Published by ICSEB at 14 September, 2017
Ladies and Gentlemen,
We are pleased to announce that the Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in cooperation with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) and the association AI.SAC.SI.SCO Onlus, is organizing a cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease.
The artistic event will take place in Rome, Italy, in the afternoon of Saturday 7 October 2017, at the Don Luigi Guanella Theatre.
You are all invited to attend and enjoy the show offered by the artists who honour us with their contribution.
We look forward to meet you or see you again on this special occasion where Science and Art will be united.
Rita Capobianco is an actress, dancer, presenter and author of theatrical works. Her career as an artist started in 1978, when she joined the Camomilla,band, a product of Bottega dell’Arte, connected to the Italian record company Ricordi. In 1980 she started her adventure with the Bagaglino theatre, which lasted 9 years and was marked by participations in shows at Salone Margherita, TV programmes like Per chi suona la campanella and Biberon, written by Pier Francesco Pingitore and Mario Castellacci and directed by Pingitore. When her experience with the Bagaglino got to an end, she continued working in theatres, directed by Vito Molinari, Edmo Fenoglio, Franco Molè, Gianni Leonetti, Vincenzo Zingaro, Cinzia Berni and many more. Between tours, she presented various theatre festivals and “Miss Italia 1996” province selections in Sicily.
In the movies, she played the role of Salomé in Secondo Ponzio Pilato (According to Pontius Pilate) by Luigi Magni; she was Ada, Giannino’s sister in the film Gian Burrasca and Licio Belli’s secretary in Attenti a quei P2 (Beware those P2) by Pier Francesco Pingitore. As a dancer she participated in Sergio Leone’s C’era una volta in America (Once upon a time in America), in Fred e Ginger directed by Federico Fellini and Un uomo innamorato (A man in love) directed by Diane Kurys. She was part of the dance teams in Drive In, Piccolo Slam (Little slam), La luna nel pozzo (The moon in the well), Viva le donne (Long live women), as well as in the permanent cast of Fantastico (1984). As a guest, she took part in Italian TV programmes like Sereno Variabile, Domenica in, Cocco, Dieci Herz, Pronto è la Rai, Ieri, Goggi e domani, Buona domenica, I fatti vostri, Stasera Lino, Telegatto and I Siculissimi.
In television, she played Rosaura in the kids’ movie Pinocchio, a secretary in the “Laziness” episode of the film Di che peccato sei (Which is your sin) by P.F. Pingitore, a psychologist in the fiction Una madre detective (A detective mother), directed by Fabrizio Costa. Amongst her multiple artistic experiences, there’s a collaboration with the magician Silvan and participations in TV selling and TV ads.
After her graduation in Modern Literatures, she tests herself as author and director of a couple of theatre works, which she directed and interpreted: La rima ti fa bella, a piece with puppets that she built, and Tutta colpa di Arnold (All because of Arnold), a grotesque monologue with music by Angelo Donzelli, in which she goes through her experience with the rare disease called Arnold-Chiari I Syndrome
.
Synopsis of Tutta colpa di Arnold (All because of Arnold)
The perception of time going by and the grotesque tones are key elements in the unfolding monologue. The protagonist and author describes the private drama of each person affected by Arnold-Chiari I Syndrome. The story develops through various steps, that show how the protagonist is gradually and seamlessly swept away by an alienating reality, unaware victim of a journey to herself. In this monologue, the reconstruction of symbols employed by the author come together in a masterpiece, split between an oppressive reality and a struggle for rebirth.
(Alessia Capobianco)
[email protected]
facebook.com: Tutta colpa di Arnold
Marisa Toscano, a Sicilian writer from Mistretta, is the author o “Simintì”, a collection of prose and poetry. It was published in 2012 under the seal “Centro Stórico”, “the Mistretta’s exemplary symbol and also symbol of a present culture that knows how to resist and suggest without allowing itself to get hung up in the apathy that let’s people fall asleep”, as written by “journalist and writer” Melo Freni un the La Gazzetta del Sud newpaper.
Rosa Grazia Cascio comments on her poems in Sicilian dialect that “they are rich in musicality and sentiment, virtues that can be perceived even without reading the translation”. Her tales are “irresistible because of their style and storyline, wonderful photographs in a big family album, an inexhaustible source of the joy of having a past, of belonging lovingly to a society, a world that is still alive in the memory and in the heart”.
Francesco Maria Di Bernardo Amato remarks about her and her “Simintì”: “She knows how to speak of suffering, that has lifted and been cured; she knows how to speak of death, not as a taboo that should be hidden away, but as an essential part of life itself and the spirit that it holds.”
Annalisa Caicci is born in Camposampiero on 21 October 1984. She starts studying dance at the age of three. First a course in classical ballet and professional training, then modern dance, at difference schools in the Padua and Treviso provinces, Il Balletto in Castelfranco V. To amongst others; she achieved special mentions for her success in the classes from the Royal Academy Of Dance of London and the Imperial Society of Teaching of Dance.
She has taken part in numerous classic and modern dance shows, with the best international maestros, such as: Gianni Rosaci, Michael Croydon Fowler, Miss Herida May, Margarita Smirnova, amongst others.
She honed her skills in Italy and abroad, for example at the Off Jazz Centre in Nice, France, studying with maestros such as: Gianin Loringet, Angelo Monaco, Huge Salgas, Martine Kasserlein and at the Summer Dance Campus in Arta Terme, Udine, Italy. She attended the Intensive Master Course Only Parsons with Mia McSwain from the Parsons Dance Company.
She often takes part in festivals, shows, collaborations, exhibitions and performances as an instructor and dancer, as for example recently in Villa Ca’ Marcello in Levada di Piombino Dese, Padua.
She is a Physical Education teacher in high school, in the Musical group, and participates in music and dance fusion shows.
Since 2007, she is the artistic director and instructor at the dance studio Pas de Chat gym & dance, with branches in Piombino Dese and Camposampiero where beginners’ courses for dance, classic and modern ballet, and aero-step and tone-up lessons are taught.
Her students regularly take part in show and collaborations with entities and groups with the goal of encouraging a correct dissemination of dance and transmitting a positive message of what dance has to offer.
Annalisa offers an educational type of dance where she puts emphasis on the importance of harmony and corporeality to encourage an adequate development of the individual through movement.
www.annalisacaicci-danza.it
Laura is a singer since she was thirteen years old. Her first album, Eclectic, appeared in 2011 and on it she speaks of love, strength, but also illness. With the help of her brother Anthony and his friend Gianni, she writes her songs in Italian, French and English. Laura loves the stage, for her it is a means of feeling well, she wrote: “The applause, the emotions, the audience’s response, those are the things that make me feel in love with music.”
Facebook.com/lauraierano06
Mr. Mauro is a renowned painter who lives and works in Cerenzia, Crotone province. He has won different prizes; these stand out especially: Milan’s “Primavera 2001” and the “Mid-summer exhibition” in Mariano Comense, prompting praise from many experts in the sector.
As defined in the Antologia dei Pittori, in 2002: “ Every artist refers to a craving determination of expression so that those who view their painting may also deduce the signs of profoundness of spirit and especially the poetic symbiosis of the artist”. (Scultori Aspetti dell’Arte)
Mauro’s art nevertheless, as told by Antonello Talerici in the article ‘The Realism of Francesco Mauro’: “it is not just a mere painting. But also poetry….His tones are tangible culture, a deep understanding that is born from a lengthy observation of the natural truth, taking part in the commotion of the clarity of reflexes….expressing enthusiastically his fondness of life.”
Anthony is a very active poet 34-year-old poet, who lives near Nice. He underwent surgery with Dr. Royo-Salvador for a Arnold-Chiari I Syndrome in Barclona on 8 March 2012. He has a painting business, works with a Foundation and founded his own garment brand KATZO.
Writing down what he is feeling, his experience and sentiments, is a way of feeling good; it helps him to express what he cannot say out loud. His verses are often directed at members of family, at his father Rocco, his mother Marie-Thérèse, especially at his brother CriCri with trisomy 21, at his sister Laura, who is a singer and for whom he authored a song published on her album in Novmber 2013. In his verses, he speaks of himself and his human and social relationships.
The poem “Malformation de Chiari” represents everything his body went through when he was diagnosed with the condition, up to the surgery. It was chosen out of five competing pieces and later published in the book “Dedicace a Saint’Agnese”, a collection by Mille Plumes in January 2015.
Facebook: Pour la poèsie de Ierano Anthony
Natalia Kalinina is a 38-year-old Russian writer, she has authored 20 novels that mix esoteric mystery, romance novel and detective fiction. All of her works have been published in Russian by “Eksmo”, the main publisher of the country who she has been working with exclusively for nine years now. The books are for sale in shops, newsstands, department stores and over the Internet. They are also available electronically through “Litres”, the biggest Russian website specialized in E-Books.
Having had a great passion for books since her childhood, Natalia always dreamt of writing her own book one day. Her studies nevertheless took her to a degree in biology and chemistry and she then worked with big companies in the sector, where a promising future was expecting her. One day she realized that this was not what she really wanted, and Natalie decided to leave her work to write her first novel. She sent the manuscript to several publishers, and while she was awaiting a response, se travelled to Spain to spend a few days there. There a series of events started to take place that would change her life forever. In Barcelona, she would meet her future husband and upon returning to Russia, she signed her first contract with a publishing house.
Natalia is currently living in Barcelona, true to her motto “follow your dream and never give up”, of which her own life is the best example.
The author is donating two copies of her novel “The Secret of the Black Book” exclusively for this event, with a special dedication: “With affection and gratitude, to the ICSEB team”.
To contact with Natalia Kalinina:
[email protected]
To purchase her books:
http://www.litres.ru/natalya-kalinina/
http://www.eksmo.ru/publishers/today/
http://www.labirint.ru/authors/41924/
FFerran Pérez Vivancos, born in Barcelona in 1946, earned his degree in Applied Art and Graphic Design in 1968. He taught Graphic Design between 1968 and 1979 at the Barcelona’s Massana School where he had himself studied beforehand. He combined this activity with that of a graphic artist at different studios in Barcelona. He set up his own design studio in 1982 where his combines his work with his painting activity.
Currently, after several decades dedicated to creativity, he accumulates hundreds of finished works, some of them in private collections in Barcelona, Germany and South America, where is work is especially well received.
Between 1972 and present day, he has participated in numerous collective expositions. The rest of his oeuvre is carefully stowed away. All this has been possible thanks to his perseverance, enthusiasm and the unconditional support of his family which has allowed him to develop this activity during so many years.
[email protected]
The Brazilian artist Chris Apovian works with video, painting and performance since 18 years. His work moves between references of the History of Art and politico-conceptual perspectives. In 2006, she participates in the 26th International Biennale of São Paulo, with a piece that included the participation of 30 homeless persons.
At this event, Apovian presents Da Vinci: el nacimiento de Brasil which according to the author is an approximation to Leonardo da Vinci’s work“.
[email protected]
www.facebook.com/chrisapovianx
For Brazilian Jonas Ribeiro art is a hobby through which he expresses his thoughts and expectations.
Ribeiro shows a drawing created especially for this event, with the title Hope. In the drawing we can see “a pilgrim travelling on the road of life, here represented by the colour green”. This pilgrim “is searching for the summit of the world, represented in the dark and celeste blue, the light of HOPE, yellow as a sun held by a heavenly arm, symbolizing the synchrony between the hand of God and the surgical skill of the physician”, as the artist explains.
[email protected]
www.facebook.com/jonasribeiro2011
José Mario Amaral is a versatile artist. He develops his creativity in abstract works with plastic art; he draws with pencil, works with pastels and acrylic paint, and also works with other materials, such as stone and wood. He is also a composer and music producer and is about to release his fourth independently produced record, with songs written by himself. Another of his passions is writing, he currently writing his first book.
The two pieces presented by Mr. Amaral are titled The Sand Siren and The seven snakes. The first one is about the magic of the sea, with its healing powers. “I am an example for that magic, I live in a city on Brazil’s coast and I have come to heal to another coast town, in Europe, I mean Barcelona.”
The seven snakes on the other hand expresses the balance between the material and the spiritual. “The material aspect manifests through money, healthy money, whilst the healing of the physical body comes from the snake”, he explains. “The manifestation of the spiritual comes from the spiritual entities that work for us and with us for the balance between the material and the spiritual. The seven snakes has seven, which is the number that represent the balance between the material and the spiritual”.
[email protected]
Instagram: @joz11eh_amaral
Mrs. Maria Pia Ambrosio is a creative entrepreneur who has been dedicating herself to decoupage and many other home and event decor techniques. The patient has very kindly shared some images of her hand painted work for this event.
[email protected]
Francesca Ghisio Erba had such a a great passion for dance since her childhood that followed through on achieving the Tersicorea diploma at the Autonomous Theatre Entity of the Opera of Rome. In the following years, she built a professional career as a dance soloist and she took part in many television programs and shows in the most important Italian theatres. Subsequently, after having worked as an choreography aid with Gino Landi and Evelyn Hanack, she engaged in teaching dance.
After a few years, she started to become more and more interested in the oriental field until she decided to embark on a new path that led her to earning a diploma as a professional therapist in Keiraku Shiatsu in 2004, and in Essene therapies in 2008. Later on, completing her studies and always searching for a focus related to aid, she obtained a diploma as a social worker from the Via Asmara Higher Education Institute in Rome as well as a diploma a psycho-synthetic counsellor at SIPT (Italian School of Psycho-Synthesis). At the same time, she went through a personal training experience with Yoga. More and more convinced that the individual’s well being derives, other than from a balanced mental state, from constant physical training. She oriented herself through a path that led her to being a postural fitness instructor and cardiac coherence and resonance trainer, which is a specific breathing routine.
Currently, with the basis of her personal experiences and studies, she is devoted to shiatsu treatments, essene therapies and counselling meetings, she organizes seminars for the dissemination of cardiac coherence and resonance and teaches hypopressive abdominal exercises, focusing on Postural Fitness.
[email protected]
facebook.com/francescaworkout
Lilou, nine years old, expresses her creativity through drawing and painting since young age of three years… for her it is a real passion that brings colour to life!
Aurora, nine years old, will be reading a poem that she wrote herself especially for this event; she wants to share her experience with other ill children.
Alice, eleven years old, is Aurora’s older sister and she will delight us with two guitar pieces of classical and traditional music.
CSSf, ICSEB and AI.SAC.SI.SCO want to express their heartfelt gratitude to the parents of these young girls for allowing the valuable participation of their daughters in this event.
Among the work on display at the San Luigi Guanella theatre, the audience will be able to enjoy various prints and paintings by the centre’s director, Dr. Miguel Royo-Salvador, and by Dr. Horia Salca, member of ICSEB’s neurosurgical team.
Dr. Miguel Royo-Salvador, apart from his studies at the School of Medicine that would lead him to earning his PhD in Neurosurgery, as a young man studied at the Arts and Crafts School of Tarragona, Spain, during three years. He won three prizes in 1967 in that province: painting, speed drawing and décor.
On this occasion he presents, among others, two series of acrylic drawings, elaborated for medical publications, which illustrate one of the conditions featuring this event, as well as the surgical technique applied to treat it:
“Sequence of the formation of a Arnold-Chiari I Syndrome, with a decent of the cerebellum, 4th ventricle and the cerebellar tonsils.” Designed for a medical publication in 1996. “Sequence of the minimally invasive surgical technique of the Sectioning of the Filum Terminale.” Designed for a medical publication in 1997.
Dr. Salca takes part in this event by exhibiting his paintings “Cadaqués”, “Church of Siurana” and “Last Supper”, executed in pencil, wax crayon and Indian ink.
As a Neurosurgeon and Researcher at the Institut Chiari & Siringomielia & Escoliosis de Barcelona, the physician cultivates a passion for drawing and painting since young age when he studied at the School of Fine Arts on Targu-Mures in Romania (1975-78). Later on he had to interrupt these studies to start the preparation courses to enter the School of Medicine.
CSSf, ICSEB and AI.SAC.SI.SCO want to express their gratitude to the doctors for sharing this artistic side along with the professionalism that defines them so much.
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