Luiza Ribeiro Scherer. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Idiopathic Syringomyelia. Idiopathic Scoliosis.

Published by ICSEB at 21 July, 2023

Date of surgery: 16/02/2017
Filmed: 20/02/2023

“My name is Priscila and this is my 12-year-old daughter Luiza. We are from Brazil. When Luiza was 4, she was diagnosed of cervical and thoracic Syringomyelia, no Chiari, but with a lot of symptoms. Due to her urinary incontinence, tingling in her legs and difficulty when walking, we realized there was something wrong. They ran the MRI tests and thus diagnosed the Syringomyelia. We then started looking for treatment, since Luiza’s syrinx was growing significantly and her symptoms were getting worse, limiting her quality of life.

Today we are at the Institut Chiari to let people know that this treatment is really minimally invasive and brings a lot of benefits. So, do not hesitate in travelling to Barcelona and undergoing the surgery.

Luiza is now 12; we are here at the Institute to share our experience. She is currently in her 10-day postoperative period due to another condition related to her thorax, that is why she is wearing a corset and in a wheelchair. She can actually walk, go to school, have a normal life and practice sports.

We are here also to see the comparison between the 2017 preoperative images and the latest ones. Luiza’s largest syrinx was in the thoracic spinal cord and it has almost disappeared. We are really happy about that, we already knew that she had improved, since approximately the 95% of her symptoms disappeared after surgery. It has been a very quick recovery!

We cannot keep to ourselves such a positive experience with the Institut Chiari, their work and, above all, the benefits the surgery brings. When I brought Luiza here, I only expected the syrinx would stop growing and now I’m realizing it has even shrunk and almost all her symptoms disappeared.

If this condition has no cure, this treatment is the cure. It provides a better quality of life to those suffering from the symptoms of Chiari, idiopathic Syringomyelia and idiopathic Scoliosis and with the indication of surgical treatment. The Doctors at Institute Chiari review every single case to make sure the patient is a candidate for the intervention. Do not hesitate in undergoing or having your child undergo the surgery, because you will benefit from it.”

At the end of the video, Priscila asks her daughter: “isn’t that true, Lú?” and Luiza nods. “Have you improved a lot?”, the patient nods again. “Say hello”, asks her mother and Luiza greets with her thumbs up.

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