Between October 1993 and July 2017, more than 1000 patients affected by the Neuro-Cranio-Vertebral Syndrome and/or the Filum Disease with Arnold Chiari I, Syringomyelia and Scoliosis (in different diagnostic combinations) have been treated according to the guidelines of the FILUM SYSTEM®.

There are no published studies to date about the Filum Disease with regards to genetic inheritance. Nevertheless, due to the abovementioned conditions that the Filum Disease is made up of and our own studies about our clinical experience that are in course of publication, we know that there is a clear hereditary component. Also, if we add the high frequency of the disease with 20% of the world population, it is understandable that in many families there is more than one affected person.

At ICSEB we give relatives of patients advise or an early detection of the Filum Disease so that the FILUM SYSTEM® can be applied as soon as possible also in their cases.

In this Family Testimonials section, operated patients have offered their availability share their experience together as to show an example of how the disease can affect several members of the same family.

We highly appreciate their open-hearted and selfless involvement by expressing their views on our exclusive treatment method.

NOTE: The opinions expressed in the testimonials are those of the authors and do not necessarily reflect the views of the Institut Chiari & Siringomielia & Escoliosis de Barcelona.