Letter from Rita Capobianco

  Rome, 30/03/2014 Dear Dr. Miguel B. Royo Salvador, I have decided to write this letter in Facebook not only because I consider it just to thank you publicly and express my infinite gratitude and consideration, but also because I hope that my words can help people who are suffering from same genetic, rare and […]

Emil. Cord Traction Syndrome. Arnold Chiari I Syndrome. Idiopathic Syringomyelia.

  EMIL, 5 years old Date of surgery: November 2012 Emil (born November 2008) fell ill in August 2010: he stopped walking; he was completely flaccid (his development had been normal before). The doctors did not know what was going on. They carried out different exams and reached the conclusion that he probably had myelitis. […]

Anna. Arnold Chiari I Syndrome. Cord Traction Syndrome.

  Surgery date: January 2012 My name is Anna, I live in Moscow (Russia). I am 48 years old. I want to try to briefly tell my story. The first symptoms appeared when I was studying at school, without an apparent cause I started getting headaches and vertigos. After a few check ups at different […]

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