{"id":52317,"date":"2010-05-01T00:00:00","date_gmt":"2010-04-30T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/rosana-biagiotti-syndrom-trakcji-rdzenia-siringomielia-skolioza-idiopatyczna-dyskopatia-d8-d9-i-d9-d10\/"},"modified":"2026-03-18T11:04:55","modified_gmt":"2026-03-18T10:04:55","slug":"rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/","title":{"rendered":"Rosana Biagiotti. Syndrom trakcji rdzenia. Siringomielia. Skolioza Idiopatyczna. Dyskopatia D8-D9 i D9-D10"},"content":{"rendered":"

 <\/p>\n

Data operacji: maj 2010<\/strong><\/p>\n

Nazywam si\u0119 Rosana Bioagiotti, mam 35 lat i pochodz\u0119 z Umbrii, prowincja Perusa.
\nMam nadziej\u0119 \u017ce moja historia pomo\u017ce wszystkim tym kt\u00f3rzy cierpi\u0105 na rzadkie choroby nie uda\u0142o im si\u0119 uzyska\u0107 pomocy w swoim kraju.<\/p>\n

Wszystko zacz\u0119\u0142 si\u0119 w sierpniu 2009 roku, dokucza\u0142o mi zm\u0119czenie i b\u00f3l karku przede wszystkim kiedy przekr\u0119ca\u0142am g\u0142ow\u0119 w lewo. Pocz\u0105tkowo zrobiono mi zdj\u0119cia rentgenowskie g\u0142owy i szyji. Neurolog powiedzi\u0142 mi \u017ce nie zaobserwowa\u0142 \u017cadnych zmian i \u017ce powinnam zacz\u0105\u0107 bardziej o siebie dba\u0107 i nie denerwowa\u0107 si\u0119 bez potrzeby. Po tej diagnozie, skontaktowa\u0142amm si\u0119 z innym neurologiem kt\u00f3ry wykona\u0142 mi rezonans magnetyczny.<\/p>\n

W listopadzie m\u00f3j stan pogorszy\u0142 si\u0119 do tego stopnia \u017ce nie by\u0142am w stanie wykonywa\u0107 codziennych, prostych czynno\u015bci. Rezonans (10\/11\/2009) wykaza\u0142 dyskopati\u0119 degeneratywn\u0105 C5-C6, rezonans zosta\u0142 powt\u00f3rzony 09\/12\/2009 i diagnoza si\u0119 potwierdzi\u0142a. Nast\u0119pnie skonsultowa\u0142am si\u0119 z renomowanym neurochirurgiem i zdjagnozowa\u0142 u mnie siringomieli\u0119 C7-D1 i torticolis. Zaleci\u0142 powt\u00f3rzenie rezonansu \u017ceby wykluczy\u0107 problemy neuronaczyniowe.<\/p>\n

M\u00f3j stam bardzo szybko si\u0119 pogarsza\u0142, traci\u0142am czucie w palcach u r\u0105k, by\u0142o mi zimno, mia\u0142am problemy z prze\u0142ykaniem. Skontaktowa\u0142am si\u0119 z neurologiem ze szpitala w Perusa kt\u00f3ry zdecydowa\u0142 podda\u0107 mnie leczeniu toksyn\u0105 botulinow\u0105, \u017ceby ul\u017cy\u0107 mi w cierpieniu.<\/p>\n

W styczniu zdecydowano zostawi\u0107 mnie w szpitalu i zrobiono dodatkowe badania, kt\u00f3re nie mia\u0142y wi\u0119kszego sensu. Zdjagnozowano siringomieli\u0119 szyjno-grzbietow\u0105, dystoni\u0119, anemi\u0119, migreny. Zapewnili \u017ce leczenie toksyn\u0105 botulinow\u0105 po kilku dniach daje reultaty i \u017ce nie powinnam przejmowa\u0107 si\u0119 syringomieli\u0105.<\/p>\n

Min\u0119\u0142o kilka tygodni i czu\u0142am si\u0119 coraz gorzej, skontaktowa\u0142am si\u0119 z moim lekarzem by dowiedzie\u0107 si\u0119 czy mo\u017cnaby by\u0142o przy\u015bpieszy\u0107 leczenie TB. Profesor z Perusa w spos\u00f3b do\u015b\u0107 nieprzyjemny wyznaczy\u0142 mi termin na 16\/06\/2010, co oznacza\u0142o \u017ce musia\u0142am jeszcze d\u0142ugo czeka\u0107.<\/p>\n

Rozczarowana zachowaniem lekarzy, ca\u0142y czas martwi\u0142am si\u0119 syringomieli\u0105, wiedz\u0105c \u017ce jest to choroba wyniszczaj\u0105ca i progresywna. Nikt nie by\u0142 w stanie odpowiedzie\u0107 na moje pytania a ja by\u0142am ju\u017c zm\u0119czona wiecznym b\u00f3lem i brakiem normalnego \u017cycia.<\/p>\n

Pewnego dnia znalaz\u0142am w internecie informacje na temat kliniki specjalizuj\u0105cej si\u0119 w leczeniu patologii tego typu, Instytut Chiari dr. Royo w Barcelonie. Nie mog\u0142am uwierzy\u0107 \u017ce znalaz\u0142am wyj\u015bcie z mojej sytuacji! 19\/05\/2011 przyjecha\u0142am do Bracelony i w ko\u0144cu trafi\u0142am na lekarza kt\u00f3ry by\u0142 w stanie odpowiedzie\u0107 na moje pytania. Po obejrzeniu rezonansu zdjagnozowano: dystoni\u0119 szyjn\u0105, siringomieli\u0119 idiopatyczn\u0105 i syndrom trakcji rdzenia. Wyja\u015bniono mi w bardzo dok\u0142adny spos\u00f3b na czym polega\u0142a moja choroba i \u017ce powinnam si\u0119 podda\u0107 operacji sekcji filum terminale. 01\/06\/2010 zosta\u0142am zoperowana przez dr. Royo w klinice CIMA.<\/p>\n

Operacja ze znieczuleniem og\u00f3lnym trwa\u0142a godzin\u0119. Kiedy si\u0119 obudzi\u0142am by\u0142am spokojna, by\u0142o mi du\u017co l\u017cej. Po kilku dniach czucie w r\u0119kach powr\u00f3ci\u0142o, temperatura cia\u0142a ustabilizowa\u0142a si\u0119, nie dolega\u0142 mi ju\u017c Babi\u0144ski. Jedynym problemem kt\u00f3ry pozosta\u0142 by\u0142a dystonia szyjna, jednak po jakim\u015b czasie zacz\u0119\u0142am odcczuwa\u0107 popraw\u0119 i w ko\u0144cu g\u0142owa wr\u00f3ci\u0142a na swoje miejsce.
\nMoje \u017cycie znowu zacz\u0119\u0142o mie\u0107 sens dzi\u0119ki dr. Royo i jego ekipie, w tym Gioia Lu\u00e8 za jej pomoc.<\/p>\n

Znowu zacz\u0119\u0142am normalnie \u017cy\u0107 i cieszy\u0107 si\u0119 codzienno\u015bci\u0105 z moj\u0105 rodzin\u0105<\/p>\n

E-mail :\u00a0rosanna.biagiotti@alice.it<\/a>
\nTel: (+39) 3534043904<\/strong><\/p>\n","protected":false},"featured_media":52318,"template":"","tipos-de-testimonio":[346],"class_list":["post-52317","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-syringomielia-idiopatyczna"],"yoast_head":"\nRosanna Biagiotti: Chiari I i Skolioza | ICSEB<\/title>\n<meta name=\"description\" content=\"\u015awiadectwo Rosanny Biagiotti o syringomielii, skoliozie, syndromie trakcjii rdzeniowej i dyskopatii D8\u2013D9\/D9\u2013D10 po leczeniu w ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rosanna Biagiotti: Chiari I i Skolioza | ICSEB\" \/>\n<meta property=\"og:description\" content=\"\u015awiadectwo Rosanny Biagiotti o syringomielii, skoliozie, syndromie trakcjii rdzeniowej i dyskopatii D8\u2013D9\/D9\u2013D10 po leczeniu w ICSEB.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-18T10:04:55+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/rosanna_biagiotti-1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"200\" \/>\n\t<meta property=\"og:image:height\" content=\"200\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/\",\"url\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/\",\"name\":\"Rosanna Biagiotti: Chiari I i Skolioza | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/rosanna_biagiotti-1.jpg\",\"datePublished\":\"2010-04-30T22:00:00+00:00\",\"dateModified\":\"2026-03-18T10:04:55+00:00\",\"description\":\"\u015awiadectwo Rosanny Biagiotti o syringomielii, skoliozie, syndromie trakcjii rdzeniowej i dyskopatii D8\u2013D9\/D9\u2013D10 po leczeniu w ICSEB.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/rosanna_biagiotti-1.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/rosanna_biagiotti-1.jpg\",\"width\":200,\"height\":200},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rosanna-biagiotti-sindrome-de-traccion-medular-siringomielia-y-escoliosis-idiomatica-discopatia-d8-d9-e-d9-d10\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Testimonios\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/testimonios\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Rosana Biagiotti. 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