Kevin Espinoza. Arnold Chiari I Syndrome, Syringomyelia
Published by ICSEB at 19 March, 2015 Kevin’s letter to Dr Royo with an update Dear Dr Royo, I am writing to you to say hello and to inform you that I am feeling very well since you performed the Surgery. My family and I are truly very grateful to you, because otherwise I would […]
Maria Maddalena Crabolu. Cord Traction Syndrome. Descent of the Cerebellar Tonsils. Idiopathic Syringomyelia.
Surgery date: 03/12/2013 The patient had a magentic resonance imaging check up of the spine for her 5 year post-op follow up of the Sectioning of the Filum Terminale according to the Filum System® method. Here we can see the comparison betwenn the pre- and current post-op MRI scans with the relevant decrease of […]
Larisa Kuznetsova. Neuro-cranio-vertebral syndrome. Filum Disease. Arnold-Chiari I syndrome. Idiopathic Syringomyelia.
Surgery date: February 2016 THE STORY OF MY DISEASE AND RECOVERY I remember that since I was 3-4, I used to see vibrations of colours that moved and, at the same time, I had the sensation that I was flying upwards. I was a quiet child, I didn’t like active play and preferred quietness, […]
Dayse Aparecida Ferreira. Neuro- Cranio-Vertebral Syndrome. Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome Type I). Intramedullary cyst (idiopathic Syringomyelia).
Surgery date: March 2017 My name is Dayse, I am 34 years old and have had on and off pain since I was 28 years old, the cause of which was not discovered. These pains intensified in July 2014 and I had to go to the emergency room because they were really bad. I […]
Nicholas Amico. Arnold Chiari I, Idiopathic syringomyelia, Cord traction Syndrome, Descent of the cerebellar tonsils (DCT).
Testimony update: 21/06/2017 Nicholas’s Magnetic Resonance Images Previous to the SFT according to the Filum System® After the SFT according to the Filum System® The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Surgery date 5/7/2012 Hello everybody, my name is Nicholas, […]
Three little siblings. Neuro-Cranio-Vertebral Syndrome, Filum Disease and Arnold Chiari Syndrome type I
Dates of the 3 surgeries: 2014 and 2016 Hello everyone! We are the parents of three wonderful children who unfortunately were born with Arnold Chiari I malformation. We did not imagine that this disease could even exist. It all started in the first years of our oldest daughter’s life. She had cyclic vomiting and […]
Nieves Wang, Cord-Traction Syndrome. Arnold-Chiari Syndrome Type I, cervical disc disease.
Surgery date: June 2011 Hi everybody! I want to share an article with you that I wrote in 2010 where I describe my difficult journey trying to find a physician who would heal me. Back then I did not know if what was being offered in Spain was the truth or not, so to […]
Leonardo Coutinho, Neuro-Cranio-Vertebral Syndrome with a Descent of the Cerebellar Tonsils.
Surgery date: July 2015 My son started to have symptoms at the age of three. We saw different paediatricians and neurologists and they ordered magnetic resonance scans of the skull and brain. Nothing indicated the diagnosis. He was treated as a boy with headaches and asthma, but there was something that told that that […]
Abdallah Faisal Aljohani. Neuro-Cranio-Vertebral Syndrome, Filum Disease. Idiopathic Syringomyelia. Arnold-Chiari Syndrome I. Idiopathic Scoliosis. Multiple disc disease.
Surgery date: April 2016 My name is Faisal, I am Abdallah’s father, he a fifteen-year-old boy from Saudi Arabia. I allow myself to tell you my son’s story, as it has been his mother and myself who have experienced his suffering in flesh and blood. Abdallah’s probleme started with the atrophy of his left […]
Olga Gureeva. Filum Disease. Arnold-Chiari Syndrome Type I, multiple Disc disease.
Surgery date: June 2015 My name is Olga, I am from Tver (Russia) and I am 28 years old. Everything started in school; I often had headaches, dizziness, sometimes vomiting, was easily fatigued, weakness and darkness of eyesight. The doctors, without examining me, diagnosed only vegetative-vascular dystonia. And that’s how years went by. Until […]