New scientific article on the Neuro-Cranio-Vertebral Syndrome associated with Ehlers-Danlos Syndrome
Published by ICSEB at 30 May, 2025 Ehlers-Danlos Syndrome (EDS) includes a complex group of heterogeneous, hereditary disorders, characterised by fragility and increased elasticity of the soft connective tissues, which concerns us particularly with respect to the type with vertebral pathology and cranio-cervical instability. What relationship exists between Ehlers-Danlos Syndrome (EDS) and Neuro-Cranio-Vertebral Syndrome (NCVS)? Can eliminating […]
Evolution of the syringomyelic cavity and idiopathic scoliosis. 10 years after Filum System®treatment.
Published by ICSEB at 23 May, 2025 Case No- 18015 Diagnosis: Neuro-Cranio-vertebral Syndrome, Filum Disease. Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome I). Idiopathic Syringomyelia and idiopathic Scoliosis. Date of the Sectioning of the Filum terminale (SFT) procedure: April 2015 Patient no. 18015, who wishes to remain anonymous but has given consent for her case to be published, underwent […]
International Fibromyalgia and Chronic Fatigue Syndrome Awareness Day
Published by ICSEB at 12 May, 2025 Since 1993, the World Health Organisation (WHO) has designated 12 May as the World Awareness Day for Fibromyalgia and Chronic Fatigue Syndrome. The date honours Florence Nightingale, a renowned Brithish nursing pioneer, writer, and statistician, who is believed to have suffered from a similar, chronic, and debilitating illness, though unknown at the time. […]
“The morphological analysis of the Filum Terminale and the description of the distal filum terminale externum.”Article by Buloz-Osorio et al.
Published by ICSEB at 24 April, 2025 On 25th March 2025, the article “Morphological analysis of the filum terminale and detailed description of the distal filum terminale externum: a cadaveric study” by Buloz-Osorio E., Ortega-Sánchez M., Royo-Salvador M.B. and Rodríguez-Baeza A. was published in the journal Frontiers in Neuroanathomy. This is an observational and anatomical description study, which we […]
21st April 2025: International Day of Creativity and Innovation
Published by ICSEB at 21 April, 2025 On this international day, we celebrate creativity as a human quality and innovation concerning the plans that allow its application. At Institut Chiari & Syringomyelia & Scoliosis of Barcelona (ICSEB), we value these aspects so much that in 2013, Dr. M. B. Royo Salvador founded the Department of Research + Development + Innovation (R+D+i) (Fig. […]
Virtual Meeting Series 2025with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)
Published by ICSEB at 1 April, 2025 Sponsored by the Chiari & Scoliosis & Syringomyelia Foundation (CSSF) We are pleased to announce the launch of a new series of virtual meetings in 2025 with the Institut Chiari & Siringomielia & Escoliosis de Barcelona. These sessions aim to address the doubts and difficulties faced by patients with […]
World Brain Awareness Week (10-14 March)
Published by ICSEB at 13 March, 2025 Brain Awareness Week (BAW) is an international campaign launched in 1996 and coordinated by the Dana Alliance in the United States and the European Dana Alliance for the Brain. It responds to the common interest in advancing public awareness of brain research, with the goal of disseminating the progress and […]
Rare Diseases Day 2025
At the Institut Chiari de Barcelona, we have worked with conditions related to Filum Disease and Neuro-Cranio-vertebral Syndrome since 2008. Some are considered to be orphan diseases, such as Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia. The authors of The Lancet Global Health stated last year that, in general, Rare Disease Day 2024 was characterised by both advances and ongoing challenges. […]
The Filum Disease: a congenital condition that may affect several members of the same family.
Published by ICSEB at 14 February, 2025 The Filum System® method takes into account, in its guidelines, that the Filum Disease constitutes a congenital pathological entity of probable genetic cause**. Due to this particularity, our centre recommends an evaluation of the first-degree relatives of each patient, through complementary tests, along with remote preliminary diagnostic impression or an […]
Symptoms of Filum Disease and Neuro-cranio-vertebral Syndrome: before and after the treatment according to the Filum System®
Published by ICSEB at 24 January, 2025 Many patients diagnosed with Arnold-Chiari Type I syndrome, Idiopathic Syringomyelia, Idiopathic Scoliosis, or other conditions related to Filum Disease (FD) often wonder if some of the symptoms they experience are due to these diagnoses, because they don’t seem to be typical symptoms of these conditions. In fact, many doctors aren’t always aware of the wide […]