Sarah Barbier. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Arnold Chiari Syndrome type I. Idiopathic Scoliosis. Multiple disc disease. Anterior sacrococcygeal dislocation.
Surgery date: 23/3/2021 Filmed: 2/5/2022 My name is Sarah and I am 30 years old. I was diagnosed of scoliosis at the age of 14 and I underwent surgery (arthrodesis) in France. 4 years after my arthrodesis, I had many complications and I had to have it removed and subsequently my symptoms worsened. In […]
Sofiia Nikolaeva. Neuro-Cranio-Vertebral Syndrome, Filum Disease, Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia.
Surgery date: 17.03.2022 Filmed: 29.04.2022 Sofiia is a patient from Russia with Arnold-Chiari Syndrome Type I and Syringomyelia. She found out about her diagnosis, when she started suffering from headaches and pain all over her body, which kept her from sleeping. One day, searching on the Internet, she discovered the Institute Chiari and decided […]
Eduardo Filipe Schewtschik Filho. Neuro-Cranio-Vertebral Syndrome, Filum Disease, Arnold-Chiari Type I. Idiopathic Scoliosis.
Video update Surgery: 11/12/2018 Filmed: 27/12/2021 Eduardo Filipe Schewtschik Filho, the patient, tells us his story briefly. “Hello, my name is Eduardo Filipe Schewtschik Filho and I am 15 years old. 3 years ago I underwent surgery for Arnold-Chiari I Syndrome. When I started High School, I couldn’t walk. It was difficult; I felt […]
Bruno Family. Neuro-Cranio-Vertebral Syndrome. Filum Disease. Arnold-Chiari Syndrome. Multiple Disc Disease.
Link: https://www.youtube.com/embed/g0hYSspcOZA Surgery date: 02/09/2021 Filmed on: 04/10/2021 We are the Bruno family and we are from Buenos Aires, Argentina. Our children, 14 year-old Donato and 11 year-old Rosella, underwent surgery at the ICSEB on September 2, 2021. Each experience is unique but, just as the story of other families with the same diagnosis […]
Maria Rodrigues da Cruz – Neuro-Cranio-Vertebral Syndrome. Filum Disease*. Arnold-Chiari Syndrome type I. Multiple disc disease.
Link: https://www.youtube.com/embed/MvTR4u16T2c Date of surgery: 17/06/2021 Video filmed on: 22/09/2021 “My name is Maria da Cruz and I am from Angola. I started having pain in my neck, which initially seemed to be a torticollis. As it did not improve, I did some tests in Portugal and I was diagnosed with Chiari I. From […]
Stephanie Wustrow – Neuro-Cranio-Vertebral Syndrome. Filum Disease*. Arnold-Chiari Syndrome type I. Idiopathic Syringomyelia. Multiple disc disease.
Link: https://www.youtube.com/embed/dC4sJZQMQ7s Surgery date: 02 March 2021 Video filmed on: 18 March 2021 Stephanie tells us that she is a 23-year-old who was diagnosed with Arnold-Chiari Syndrome Type I, and Syringomyelia at level C5-C6 of her spine. She found out about the Institute very soon after her diagnosis, she did as much research as […]
Sacha Inglés Gomes dos Santos. Neuro-cranio-vertebral Syndrome. Filum Disease. Arnold-Chiari Syndrome Type I. Idiopathic Syringomyelia. Idiopathic Scoliosis. Multiple Disc Disease.
Link: https://www.youtube.com/embed/OeF3SkjIYYw Surgery date: 04/06/2019 Filmed: 14/06/2019 This Angolan family explains their story in this video. Mr. Hélio Santos and Mrs Neide Gomes have three children. Sacha, eleven-year-old who is their second child, was diagnosed with Arnold Chiari I Syndrome when she was two. They say that at first they didn’t know that much […]
Yoli Chacón. Neuro-cranio-vertebral Syndrome. Filum Disease*. Idiopathic Syringomyelia . Idiopathic Scoliosis. Multiple Disc disease
Link: https://www.youtube.com/embed/3t-kBAYUUdE Surgery date: 22/10/2020 Filmed: 29/10/2020 Yoli, an American patient with Peruvian origins, tells us about her experience with her disease 7 days after her surgery with the Sectioning of the Filum Terminale (SFT) according to the Filum System® method. The patient explains that she underwent a syringostomy surgery in the USA, but […]
Olivia Jane Deru – Neuro-cranio-vertebral syndrome, Filum disease, Descent of the cerebellar tonsils (Arnold-Chiari Syndrome Type I), suboccipital craniectomy, intramedullary cyst (idiopathic syringomyelia), deviation of the spine (idiopathic scoliosis), low-lying conus medullaris.
Link: https://www.youtube.com/embed/u2pvkz82Ujc Surgery date: 08/10/2020 Filmed: 16/10/2020 Olivia’s parents contacted the Institut Chiari & Siringomielia & Escoliosis de Barcelona regarding their daughter Olivia’s case. Here they summarize their experience of undertaking a trip outside of their country, the United States, for the treatment of the young patient: “Olivia was diagnosed at eight years old […]
Adriana da Costa Tavares – Neuro-Craneo-Vertebral Syndrome, Filum Disease, Arnold-Chiari Syndrome type I, Basilar Impression and Idiopathic scoliosis.
Surgery date: 28/03/2019 Filmed: 06/05/2019 After having learned to live with headaches and dizziness for more than 20 years, our Brazilian patient, Adriana da Costa Tavares had a medical consultation with a neurologist who diagnosed her with Arnold-Chiari Syndrome type I. Also in that year, she contacted the Institut Chiari & Siringomielia & Scoliosis […]