International Rare Disease Day Arnold-Chiari Syndrome in 10 points
Published by ICSEB at 28 February, 2018 On International Rare Disease Day, we join the fight by sharing our mission: spreading knowledge on the results of our research about the cause and new treatment for conditions that have so far been considered rare or of unknown cause. Among them the Arnold-Chiari Syndrome type I, which far […]
Interview with patient Sarah Perreault in the Canadian newspaper “La Nouvelle union”
Published by ICSEB at 16 February, 2018 The Canadian newspaper “La Nouvelle union” interviewed patient Sarah Perreault on 18 October 2017. The patient, affected by the Arnold-Chiari Syndrome Type I, explains her experience with a surgical procedure at a specialised centre in Barcelona and the outcomes, which she labels as “unbelievable and almost miraculous”. Des […]
THREE GIRLS AND ONE CAUSE
Published by ICSEB at 23 January, 2018 Belgian patient Lilou van Dyck (9 years old) and the Italian sisters Aurora (9 years) and Alice Negrini (11 years) decided to contribute to the cause of the Filum Disease. All three sent in videos of their art displays that were shown during the 2nd Cultural Event of the […]
Physicians and Artists
Published by ICSEB at 23 January, 2018 The 2nd Cultural Event of the Cultural Chiari & Scoliosis & Syringomyelia Foundation took place at the San Luigi Guanella theatre in Rome (Italy) in October 2017 with the contributions of the artist physicians. Dr. Miguel Royo Salvador, other than his studies at the School of Medicine that […]
Humanitarian writing gathers in Rome
Published by ICSEB at 4 January, 2018 The works by novelists and poets lend their voice to the literary talent at the 2nd Chiari & Scoliosis & Syringomyelia Foundation Cultural Event, that took place at the San Luigi Guanella Theatre in Rome (Italy) in October 2017. The Italian writer Marisa Toscano took part in the event and presented the […]
My 10thAnniversary with Dr. M Royo-Salvador’s team.
Published by ICSEB at 21 December, 2017 Barcelona, November 2017 This year represents a very important date for me. In a first instance, because it has been 9 years since the foundation of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB), and secondly, because 10 years have gone by since I work with Dr […]
The Chiari & Scoliosis & Syringomyelia Foundation is now available in English!
Published by ICSEB at 7 December, 2017 At the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) we are happy to announce the website of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) is now also available in English. https://chiarifoundationbcn.com/en/ With the purpose of reaching out to a ever growing number of patients, the CSSf […]
Interview with Dr. Miguel B. Royo Salvador, President of the board of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf)
Published by ICSEB at 5 December, 2017 Rome, 7 October 2017 Interview with Dr. Miguel B. Royo Salvador, President of the board of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf), on Rete Oro, a Rome-based web TV, by the journalist Emilio Sturla Furnò. The interview took place during the solidarity artistic event organized by the […]
Audience moved by the play about the Arnold-Chiari Syndrome I
Published by ICSEB at 30 November, 2017 Italian Rita Capobianco moved the audience at the Theatre San Luigi Guanella with her show “Tutta colpa die Arnold” (“It’s all Arnold’s fault”); the play was written, directed and interpreted by herself with original music by Angelo Donzelli. The play, written an interpreted by this ICSEB patient premiered in March 2017 […]
Six plastic artists show their work in Rome
Published by ICSEB at 16 November, 2017 Italy, Spain and Brazil were represented by plastic artists at the 2nd Cultural Event organized by the Chiari & Scoliosis & Syringomyelia Foundation, which took place at the San Luigi Guanella Theatre in Rome (Italy) in October 2017. A total of six artists wanted to collaborate personally or from […]