Published by ICSEB at 1 April, 2022
Surgery: 11/12/2018
Filmed: 27/12/2021
Eduardo Filipe Schewtschik Filho, the patient, tells us his story briefly.
“Hello, my name is Eduardo Filipe Schewtschik Filho and I am 15 years old. 3 years ago I underwent surgery for Arnold-Chiari I Syndrome. When I started High School, I couldn’t walk. It was difficult; I felt pain, had reduced mobility and lack of muscle strength. I feel so much better now. I can walk now and I have better reasoning ability than before. I am much better”.
Then, Mrs. Luciana Bigaisk, the patient’s mother, explains how her son is doing:
“Eduardo did his 3 year follow-up consultation. When he underwent surgery, he was very well and had a fantastic recovery. Now, in the follow-up consultation, we have seen that the cerebellar tonsils have ascend and he is fine. 100% recovered. We would like to thank the Institut Chiari, Marta and the entire team who have helped and supported us to be here. Thanks. “
Filmed: 03/01/2019
Eduardo Filipe, 12 years old, had lost so much strength in his legs that he could no longer walk. With a diagnosis of Arnold-Chiari Syndrome Type I, he suffered from dizziness and severe headaches and pain in the spine, which forced him to stand because, when lying down, his symptoms worsened. His mother says that the boy also had problems in his ears, blurred vision and suffered falls due to the lack of muscular strength, thus needing a wheelchair.
“After the surgery, he recovered well and started to see the first results. Today, 22 days after the surgery, he no longer feels muscle weakness or pain. He is well and can walk,” says Luciana.
The patient’s father wanted to reassure other patients with the same symptoms as his son: “I would like to encourage those who want to undergo surgery or wish their children had the surgery. For us it is very gratifying to see that our son could walk again one day after the surgery and that he no longer needs the wheelchair”.
Eduardo says that his son could not sleep at night because he had pain and now his nights of sleep are calm. “His facial expression has changed because before he used to have pain and now he usually smiles”.
Both, Luciana and Eduardo, wanted to thank the entire Institut’s team for the attention received: Dr. Royo, Dr. Salca and the translators/interpreters (Nina Piorkowska and Marta Orsini). “ I want to especially thank Dr. Salca for the way he took care of our son, and the whole team, for all the attention and the love we received. Let this method reach more people,” said the patient ‘s father.
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