Giampiera Negri: Cord Traction Syndrome. Arnold Chiari I Syndrome. Idiopathic Scoliosis. Discopathy

Giampiera Negri: Cord Traction Syndrome. Arnold Chiari I Syndrome. Idiopathic Scoliosis. Discopathy
Surgery date: September 2010
Alice and Aurora: Cord Traction Syndrome, descent of the cerebellar tonsils, idiopathic scoliosis, multiple discopathies.
Surgery date: March 2014

Mrs Negri shares the testimonial regarding her personal and her daughters’, Alice and Aurora, experience. She tells us how she had been suffering from very strong headaches, loss of balance, pins and needles in the extremities, paresthesias since her childhood. The symptoms became ore acute over time until they were almost unbearable after her two pregnancies, especially after giving birth the second time.

She has a magnetic resonance done in 2010 and the test result was Arnold Chiari Syndrome. She approaches specialists in Italy who present the hypothesis if a decompression surgery, but she keeps on searching for possible alternatives until finding the Institut Chiari de Barcelona. Convinced by the testimonials of other patients and by the applied minimally invasive technique, she decides to undergo the Sectioning of the Filum terminale.

Mrs Negri tells us that her life has improved radically since that day: she does not have tuck herself away in bed with unbearable headaches, she has not missed another day of work, she has always been able to get up, cope with everything and raise her daughters, she can say that she is feeling well.

She explains that in the current year her oldest daughter, of eight years, has started to experience some symptoms and so she decided to have her and her little daughter of six years take a magnetic resonance scan. Both showed a descent of the cerebellar tonsils and so Mrs Negri, aware of her own experience, immediately decided to have both girls undergo the procedure.

The surgery was done in March 2014 and today, in the check up appointment, Alice and Aurora already display improvements in some aspects. Mrs Negri is aware that it will be necessary to observe their evolution, but she is confident due to what she experienced herself. She also hopes that her story is able to help other facing the same road, especially in the case of parents, who, as her, have to take choices about their children’s life.

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