Michaela Ferlaino: Idiopathic Scoliosis, Cord Traction Syndrome, Arnold Chiari I Syndrome and Syringomyelia
Date of surgery: May 2011 Hi All, My name is Michaela, I’m 22 years old and I live in a small village of Calabria in Italy. I am writing these few lines with the hope to help all those people like me who are affected by Arnold Chiari Syndrome Type 1. Since childhood I […]
Paola Faedda. Arnold-Chiari I, Cord Traction Syndrome. Descent of the cerebellar tonsils (DCT)
Surgery date: June 2012 It is unbelievable that this disease, even though it is not as rare as we think, is known so little, even by physicians. I am going to tell you my story; I will try to summarise 3 months in a few lines. One morning in the middle of March 2012 […]
Brian Johnson. Arnold Chiari I Syndrome. Cord Traction Syndrome. Asimilation of the Atlas and Odontoid Retrocession.
Published by ICSEB at 3 December, 2012 Date of the surgery: July 2011. The Sectioning of the filum terminale worked to cure my Chiari 1 symptoms. I suffered from Chiari 1 from 2007 until 2012. My symptoms were headache and right lateral Nystagmus ( Dizzyness.) In July of 2011. I had the section of the Filum terminale […]
Brian Johnson. Arnold Chiari I Syndrome. Cord Traction Syndrome. Asimilation of the Atlas and Odontoid Retrocession.
Date of the surgery: July 2011. The Sectioning of the filum terminale worked to cure my Chiari 1 symptoms. I suffered from Chiari 1 from 2007 until 2012. My symptoms were headache and right lateral Nystagmus ( Dizzyness.) In July of 2011. I had the section of the Filum terminale by Dr Royo Salvador of the Institut […]
Sabine Bergmann. Idiopathic Scoliosis, idiopathic Syringomyelia, Odontoid process, Basilar Impression and myelopathy
Surgery date: September 2012 Hello from Berlin, my name is Sabine Bergmann and I am 50 years young. I have scoliosis (ca. 30º) since my childhood. It was treated intensively with physiotherapy since I was 12 years old until the end of the period of growth. After that they said: always practice some sports […]
María. Thoracic syringomyelia and idiopathic scoliosis. Cord Traction Syndrome.
Surgery date: June 2011 It all began in 2008, when I was only 18 years old. I started to have strange pains, vertigo, loss of balance, muscle spasms, weakness of the limbs, and I’m probably not remembering all of it. Without understanding what was happening to me, I quickly approached a doctor. He immediately […]
Anna Adell Querol. Idiopathic Syringomyelia. Cord Traction Syndrome.
Surgery date: July 2012 About ten years ago, I started to get some aches in my arms. The doctors said that it was tendonitis, a wrong movement, …but the pain was always the same and I was gradually losing strength. Last year I had an electromyogram done, because I virtually couldn´t hold a pen […]
Annalisa Caicci. Arnold Chiari malformation type I, Cord Traction Syndrome. Descent of the cerebellar tonsils, idiopathic syringomyelia and idiopathic scoliosis.
Surgery date: December 2011 My name is Annalisa Caicci, I am 27 years old, I live in the Province of Padua and on 20 December 2011 Dr. Royo performed surgery on me. I never had any problems during my childhood: I always did ballet, lots of sports and movement. From April 2004 onwards, following […]
Natalia Sotnikova. Arnold Chiari I, Cord Traction Syndrome. Descent of the cerebellar tonsils. Idiopathic Syringomyelia and idiopathic scoliosis.
Surgery date: May 2012 Dr. Miguel B. Royo Salvador performed surgery on me on 31 May 2012 and since then I hold this date as the date of my second birth! These aren´t bombastic words; this is my current and objective existence. I learned about my disease after having a MRI done in 2012. Beforehand […]
Nunzia Cavallo. Arnold Chiari I Syndrome. Cord Traction Syndrome.
Surgery date: April 2012 We are Carmine and Maria Cavallo, Italians from the Brindisi region. We very much want to and also feel that it is our duty to tell our story for those who have discovered that they affected by the Chiari I syndrome. We are a young couple with two kids, Nunzia […]