Kanata Nakata: Neuro-Cranio-Vertebral Syndrome. Filum Disease. Arnold Chiari Syndrome Type I. Idiopathic Syringomyelia. Disc herniation L5-S1
It has been two years and two months since my son (who is 24 years old) underwent the Sectioning of the filum terminale at the Institut Chiari de Barcelona. I would like to thank Dr. Fiallos for performing my son’s surgery, and Ms. Yuka Takahashi for mediating between the doctor and the patient. I’m […]
Elizabeth Streit. Idiopathic Syringomyelia. Idiopathic Scoliosis. Multiple disc disease. Odontoid retroflexion.
Surgery date: 28/08/2018 Filmed: 07/09/2018 Hello! My name is Elizabeth Streit, I was born in Mexico but I live in Philadelphia (USA). I was diagnosed with Syringomyelia in 2015. I had strong pain in my neck, constant thoracic and back pain. I consulted different doctors, neurologists and neurosurgeons to discover what I had. For many […]
Patricia Tanis, Neuro-Cranio-Vertebral Syndrome, Filum Disease, Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and idiopathic Scoliosis.
Surgery Date: 13 September 2016 It has been over 2 years since my surgery. I wanted to wait a long time to give feedback. This is my experience. I suffered with symptoms for a long time. They continued to get progressively worse until I couldn’t take it anymore. Before surgery, literally every time I […]
Stephen Owens, Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the Cerebellar Tonsils (DCT.Arnold- Chiari Syndrome). Polydiscopathy.
Surgery Date: July 2016 Jesus led me to the Institute de Chiari de Barcelona, and the clinic/surgeons/staff in Spain saved my life, got me out of the bed, and gave me and my family HOPE and a quality of life! I whole-heartedly recommend that patients struggling with Chiari or tethered cord (tight filum) or […]
Kevin Espinoza. Arnold Chiari I Syndrome, Syringomyelia
Published by ICSEB at 19 March, 2015 Kevin’s letter to Dr Royo with an update Dear Dr Royo, I am writing to you to say hello and to inform you that I am feeling very well since you performed the Surgery. My family and I are truly very grateful to you, because otherwise I would […]
Maria Maddalena Crabolu. Cord Traction Syndrome. Descent of the Cerebellar Tonsils. Idiopathic Syringomyelia.
Surgery date: 03/12/2013 The patient had a magentic resonance imaging check up of the spine for her 5 year post-op follow up of the Sectioning of the Filum Terminale according to the Filum System® method. Here we can see the comparison betwenn the pre- and current post-op MRI scans with the relevant decrease of […]
Larisa Kuznetsova. Neuro-cranio-vertebral syndrome. Filum Disease. Arnold-Chiari I syndrome. Idiopathic Syringomyelia.
Surgery date: February 2016 THE STORY OF MY DISEASE AND RECOVERY I remember that since I was 3-4, I used to see vibrations of colours that moved and, at the same time, I had the sensation that I was flying upwards. I was a quiet child, I didn’t like active play and preferred quietness, […]
Dayse Aparecida Ferreira. Neuro- Cranio-Vertebral Syndrome. Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome Type I). Intramedullary cyst (idiopathic Syringomyelia).
Surgery date: March 2017 My name is Dayse, I am 34 years old and have had on and off pain since I was 28 years old, the cause of which was not discovered. These pains intensified in July 2014 and I had to go to the emergency room because they were really bad. I […]
Nicholas Amico. Arnold Chiari I, Idiopathic syringomyelia, Cord traction Syndrome, Descent of the cerebellar tonsils (DCT).
Testimony update: 21/06/2017 Nicholas’s Magnetic Resonance Images Previous to the SFT according to the Filum System® After the SFT according to the Filum System® The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Surgery date 5/7/2012 Hello everybody, my name is Nicholas, […]
Three little siblings. Neuro-Cranio-Vertebral Syndrome, Filum Disease and Arnold Chiari Syndrome type I
Dates of the 3 surgeries: 2014 and 2016 Hello everyone! We are the parents of three wonderful children who unfortunately were born with Arnold Chiari I malformation. We did not imagine that this disease could even exist. It all started in the first years of our oldest daughter’s life. She had cyclic vomiting and […]