Valdir Adriano Da Silva. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia.
Surgery date: 28 March 2017 Video date: 07 April 2017 Patient Valdir Adriano da Silva tells us in this video about how he found out about his diagnosis and how he felt a few days after the Sectioning of the Filum terminale procedure in March 2017. The Brazilian explains that in late 2016 he […]
Teresa Balmaña Durbau. Arnold-Chiari Syndrome Type I.
Surgery Date: 4/7/2006 Date of the video: 12/7/2017 I am Teresa Teresa Balmaña Durbau, from Malgrat de Mar (Spain). I started having very aggressive symptoms such not being able to swallow, when I drank water it came out of my nose, I could not move or bow down my head, noise gave me very […]
Fernanda Isabelle Maia da Silva. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Arnold-Chiari Syndrome Type I.
Surgery date: June 2017 Date of the video: July 2017 Hi! My name is Isabelle and I am 43 years old. I was diagnosed with Arnold-Chiari at the end of August 2016. I had been suffering for 14 years. I decided to do some research to understand my condition and it was then that […]
Alessandra Cantuária de Araújo. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome Type I). Idiopathic Syringomyelia. Disc disease.
Surgery Date: 28 February 2017 Twenty years. That is how long Brazilian Alessandra Cantuária de Araújo had to wait before getting the right diagnosis. The patient suffers with the Arnold-Chiari Syndrome Type I, idiopathic Scoliosis and Syringomyelia. Her body was hurting due to the conditions and she had headaches often, as well as other […]
Ginevra Mari. Neuro-Cranio-Vertebral Syndrome, Filum Disease, idiopathic Syringomyelia.
Surgery date: 12/1/2016 Date of filming: 8/5/2017 Ginevra Mari is an 18-year-old Italian patient who, in her mother’s company, tells us of her experience with the condition, from the first mild discomforts through to the progressive worsening to the surgical procedure of the Sectioning of the Filum terminale. She wanted to take advantage of […]
Augusto Currelli. Medullary Traction Syndrome. Arnold-Chiari I Syndrome. Idiopathic Syringomyelia. Multiple Disc Disease.
Surgery date: 27/10/2011 Filmed: 28/06/2017 Mr. Augusto Curreli, from Cagliari (Italy), and his wife, explain their experience starting with the moment of diagnosis of the disease. The patient explains that at that time he had several symptoms: pain, headaches, lack of sensitivity, difficulty walking, urinating, etc. Once they found the Institut Chiari de Barcelona, […]
Patient leaves a message for other patients and doctors around the world
In this short video, Vilmar Bloemer transmits encouragement to individuals affected by the Arnold-Chiari Type I Syndrome, idiopathic Syringomyelia and Scoliosis and invites physicians to get involved.
Fellipe Gabriel da Costa Aguiar, Tight Filum Terminale Syndrome or Cord-Traction Syndrome. Descent of the Cerebellar Tonsils (DCT)
Date of surgery: 01/09/2016 Video recorded on: 21/09/2016 Marcio and Daiane, the parents of 4-year-old Fellipe Gabriel, wanted to share in this video their experience about obtaining the right diagnosis and how they found a treatment for their son. His mother tells us, that the boy started to have a lot of headaches, he […]
Lucas José de Angelo. Neuro-Cranio-Vertebral-Syndrome. Filum Disease. Arnold-Chiari Syndrome Type I, Syringomyelia, Scoliosis and Hydrocephalus.
Surgery date: August 2016 Little Lucas’ New Life 6-year-old patient Lucas José’s parents tell us in this video about their experience from the moment they learned of their son’s diagnosis (Arnold-Chiari Syndrome Type I, Syringomyelia, Scoliosis and Hydrocephalus) up to their last check up appointment here at ICSEB, 30 days after the Sectioning of […]
Regina Khalikova. Neuro-Cranio-Vertebral Syndrome, Filum Disease, Arnold-Chiari I Syndrome, Syringomyelia and Scoliosis.
Date of filming: 01.02.17, Surgery date: 02.02.17 The patient leans on her cane. Her body is displaced sideways, her movement is slow and insecure. The movement is even slower, tenser and more rigid without the cane. Three days after surgery. Date of filming: 06.02.17 Her body’s position is more correct, the movement is […]