Home » Rare disease. Arnold Chiari Malformation. What is it and how is it treated?
Published by ICSEB at 25 August, 2022
HOLA Magazine. 11/08/2022
On August 11 th , the online HOLA magazine, published an article about Arnold Chiari
Malformation, based on the interview with the Institut Chiari & Siringomielia & Escoliosis de Barcelona– as a specialized international centre.
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These conditions came into force on 7 September 2007. They may be updated in order to adapt to regulatory changes, if any, may occur. In case of modification, it will be recorded in this section.
Last update: 08 May 2018
I.- INFORMATION TO COMPLY WITH THE INFORMATION SOCIETY AND ELECTRONIC COMMERCE SERVICE ACT – Law 34/2004 (LSSICE):
Institut Chiari & Siringomielia & Escoliosis (abbreviated as ICSEB) is responsible for the web www.institutchiaribcn.com
ICSEB was constituted by public deed number 2447, dated 6th of September 2007, authorized by the notary of Notary Association of Catalunya, Mr. José-Javier Cuevas Castaño. Registration in the Commercial Register of Barcelona since 29 February 2008, in volume 40286, Sheet 83, Page B 362284. The Company Tax Code is B64658735.
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The website and associated microsites may contain articles about health, medical, surgical, social interest topics or other types that the Institute considers of interest, whose content only reflects the views of the authors except those with contain explicit sign of ICSEB.
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The provider, responsible for the website, offers the users this document that aims to fulfil the obligations under the Law 34/2002 of INFORMATION SOCIETY AND ELECTRONIC COMMERCE SERVICE ACT (LSSI- CE) and inform about website conditions to all users of the website.
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ICSEB, as owner of the web www.institutchiaribcn.com will respond in the terms and within the limits set out in Articles 13 and the following one of Law 34/2002 of 11 July, of the information society and electronic commerce service act.
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ICSEB has translated the contents of the website in different languages, with the unique intention of facilitating the information to all the users who access it. However, we would like to emphasize that even though these translations have been done in the most careful way possible, linguistic, cultural and even technical discrepancies between the original and translated may occurr. In the unlikely event when there are such discrepancies, the only valid document would be the original one.
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V. DATA COLLECTION POLICY AND PROCESSING OF PERSONAL DATA
By this notice, the users of the portal www.institutchiaribcn.com are informed about the data collection policy and processing of personal data, so that users can decide whether they wish to provide personal data which could be requested through some channels on the website. This policy may be modified as a result of regulatory changes. In such a case the changes will be introduced in this section as soon as possible.
Some channels of the website may contain specific provisions on the protection of personal data, provisions that, if necessary, will be detailed at the end of the forms of data collection to inform the user and so they could give their free, unequivocal and informed consent about the collection and processing of their data. If a "key" is set in a form, the same will prevail over these general conditions.
If not indicated otherwise, the responses to questions about personal data in the forms are voluntary, unless the lack of response could imply any harm to the user’s interest. However, in some cases some data are needed to manage the service and/or user request, so not providing necessary data could imply that the request could not be attended. In the data collection forms the "mandatory" fields for accessing the channel/request will be indicated with an asterisk (*).
The data collected through the website will be processed and collected in a automatic database whose owner is ICSEB, domiciled in Barcelona, at Paseo Manuel Girona, 32, with the very purpose of each form.
If the user provides freely his email address, he/she explicitly authorizes ICSEB to remit the requested information by this way, for all those purpose of complying with the LSSICE, which prohibits the sending of commercial communications by e-mail that haven’t been requested or specifically authorized.
The user is the sole responsible for the accuracy of the data provided to ICSEB through the website: www.institutchiaribcn.com.
When the user's consent is necessary to process his personal data, it must be provided by a person with full capacity to act; failing that consent must be given by the representative or legal guardian and will be revocable at all times without retroactive effect, in accordance with the provisions of arts 6 and 11 of the Organic Law 15/99 of 13 December Protection of Personal Data and regulations that it develops.
The user can exercise his/her rights of opposition, access, rectification, limitation, transferability and deletion of data by writing to the following address: Institut Chiari & Siringimielia & Escoliosis de Barcelona, Paseo Manuel Girona 32, 08034 BARCELONA. You can also send an email to the following address: [email protected].
Furthermore, in accordance with Law 34/2002 of 11 July, information society and electronic commerce service act, the user may revoke his consent, at any time, to receive commercial communications electronically by addressing an email to [email protected] with the subject "I DO NOT WANT TO RECEIVE INFORMATION BY EMAIL".
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In data transmissions over the Internet, it must be ensured that the data is codified or encrypted to prevent unauthorized third party access. In this sense, the ICSEB has provided all measures allowed by the current technology.
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ICSEB facilitates access to different web pages that have been considered to be of interest. However, neither these pages belong to it nor it make a critical review of its contents; for all these reasons, ICSEB cannot be responsible for the operation of the linked page or any damages that may result from access or use of the same.
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The provider recognizes the corresponding industrial and intellectual property rights in favour of their holders. It doesn’t mean that their sole mention or appearance on the website results in the existence of any right or liability of the provider on them, as neither of endorsement, sponsorship nor recommendation by of the same.
The intellectual property rights of those ICSEB’s collaborators who publish their articles, photos, videos or any other type of testimonial in this website, will correspond to their authors, being understood as the free transfer of their rights for their publication through this website.
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The provider is not responsible for the content and information stored in, including but not limited to, forums, chat rooms, generators blogs, comments on the social networks or any other means that permits any third parties to publish content independently on the website of the provider.
However and in compliance with the provisions of the article 11 and 16 of the LSSI-CE, the provider encourages all the users, authorities and security forces, working actively to withdraw or, where applicable, block all content that might affect or violate the national, or international law, third party rights or moral and public order. If the user considers that there exists any content on the website that could be susceptible to this classification, please notify immediately the website administrator.
The user, when creating content on social networks about www.institutchiaribcn.com knows that under Spanish law and other principles of international law, the author himself is the bearer of all responsibility for publishing the content.
he publication of any illegal or copied content from others without their consent and advertising content is prohibited. When deem that ICSEB can directly denounce such actions to the authorities.
Following activities are particularly prohibited: the gratuitous insult, defamation, incitement to violence or hatred, any action contrary to the intellectual and/or industrial property right, distribution of material protected by copyright, sending unsolicited emails (SPAM) or any similar type of communication, extraction of personal data or other information or software of our computer systems and normally any other activity that is contrary to Spanish law
ICSEB will protect specially the good name, self-image and honour of each of its contributors when the conditions require it and always when this website www.institutchiaribcn.com or other social networks have been used as a platform to attack in a defamatory manner, directly, expressly and unequivocally against any of its contributors.
IX. PERSONAL DATA PUBLISHED THROUGH THE WEB:
Individuals’ data published through the website www.institutchiaribcn.com can not be used, in any way, without the consent of the their holders.
X. APPLICABLE LAW AND JURISDICTION
The relations established as the consequence of the usage of the web www.institutchiaribcn.com will be governed by the provisions of current Spanish legislation that is applicable.
The parties will renounce the jurisdiction that may apply to them and agree to settle any dispute related to the use of the website www.institutchiaribcn.com in the courts of the city of Barcelona.
Access to the website implies the acceptance of this legal policy.
Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)
The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) complies with the established in EU regulation 2016/679 (GDPR).
The contents of this website are a non-official translation of the original content of the website in Spanish. The translation is courtesy of the Institut Chiari & Siringomielia & Escoliosis de Barcelona with the purpose of facilitating comprehension for anyone who wishes to Access the website.