{"id":103599,"date":"2019-02-28T00:00:00","date_gmt":"2019-02-27T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/comunicacion\/28-de-fevereiro-de-2019-dia-mundial-das-doencas-raras\/"},"modified":"2026-03-23T09:42:19","modified_gmt":"2026-03-23T08:42:19","slug":"28-fevereiro-2019-dia-mundial-das-doencas-raras","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/pt\/28-fevereiro-2019-dia-mundial-das-doencas-raras\/","title":{"rendered":"28 de fevereiro de 2019: Dia Mundial das Doen\u00e7as Raras"},"content":{"rendered":"<div class=\"col-md-9\">\n<div class=\"panel panel-default panel-body\">\n<p class=\"text-muted aniview centerTXT\">Published by\u00a0<a title=\"Artigos de ICSEB\" href=\"https:\/\/institutchiaribcn.com\/pt\/author\/anoop\/\" rel=\"author\">ICSEB<\/a> at 28 Fevereiro, 2019<\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ICSEB-RDD.jpg\"><img fetchpriority=\"high\" decoding=\"async\" class=\"img-rounded img-responsive text-wrap alignright\" src=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ICSEB-RDD.jpg\" alt=\"\" width=\"371\" height=\"300\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>O lema do Dia Mundial das Doen\u00e7as Raras deste ano \u00e9 \u201c<strong>criar pontes entre as assist\u00eancias social e m\u00e9dica<\/strong>\u201d. O objetivo \u00e9 incentivar a comunica\u00e7\u00e3o e a coordena\u00e7\u00e3o entre todos os servi\u00e7os, visando, assim, o bem estar do(a) paciente.<\/p>\n<p>O conhecimento e a informa\u00e7\u00e3o s\u00e3o elementos-chave, tanto para os profissionais do setores m\u00e9dico e social, quanto para o(a) pr\u00f3prio(a) paciente e o seu entorno mais pr\u00f3ximo. Entender as doen\u00e7as e as op\u00e7\u00f5es que existem \u00e0 disposi\u00e7\u00e3o para lidar com elas pode influir de maneira positiva na qualidade de vida do(a) paciente.<\/p>\n<p>Desde a sua cria\u00e7\u00e3o, o\u00a0<a href=\"https:\/\/institutchiaribcn.com\/pt\/\"><strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona<\/strong><\/a>, juntamente com a\u00a0<a href=\"http:\/\/chiarifoundationbcn.com\/en\/\"><strong>Chiari &amp; Scoliosis &amp; Syringomyelia Foundation<\/strong><\/a>\u00a0e a\u00a0<a href=\"https:\/\/institutchiaribcn.com\/pt\/apresentacao-filum-system\/\"><strong>Filum Academy Barcelona<\/strong><\/a>\u00a0, promove a pesquisa, a doc\u00eancia e a divulga\u00e7\u00e3o dos conhecimentos sobre a nova\u00a0<strong>Doen\u00e7a do Filum<\/strong>, que foram adquiridos em mais de 40 anos de estudos.<\/p>\n<p>Com a sua tese de doutorado, em 1993, o Dr. Royo Salvador confirmou a teoria de que v\u00e1rias patologias de causa desconhecida, como a\u00a0<strong><a href=\"https:\/\/institutchiaribcn.com\/pt\/doencas-que-tratamos\/sindrome-de-arnold-chiari-i\/\">S\u00edndrome de Arnold-Chiari I,<\/a>\u00a0a<\/strong>\u00a0<a href=\"https:\/\/institutchiaribcn.com\/pt\/home\/siringomielia-3\/\"><strong>Siringomielia Idiop\u00e1tica<\/strong><\/a><em>\u00a0<\/em>e a\u00a0<a href=\"https:\/\/institutchiaribcn.com\/pt\/doencas-que-tratamos\/escoliose\/\"><strong>Escoliose idiop\u00e1tica<\/strong><\/a>, al\u00e9menbdo da Platibasia, da Impress\u00e3o Basilar, da Retroflex\u00e3o do Processo Odont\u00f3ide e da Angula\u00e7\u00e3o do Tronco Cerebral, fazem parte de um novo conceito, denominado Doen\u00e7a do Filum, no qual estas enfermidades compartilham a mesma causa: a tra\u00e7\u00e3o da medula espinhal e de todo o sistema nervoso por um ligamento chamado Filum terminale, que est\u00e1 excessivamente tenso.<\/p>\n<p>Para o diagn\u00f3stico, o tratamento e o acompanhamento da Doen\u00e7a do Filum e destas patologias relacionadas, foi criado o m\u00e9todo m\u00e9dico Filum System<sup>\u00ae<\/sup>. Este sistema de protocolos inclui, entre os seus tratamentos, a\u00a0<strong>sec\u00e7\u00e3o do Filum Terminale<\/strong>\u00a0mediante t\u00e9cnica cir\u00fargica minimamente invasiva. Este procedimento cir\u00fargico, cujos riscos e complica\u00e7\u00f5es s\u00e3o quase nulas, det\u00e9m a evolu\u00e7\u00e3o da doen\u00e7a e melhora os sintomas.<\/p>\n<p>A S\u00edndrome de Arnold-Chiari I, a Siringomielia e a Escoliose idiop\u00e1ticas, al\u00e9m de outras patologias consideradas de causa desconhecida, s\u00e3o manifesta\u00e7\u00f5es da Doen\u00e7a do Filum. Atualmente, todas t\u00eam um tratamento.<br \/>\nDescubram como podemos lhes ajudar:\u00a0<a href=\"https:\/\/institutchiaribcn.com\/pt\/teste-doenca-do-filum\/\"><em>https:\/\/institutchiaribcn.com\/test-enfermedad-filum\/<\/em><\/a><\/p>\n<\/div>\n<\/div>\n","protected":false},"featured_media":103600,"template":"","tipos-de-comunicacion":[533],"class_list":["post-103599","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-comunicados"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>28 de fevereiro Dia Mundial das Doen\u00e7as Raras | ICSEB<\/title>\n<meta name=\"description\" content=\"O lema do Dia Mundial das Doen\u00e7as Raras deste ano \u00e9 \u201ccriar pontes entre as assist\u00eancias social e m\u00e9dica\u201d. 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