, 2011

Date of surgery: May 2009 My name is Diego Tasca and I am a patient with a diagnosis of a rare disease called Arnold Chiari Syndrome (ACHI). I discovered all this in 2003, when I suffered a cardiorespiratory arrest. I was taken to the E.R. of Piove Di Sacco hospital, and, after a cardiopulmonary resuscitation,…  

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Victoria Elena Estrada. Medullar Traction Syndrome. Arnold Chiari I Syndrome, Idiopathic Scoliosis.

Published by at 20 October, 2011

Date of surgery: February 2011 Life testimonial My name is Victoria Elena Estrada, I am Colombian, from Medellín, I am 51 years old, and I was diagnosed with Arnold Chiari I syndrome four years ago and I had a decompression, which did not work. I felt relatively well for six months and then the symptoms…  

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Paula Gonçalves Fernández, Medullar Traction Síndrome, Arnold Chiari I Síndrome. Platybasia; Basilar Impression, Reverse odontoid. Medullar cervical Edema.

Published by at 19 April, 2011

Date of surgery: May 2010 Andorra 10th of April 2011 Hi, my name is Paula Gonçalves Fernández, I am 36 years old. After many years of consulting, thousands of tests of all kinas and without any result, in the month of July 2009, Dr. Miralles from Andorra, after seeing all the tests I was told…  

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Kerrin Allen. Arnold Chiari I Syndrome, Syringomyelia C4, Idiopathic Scoliosis

Published by at 10 December, 2008

Date of intervention: December 2008 Hello my name is Kerrin Allen and I am from Sydney, Australia. I am very fortunate to have found Dr Royo and his team at the Chiari, Syringomyelia & Scoliosis Institute of Barcelona. It helped me a great deal reading other patients stories, and I am happy to share details…  

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Rosalia Mocciaro. Arnold Chiari I Syndrome, Cervical Syringomyelia and Idiopathic Scoliosis

Published by at 31 August, 2008

Date of intervention: January 2008 My name is Rosalia Mocciaro, I´m a 59 year old woman, born in Sicilia and a resident of Palermo. I´m a graduate of biology and my profession is teaching. Until the age of 55, I didn´t know that I was suffering from a rare disease called Arnold Chiari Syndromeand Siringomelia….  

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Christian Seguin. Ex-president of the French Association APAISER of Syringomyelia patients

Published by at 2 April, 2008

Date of intervention: April 2008 My SFT ( Section of the Filum Terminale) My name is Christian Seguin. My surgery was due to an insistent petition from some of the members of the association that wanted me to express myself about my experience with the filum terminale. I had decided to keep in silence while I…  

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Enara Gorbeña. Arnold Chiari I Syndrome, Syringomyelia and Idiopathic Scoliosis

Published by at 14 July, 2007

Date of intervention: July 2007 Hello my name is Enara Gorbeña, I am 21 years old and suffer from Arnold Chiari I, Syringomyelia and Scoliosis. My problems started when I was eight, when they diagnosed me with a 26 degree Scoliosis that they pretended to correct using an orthopedic brace and persistent swimming. When I…  

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Herminia Carrizosa Guerra. Arnold-Chiari I Syndrome, Syringomyelia and Scoliosis.

Published by at 14 December, 2006

Date of intervention: December 2006 Hello, I am called Herminia, i live in Malaga and am 57 years old. What I want from my testimony is to be able to help patients understand that there is hope, and like I, we thought that our future was destined to a wheelchair. I have been suffering symptoms…  

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Bruno Portelli. Syringomyelia-Syringobulbia, Arnold Chiari I Syndrome and Scoliosis

Published by at 15 October, 2006

Date of intervention: October 2006 My name is Bruno Portelli I am a 35 year old Italian. I have been sick since I was 16. It all happened suddenly starting with Dyplopia (double vision) and a loss of balance, getting worse until they diagnosed me with Syringomyelia with Syringobulbia associated with Idiopathic Scoliosis. At that…  

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