Iker Díaz Noda. Neuro-cranio-Vertebral Syndrome. Filum Disease. Arnold-Chiari I Syndrome. Idiopathic Syringomyelia and Idiopathic Scoliosis.

Published by ICSEB at 21 October, 2022

Surgery date: 21/05/2019
Filmed: 04/07/2022



Hello! We are Iker’s family. We are from La Gomera, Canary Islands, where there are not all the medical resources one could wish for. In February 2019, thanks to a podiatry examination, we were able to see that he had a scoliosis that had not been found until then, when Iker was already 6 years old. As a result, his physiotherapist requested an MRI. Thanks to this, he was diagnosed with Arnold-Chiari type I Syndrome, Syringomyelia and idiopathic scoliosis. Then, we began a journey to find information. From the very beginning, the neurosurgeon recommended undergoing a suboccipital craniotomy, which we flatly refused; then we started looking for information on the Internet, trying to find a solution, until we found the website of the Institut Chiari de Barcelona.

Without hesitation, we got in touch with the institute and three months later we were in Barcelona to undergo surgery. We must say that he had no apparent symptoms, only scoliosis. We had the consultation on a Monday and he underwent surgery on Tuesday. Unfortunately, with the outbreak of the Covid19 pandemic, we could not return to Barcelona for the check-ups. The only thing that got a little worse was the scoliosis, which we were able to solve with the physiotherapist in La Gomera and we were able to continue the treatment from there. We kept in touch with the Institute without any problems and we came for the check-up three and a half years or so after the surgery. The images are very satisfactory, his tonsils descent has improved, his Syringomyelia has improved, Iker lives a normal life. The scoliosis did get worse at first, but now it maintains quite stable with the brace and we are moving forward. We are very happy, very grateful because God has put the Chiari Institute on our way.

We will always be very grateful to them. We will continue with the check-ups every three years but, as you can see, he can lead a normal life and is a fully active and happy child.

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