Karyna and Rostyslay Danylishyn. Filum Disease. Arnold-Chiari I Syndrome. Idiopathic Syringomyelia and idiopathic scoliosis.

Published by ICSEB at 3 December, 2018

Karyna: Filum Disease, Arnold-Chiari I Syndrome, Idiopathic Scoliosis and Multiple Disc Disease.
Rostyslav: Filum Disease, Arnold-Chiari I Syndrome, Idiopathic Syringomyelia and Multiple Disc Disease.
 

Surgery date: Karyna (13/02/2018) and Rostyslav (16/10/2018)
Filmed: 17/10/2018

Alexandr and Natalia would like to share their experience at the Institut Chiari.

Karyna started to have her first symptoms when she was 6 years old: pain in her whole body, constant and intense headache, panic attacks and fear. She was diagnosed with Arnold-Chiari I Syndrome but her neuropathologist said that still she didn’t need any treatment, even if her parents were worried about her symptoms. Then they started to search for the information on the Internet and they found Institut Chiari de Barcelona, which uses a unique treatment method.

At the same time, her brother’s symptoms began: pain in his whole body. An MRI was conducted on him but he was not diagnosed with the Arnold-Chiari I Syndrome.

Having known that their daughter’s life was in danger, the parents wrote to Institut Chiari and they went to Barcelona to undergo surgery there. The stay in Barcelona and at the Institut turned out to be less complicated than they had thought. Karyna started to walk without any help on the very same day of the surgery. Back home, the symptoms began to disappear, her sleep quality improved and her fears diminished.

When they went to Barcelona with Karyna, they brought Rostyslav also with them. The doctor examined him at the Institut. During the visit, they discovered that the boy was more affected than his sister and he was a candidate for the Filum System® Method treatment with the diagnosis of Arnold Chiari Syndrome and Syringomyelia.

He was operated yesterday and he is fine. The parents thank the attention and the support of the Institut Chiari’s doctors. They recommend to all the patients who are suffering from similar symptoms to be informed about the treatment offered at the institute and they should not doubt or have fear; because they have seen that this treatment can stop the disease and they are happy that they could give a better future to their children.

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