VIII International Meeting for patients and professionals in Macôn.

Published by ICSEB at 15 September, 2014

On Saturday 13 September, the town of Mâcon turned during an intense conference day into the European Centre for the struggle against a series of conditions labelled as “rare diseases”: Arnold Chiari I Syndrome, idiopathic Syringomyelia and idiopathic Scoliosis.

Spanish and Italian professionals followed the invitation of the association A.M.I.S des M.O.M (Association des Maladies Inconnues Solidaires et Maladies Orphelines ou Méconnues) and partner organizations (Cœur Solidaire, Apotropaïque), to hold the “VIIIème réunion internationale destinée aux patients et professionnels”.

The team of scientists led by Dr Miguel Bautista Royo Salvador was joined, among others, by Dr Roberto Mantía and “Chiari & Scoliosis & Syringomyelia Foundation” representatives and presented latest advances in research, diagnosis and treatment regarding these diseases that affect an elevated rate of the world population, including the Filum System^® method and its excellent outcomes in the Filum Disease and the Neuro-Cranio-Vertebral Syndrome.

From these lines we would like to thank in first place the town council of Mâcon for its hospitality, we would also like to thank the families who came for their presence; Mrs Estelle Lussiana’s, president of the association A.M.I.S des M.O.M (France); the participation of Mrs Marisa Toscano as president of the association AI.SAC.SI.SCO (Italy) and of course, show our appreciation for the incomparable setting: Burgundy at the banks of the river Saône.

Mr Manuel Royo Salvador

Secretary of the Chiari & Scoliosis & Syringomyelia Foundation.