We are happy to announce that the name of the Filum Academy Barcelona®, body that will be teaching the Filum System® guidelines, has been registered as a trademark. This is one more step towards the highly important education about the Filum Disease and its treatment.

Since the 4th of April 2013, the number of patients operated by means of the sectioning of the filum terminale is 700!! Reaching this important figure encourages us to continue with our daily tasks for the patients´ benefit.

The “Filum disease”, discovered by the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”, is mankind´s most unkown and most frequent disease. It manifests itself in somewhat more than 10% of the world population, and the majority of patients and doctores are not aware of it.

We would like to express its most sincere and heartfelt gratitude to all those, persons and entities, who attended and participated in the VII Meeting “Chiari & Scoliosis & Syringomyelia Foundation” for patients. Bari. Italy. VII Reunión “Chiari & Scoliosis & Syringomyelia Foundation” para pacientes. Bari. Italia. that was held this past 16 February 2013 and particulary to all those persons and entities, private as well as public, who helped and co-operated with the project, the preparation and organisation of this meeting, and contributed to it being a great success and the high degree of dissemination that we have achieved all together.

We would also like to inform you that the Institut remains open the rest of days. The staff at your service will provide all the information you may need regarding your inquiries, possible appointments or surgeries.

Happy Holidays and prosperous New Year 2013.

On 25 October 2012, we have operated by means of the sectioning of the filum terminale applying the Filum System® our first patient suffering Arnold Chiari I syndrome, Syringomyelia and Scoliosis from Bulgaria. Until now we have operated patients from 32 different countries.

The “Chiari & Scoliosis & Syringomyelia Foundation” has been invited by the association AI.SAC.SI.SCO (Associazione Internazionale Sindrome di Arnold Chiari – Siringomielia – Scoliosi Filum Tomizzati onlus) to hold a seventh international meeting for patients in Bari (Italy), on 16th Febraury 2013, in cooperation with and with the help of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona” and other entities and professionals.

The authorisation of the constitution of the association “OPERATION OLIVIER A BARCELONE” has been published Official Gazette of France.  The association has the aim to raise funds in order to cover the cost of Mr. Olivier´s surgery at the Institut Chiari & Siringomielia & Escoliosis de Barcelona, to be performed by Dr. Miguel B. Royo Salvador.

To view the original publication in French, please follow this link:

Since the 17th of July 2012, the number of patients operated by means of the sectioning of the filum terminale is 600!! Reaching this important figure encourages us to continue with our daily tasks for the patients´ benefit.

We are happy to announce that as of 4th of June 2012 the Institut Chiari team counts with the collaboration of Ms. Safaa El Idrissi who will be in charge of the contact with arabic language patients, we hope that with her help we will be able to make the information about pathologies associated with cord traction and their treatment accessible for more patients. We would like to to welcome her and wish that her work be pleasant and fruitful.

Dr. Royo B. Miguel Salvador   Presentation of Dr. Royo   Ms. Gioia Luè’s presentation.

We are happy to announce that as of 17th of April 2012 the Institut Chiari team counts with the collaboration of Mrs. Yuka Takahasi who will be in charge of the contact with japanese language patients, we hope that with her help we will be able to make the information about pathologies associated with cord traction and their treatment accessible for more patients. We would like to to welcome her and wish that her work be pleasant and fruitful.

We are happy to announce that as of today, 16th of April 2012, the Institut Chiari team will be able to count upon the cooperation of Dr. Karla Vanesa Méndez Saavedra, neurorehabilitation specialist. We would like to welcome our new colleague and wish that her work at the Institut may be pleasant and fruitful.

To the Italian Association AI.SAC.SI.SCO, its president Mrs. Cristiana Cattaruzza, the delegate for Sardinia Mrs. Caterina Fozzi, Mr. Gianfranco Sibiriu, to all the oficial entitites and people who have taken part in the organization of this magnificent event, the “Chiari & Scoliosis & Syringomyelia Foundation” for patients in Sardinia.

On behalf of the entire team we would like to thank them for all the support, the warm welcome and reception.

With warmest regards form the entire Institut Chiari & Siringomielia & Scoliosis de Barcelona.

Dr. M. Royo Salvador

We are pleased to invite you to attend the presentation of the director of the ICSEB “The new neuro-craneo-verebral syndrome, the most common illness. Includes Scoliosis, Syringomyelia and Arnold Chiari I Syndrome” organised by CIMA clinic in Barcelona for8th May 2012.

The program, further particulars and details will be announced shortly.

Note regarding the event:

Dr. Royo Salvador will be introducing the Neuro- Craneo- Vertebral Syndrome (SNCV), a new concept of disease described by himself since 1996 in medical publications.

The SNCV is a disease for which in the majority of cases the patient is not aware that he/she is suffering from it, given that its symptomatology is diffuse and latent, and in combination with almost imperceptible but manifest physical deterioration, it does not allow the patient nor the physician to consider it as a disease. For example, regarding one of the manfestations; the loss of strength: an adult has a grip strength of 25 to 70 kilos in the hands, and is not aware of its decrease until it reaches less than 8 kilos.

The SNCV is a consequence of the anormal traction of the “filum terminale”, (ligament that connects the spinal cord and the sacrum) and which shows primary manifestations of the entire nervous system, the brain, the spinal cord and nervous roots, of the Skull and the vertebral columna; and secondary consequences of ocular, oropharyngeal, circulatory, urinary, digestive, hormonal kind as well as of the entire organism.

The SNCV expresses itself in its maximum intensity in the form of known diseases like the Arnold Chiari I syndrome, idiopathic syringomyelia and scoliosis, basilar impression, platybasia, odontoid process, angulation of the brainstem, vertebral polydiscopathia, nocturnal enuresis, multiple cerebral infarctions, sphincter dysfunctions, hormonal dysfunctions and others.

The occurence of SNCV in the world population is of more than 10%, the proposed treatment is the “sectioning of the filum terminale” (SFT) with a minimally invasive surgery at the height of the sacrum; it is indicated for some 700 million people.

We are pleased to announce that the board of the “Il·lustre Col·legi d’Advocats de Barcelona” has decided unanimously to accept the appointment to sponsor of the Chiari & Scoliosis & Syringomyelia Foundation on 9th January 2012.

Due to the occasion of the celebration Rare Disease Day 2012, we would like to thank everybody who dedicates time and effort to raise awareness regarding these diseases and encourage those who struggle with one or several of them on a daily basis.

At the same time we would like inform, that according to research carried out by the Institut Chiari & Siringomielia & Escoliosis de Barcelona, the diseases Arnold Chiari I Syndrome, idiopathic Syringomyelia, platybasia, basilar impression, odontoid process and angulation of the brainstem, classified as rare diseases, do all, together with idiopathic scoliosis, form part of the new neuro- craneo- vertebral syndrome, which in estimation could be the most frequent disease of humanity.

The fact of discovering this new concept as well as the treatment for the neuro- craneo- vertebral syndrome, supposes the beginning of the eradication of these rare diseases

The “Chiari & Scoliosis & Syringomyelia Foundation” has been invited by the association AI.SAC.SI.SCO (Associazione Italiana Sindrome di Arnold Chiari – Siringomielia – Scoliosi Filum Tomizzati onlus) and the region of Sardinia to hold a sixth international meeting for patients in Oristano (Italy), on 17th March of the current year, in cooperation with the “Institut Chiari & Siringomielia & Escoliosis de Barcelona” and other entities and professionals.

On the website of the French National Assembly currently three questions, formulated by the members M. Marc Bernier, M. Michel Voisin and M. Raymond Durand, regarding the surgical treatment consisting of the sectioning of the Filum Terminale can be found, published on 02/03/2010, 04/05/2010 and 11/10/2011, in which we are being mentioned as a reference centre.

Through the following links you can access the original questions in Frencha language:

https://questions.assemblee-nationale.fr/q13/13-73107QE.htm https://questions.assemblee-nationale.fr/q13/13-78078QE.htm https://questions.assemblee-nationale.fr/q13/13-119721QE.htm

We are pleased to announce that next Monday, November 28th, at 20.00 hours our foundations’s 1st charity event will be held, the event consisting of a concert by the coral of the Il·lustre Col·legi d’Advocats de Barcelona (Law Society Barcelona), in the auditorium of the mentioned institution.

The aim of the event is to raise funds in order to continue to benefit the entire society by achieving the foundation’s founding objectives.

Il Giornale del Friuli Libero – Sfuei dal Friûl Libar, 13 de novembre de 2011

Link: https://www.ilgiornaledelfriuli.net/varie/12-13-novembre-2011-comunicati-stampa/

The “Chiari & Scoliosis & Syringomyelia Foundation” has been invited by the association AI.SAC.SI.SCO (Associazione Italiana Sindrome di Arnold Chiari – Siringomielia – Scoliosi Filum Tomizzati onlus) to carry out the IV international meeting for patients in Palermo-Sicily (Italy), in the month of October of this present year, with the collaboration and help of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona” and of other entities and professionals.

The specific dates, data and details of the reunion will be announced public in the shortest time possible.

Last Monday 11th of April, the “Chiari & Scoliosis & Syringomyelia Foundation” presented to the Fundació Marató TV3 the “Three dimensional modelling and Biomechanical simulation of the neuro-craneo-vertebral syndrome coordinated project: applicable to the treatment of Idiopathic Scoliosis, Syringomyelia and Arnold Chiari I diseases” to take part in the contest of subventions, held annually. This year it is adressed to projects related with aquired medullar and cerebellar injuries.

This important project has been done by the “Chiari & Scoliosis & Syringomyelia Foundation” in collaboration with the Faculties of Medicine and Mathematics of the University of Barcelona and the Intitute of Bioengineering of Catalonia.

We have the pleasure to announce that during this month of March, the Institut Chiari will incorporate two new collaborators who will take charge of the contact with the German, Rumanian, Polish and Portuguese-speaking patients respectively and this way we hope to provide with information on pathologies associated to medullar traction and their treatment to more patients all over the world.
We welcome our new collaborators and wish them a pleasant and productive work experience at the Institut Chiari.

To all the members of the A.M.I.S des M.O.M association:

On behalf of the Institut Chiari & Siringomielia & Scoliosis de Barcelona team, we would like to thank you for the fantastic support, material as well as personal and emotional, for the organization of the 3rd Meeting “Chiari & Scoliosis & Siringomielia Foundation” for patients in Lyon.

We hope that your dedication and altruism for others will be appreciated in the way we do and we would like that your marvelous humanitarian task shall continue with the help of everyone.

All the members of A.M.I.S des M.O.M and its board please receive an affectionate hug from every single one of us who were able to share this great day of science, communication and emotion.

Dr. M. Royo Salvador, Mrs. Mara Espino, Ms. Gioia Luè, Ms. Pei Chen and Ms. Samantha Meir.

To all the members of AI.SAC.SI.SCO:

Dear all, on behalf of the team of the Institut Chiari & Siringomielia & Scoliosis de Barcelona, we would like to thank you for the fantastic support, personal as well as emotional, expressed with your participation in the 3rd Meeting “Chiari & Scoliosis & Siringomielia Foundation” for patients in Lyon.

We hope that your marvelous humanitarian task and our collaboration will continue in the future with the help of everyone and more and more in the interest of the affected.

All the members of AI.SAC.SI.SCO and its board please receive an affectionate hug from every single one of us who were able to share this great day of science, communication and emotion.

Dr. M. Royo Salvador, Mrs. Mara Espino, Ms. Gioia Luè, Ms. Pei Chen and Ms. Samantha Meir.

On the 6th of May 2010, we have operated by means of the technique of the section of the filum terminale our first patient suffering Arnold Chiari I syndrome, Syringomyelia and Scoliosis coming from China. Until now we have operated patients from 18 different countries.

Barcelona, March 9th, 2010.

We are glad to announce that this year in Italy, a new Association is born:


Associazione AI.SAC.SI.SCO
“Associazione Italiana Síndrome Arnold Chiari-Siringomielia-Scoliosi Filum. Tomizzati odv.”

The idea of building an association comes from the large number of patients, who got together for the second time last year in October with dr. M. B. Royo Salvador for a reunion that the Chiari & Scoliosis & Syringomyelia Foundation organized in Rome, Italy.
It is a real honor for our institute and foundation to have our patients raise an entity whose purpose is on one hand to inform and help other patients on the road to recognition and treatment of these pathologies, and on the other hand, support the ICSEB as a European Reference Center for these.
The AISACSISCO has been a great example of effectiveness and efficiency, which already characterizes it several months since its constitution.
We want to highlight especially the wonderful participation of patients from all regions of Italy, who have given their availability as related to its territory, to provide information and help others with the difficult bureaucratic paths to the authorization of this surgery in foreign countries (see in web-page: “Contatti regionali”).

We wish President Mrs. Cristina Cattaruzza and all members that it all goes smoothly, hoping that the Association will be able to help a large number of patients to be able achieve the proposed objectives.


LINK: https://www.aisacsisco.org/portale/

On the 25th and 26th of February of this year 2010, doctors Fabricio Mantia and Angelo Vetro, from the “Mantia Medical Center” of Palermo, have visited our INB and ICSEB centers and have gotten together with our medical and rehabilitation staff to exchange medical and scientific information. We are glad with the new collaboration expected with the rehabilitation center and hope it will beneficial for patients suffering from Arnold Chiari I, Idiopathic Syringomyelia and Idiopathic Scoliosis who live in Sicilian territory. Link: www.centromedicomantia.it

Associazione Síndrome Arnold Chiari I – Siringomielia – Scoliosi – Filum Tomizzati 

December 22, 2009

Dear Sirs: I am writing to you upon learning about the constitution of the “Associazione Síndrome Arnold Chiari I -Siringomielia – Scoliosi – Filum Tomizzati” (AI.SAC.SI.SCO.) that for its name alone I feel very touched, as it expresses very clearly, emphatically and conclusively, the result of 35 years of my investigation. As a result of which, we now attribute the traction of the filum terminale as the cause of the three diseases; Arnold Chiari I, Syringomyelia and Idiopathic Scoliosis. And also, that the way to eliminate this cause is by the surgical section of the filum terminale, and thanks to the minimally invasive techniques, it can be performed with a minimum risk and almost as ambulatory surgery. I know the people who have constituted the AI.SAC.SI.SCO. Association, and I want to publically acknowledge their benevolence, dedication and altruism; always being at the disposition and in the interest of the other patients. As a person and as a doctor I am very satisfied that a group of my patients have made the firm and clear decision to support and help our Chiari & Scoliosis & Syringomyelia Foundation (CSSf) and with that, many other patients. The AI.SAC.SI.SCO. is the first non-professional health association that supports the work of our team publically, which makes us all feel an emotion and affection that we have not felt until now.

Now, at last, we know that a part of the association represented by the AI.SAC.SI.SCO. is entitled to us and justifies, with its existence and that of our patients, all the effort made until now. For this reason, I convey to them with all my affection, that we will continue investigating and working for them. On my behalf and that of my team, we would like to thank you. Dr. Miguel B. Royo Salvador

Dr. Milhorat and Dr. Royo in August 2004 at the Department of Neurosurgery at North Shore University Hospital and Long Island Jewish Medical Center.

In August 2004, Dr. Royo visited Dr. Milhorat from the “Chiari Institute of New York” to transmit and exchange medical and scientific opinions on the treatment of the Section of the Filum Terminale (SFT), applied by Dr. Royo since the year 1993 to stop the evolution of Arnold Chiari I Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis. After this visit, Dr. Milhorat started to incorporate Dr. Royo´s idea and applying the treatment of the SFT to patients affected by Arnold Chiari I Syndrome and Tethered Cord Syndrome. In July 2009, Dr. Milhorat published in the “Surgical Neurology” magazine, the appliance of this treatment in more than 300 patients with excellent results, by means of a Lumbar Laminectomy with 4 hours of surgical time and one week of hospitalization. Compared to the minimal invasive surgical technique applied in our institute ICSEB, which only requires 40 surgical minutes and some hours of hospitalization. And the fees are a 20th part of what is charged in the United States. This publication can be found in the following link: https://www.ncbi.nlm.nih.gov/pubmed?term=milhorat%20filum%20terminale

The document is now available: II Reunión para pacientes. Roma. Italia

The reunion in Rome has been of great success in assistance. Dr. Gioia Luè presented the results of her investigations on the quality of life during the post-surgery after the section of the filum terminale, and Dr. Royo Salvador presented to the ones who did not now about it, his treatment to stop the diseases such as Arnold Chiari I, Syringomyelia and Scoliosis. He has also mentioned his new complementary medical treatment and physiotherapy treatment, which are resulting efficient. Between the conference novelties, the “Chiari & Scoliosis & Syringomyelia Foundation” must also be brought out. The foundation will continue contribute with all its effort for the investigation, public health and teaching for patients and doctors. It is important to mention the big demand for assistance to this event to the point of having to move to a bigger auditorium. After the reunion we have received many congratulations for the organization of the act through many messages and phone calls from patients. We are very glad that the conference has been of help to them and we hope to be able in the future to repeat these events in different countries. At the end of the reunion we have awarded patients and/or family members that help other petients with great enthusiasm and willingness. Sponsors: Rita Presbulgo y Angelo Donzelli Patroness: Elena Degl’Innocenti Collaborators: Estelle Lussiana Pietro Gigliola Cristiana Cattarruzza Francesco Crocè Monica Bacci Francesco Mauro Caterina Ravelli Angelo Sabatelli Athos Piccinini Sergio Maldini Fatima Giordano Rosalia Mocciaro Franceso Mazzieri Irene Mazzieri

On July 7th of August 2009 we have operated by means of the technique of the section of the filum terminale our first patient suffering Arnold Chiari I syndrome, Syringomyelia and Scoliosis coming from San Petersburg, Russia. Until now we have operated patients from 15 different countries.

Now, various authors and specialized institutes in Arnold Chiari and Syringomyelia in Europe and the US show their interest in the role of the filum terminale and the surgical section in the new paradigm theory and methodology of these diseases.

We want to remind that the ICSEB possesses the honor of having as a surgical team director; the neurosurgeon who 17 years ago described the transcendental role of the filum terminale as a solution to these pathologies, Dr. M. B. Royo Salvador.

Thanking him for his precious and fundamental contribution to the medical science, we wish for him to carry on with his scientific and human investment to help and cure many patients.

The ICSEB team.

The statistics applied to the surgical treatments reveal results, which in many occasions must make us modulate our way of reacting.

In the consent sheet it is informed and admitted with the intervention of the Arnold Chiari I Sindrome and Sub-occypital Craniectomy, that there is a 0.5-3% death rate. Meaning, the death of a patient between 200 operated or three patients between 100 operated is admitted and admissible.

The natural mortality rate of the Arnold Chiari I Sindrome from the proper illness; “sudden death” is not statistically established but can be according to our statistics between one death of every 500 patients in fifteen years.

In other words, they are treating patients suffering from Arnold Chiari I Sindrome by means of a sub-occypital craniectomy with a higher mortality rate than its natural evolution. Whereas with the section of the filum terminale, which has proved in 134 operated patients of Arnold Chiari I Sindrome the elimination of the cause, the mortality rate and morbility is 0%.


Dr. Royo Salvador


Reference link: https://www3.lastampa.it/torino/sezioni/cronaca/articolo/lstp/8091/

I am very worried with the indications, comments and type of interventions that are being applied to patients with Syringomyelia in countries like Italy and France and which have started to apply the section of the filum terminale.

Here I have a part of the recent consultation done through e-mail of an Italian patient suffering from traumatic Syringomyelia where neither the section of the filum terminale nor the drainage of the Syringomyelic cavity are indicated, including the linguistic argot:

“dopo un peggioramento da circa 1 anno e mezzo, il dottore della mia città vorrebbe farmi altro drenaggio, un’altra eqipe di Firenze.. invece vuole farmi la resezione del filum! x via intradurale..senza però garantirmi nulla sul esito..e cmq un’operazione di certo invasiva..mah!”

“after a year and a half of worsening, the doctor from my city wanted to practice on me another drainage, meanwhile, the team in Florence wanted to practice the section of the filum terminale! through via intradural, without any guarantee of good results…and besides it would be an invasive intervention…gosh!”

The worsening in this case is due to the presence of an evident herniated disc in C3-4, which has not been taken in consideration by the different consulted specialists.

On the other hand there is a team in the Kremlin-Bicêter Hospital that practiced two interventions of the section of the filum terminale on two patients with Syringomyelia with no valid surgical criteria. The insults they uttered to us such as: “charlatan” came from this precise hospital some months ago according to a patient operated with the SFT.

What also worries me is the mercantilist aspect of a French professional inexperienced in these pathologies, which before operating the first case, they already have proposed economic offers to people who consider themselves legitimated to direct groups of patients with different interests in the correct medical praxis.

The saddest news we received was from Italy when the sectioning of a nerve at the intradural lumbar level was done when trying to practice the section of the filum terminale.

The proposed section of the filum terminale for the treatment of various neurological illnesses, which constitute the new NeuroCraneoVertebral Sindrome, is effective when a cautious selection of patients is made; in the presence of many factors, such as the correct indication or the contraindication for the intervention. Besides, it is precise to have a special post-operation control and the patient’s collaboration to understand the objectives of the operation and the future results. Since these successful interventions could end up with a negative result
without doing this Psycho neurological control when it is actually positive, especially with the complex clinical setting and the frequent disapprobation and insults uttered by some uninformed and malicious professionals.

The indications and contraindications of the NeuroCraneoVertebral Sindrome, which forms part of the Syringomyelia are reflected in the different publications and its fundamentals in the understanding of the whole explanation from the doctoral thesis up until the last publication (see the bibliography in the INB and ICSEB webpage). We are updating all this criteria from the discovering of new pathologies related with new signs and symptoms.
Confirming some in the form of a doctoral thesis and others in publications with investigative studies sponsored by the “Chiari & Scoliosis & Syringomyelia Foundation”.

Dr. Royo Salvador