Angela Grieco. Arnold Chair I syndrome, Syringomyelia C7-T1 and idiopathic Scoliosis. Traction myelopathy
Surgery date: March 2008 My name is Angela Grieco and I live in Italy, in the province of Matera. I would like to tell you about how I discovered that I had Arnold Chiari I and Syringomyelia. Since adolescence I started to have strong neuralgias in the face, neck and eyes. Over the years […]
Vivien Chen. Arnold Chiari I, Cord Traction Syndrome. Descent of the cerebellar tonsils.
Surgery date: May 2012 Hello. I underwent the sectioning of the Filum Terminale surgery in Spain on 22 of May 2012, with a diagnosis of Arnold Chiari, without Syringomyelia. It all started put with a sudden headache on December 2011, a doctor from Shanghai diagnosed a CSF leak caused by to a rupture in […]
Paolo Buscemi. Idiopathic Syringomyelia. Cord Traction Syndrome. Mild thoracic scoliosis.
Date of surgery: July 2011 My name is Paolo Buscemi, I am 27 years old and I’m Sicilian. I am writing to tell my story about how I discovered my disease and Dr. Royo’s surgery. It all started in 2011. I started feeling strange sensations towards January: stiff hands, loss of strength and grip (often […]
Michaela Ferlaino: Idiopathic Scoliosis, Cord Traction Syndrome, Arnold Chiari I Syndrome and Syringomyelia
Date of surgery: May 2011 Hi All, My name is Michaela, I’m 22 years old and I live in a small village of Calabria in Italy. I am writing these few lines with the hope to help all those people like me who are affected by Arnold Chiari Syndrome Type 1. Since childhood I […]
Paola Faedda. Arnold-Chiari I, Cord Traction Syndrome. Descent of the cerebellar tonsils (DCT)
Surgery date: June 2012 It is unbelievable that this disease, even though it is not as rare as we think, is known so little, even by physicians. I am going to tell you my story; I will try to summarise 3 months in a few lines. One morning in the middle of March 2012 […]
Brian Johnson. Arnold Chiari I Syndrome. Cord Traction Syndrome. Asimilation of the Atlas and Odontoid Retrocession.
Published by ICSEB at 3 December, 2012 Date of the surgery: July 2011. The Sectioning of the filum terminale worked to cure my Chiari 1 symptoms. I suffered from Chiari 1 from 2007 until 2012. My symptoms were headache and right lateral Nystagmus ( Dizzyness.) In July of 2011. I had the section of the Filum terminale […]
Brian Johnson. Arnold Chiari I Syndrome. Cord Traction Syndrome. Asimilation of the Atlas and Odontoid Retrocession.
Date of the surgery: July 2011. The Sectioning of the filum terminale worked to cure my Chiari 1 symptoms. I suffered from Chiari 1 from 2007 until 2012. My symptoms were headache and right lateral Nystagmus ( Dizzyness.) In July of 2011. I had the section of the Filum terminale by Dr Royo Salvador of the Institut […]
Sabine Bergmann. Idiopathic Scoliosis, idiopathic Syringomyelia, Odontoid process, Basilar Impression and myelopathy
Surgery date: September 2012 Hello from Berlin, my name is Sabine Bergmann and I am 50 years young. I have scoliosis (ca. 30º) since my childhood. It was treated intensively with physiotherapy since I was 12 years old until the end of the period of growth. After that they said: always practice some sports […]
María. Thoracic syringomyelia and idiopathic scoliosis. Cord Traction Syndrome.
Surgery date: June 2011 It all began in 2008, when I was only 18 years old. I started to have strange pains, vertigo, loss of balance, muscle spasms, weakness of the limbs, and I’m probably not remembering all of it. Without understanding what was happening to me, I quickly approached a doctor. He immediately […]
Anna Adell Querol. Idiopathic Syringomyelia. Cord Traction Syndrome.
Surgery date: July 2012 About ten years ago, I started to get some aches in my arms. The doctors said that it was tendonitis, a wrong movement, …but the pain was always the same and I was gradually losing strength. Last year I had an electromyogram done, because I virtually couldn´t hold a pen […]