Stephanie Wustrow – Neuro-Cranio-Vertebral Syndrome. Filum Disease*. Arnold-Chiari Syndrome type I. Idiopathic Syringomyelia. Multiple disc disease.

Published by ICSEB at 1 July, 2021

Link: https://www.youtube.com/embed/dC4sJZQMQ7s
 
Surgery date: 02 March 2021
Video filmed on: 18 March 2021
 

 
Stephanie tells us that she is a 23-year-old who was diagnosed with Arnold-Chiari Syndrome Type I, and Syringomyelia at level C5-C6 of her spine. She found out about the Institute very soon after her diagnosis, she did as much research as she could and found herself heading straight to the Institut Chiari & Siringomielia & Escoliosis de Barcelona and has had the most incredible experience. The Institute has been very helpful and professional, she has felt incredibly loved and helped and in the safest hands possible. Everyone who has helped her at the hospital, her surgeon, her contact person, has treated her very well and surgery was a success and she is excited to see how her body heals and unfolds in the future. She is very grateful for the experience and cannot wait for anyone else with this condition and who is suffering to get this surgery in order to heal and be able to live a happy life.

Email address: [email protected]
 

1. (*) Royo-Salvador, M.B., Fiallos-Rivera, M.V., Salca, H.C. et al. The Filum disease and the Neuro-Cranio-vertebral syndrome: definition, clinical picture and imaging features. BMC Neurol 20, 175 (2020). https://doi.org/10.1186/s12883-020-01743-y , https://rdcu.be/b36Pi