{"id":51744,"date":"2010-05-16T00:00:00","date_gmt":"2010-05-15T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/rita-capobianco-mielopatia-z-syndromem-arnolda-chiari-i-syringomielia-skolioza-idiopatyczna\/"},"modified":"2026-03-18T10:43:50","modified_gmt":"2026-03-18T09:43:50","slug":"rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/","title":{"rendered":"Rita Capobianco. Mielopatia z syndromem Arnolda Chiari I. Syringomielia. Skolioza Idiopatyczna."},"content":{"rendered":"

 <\/p>\n

Data operacji: maj 2008<\/strong><\/p>\n

Nazywam sie Rita Capobianco i mieszkam w Rzymie. Chcia\u0142abym serdecznie podzi\u0119kowa\u0107 dr. Royo za to co dla mnie zrobi\u0142 i \u017ce pozwoli\u0142 mi podzieli\u0107 si\u0119 moim do\u015bwiadczeniem z innymi chorymi na Arnold Chiari I i Syringomieli\u0119.Bardzo dzi\u0119kuj\u0119 tak\u017ce dr. Gioia Lu\u00e8 i ca\u0142ej ekipie Instytutu Chiari w Barcelonie.<\/p>\n

Wszystko zacz\u0119\u0142o si\u0119 kiedy mia\u0142am 20 lat. Podda\u0142am si\u0119 r\u00f3\u017cnego rodzaaju masa\u017com, z czasem fizjoterapii, akupunkturze, rozci\u0105ganiu i jedyne co osi\u0105ga\u0142am to tymczasowe zmniejszenie b\u00f3lu. W tamtym czasie rezonans magnetyczny jeszcze nie istnia\u0142 wi\u0119c robiono mi jedynie zdj\u0119cia rentgenowskie, kt\u00f3re wykaza\u0142y \u017ce mia\u0142am jedynie lekk\u0105 skolioz\u0119 i artroz\u0119 szyjn\u0105. Nie by\u0142o przeciwwskaza\u0144 do tego bym zaprzesta\u0142a pracowa\u0107 jako aktorka i tancerka.<\/p>\n

W wieku 43 zacz\u0119\u0142am odczuwa\u0107 dodatkowe b\u00f3le podczas kaszlu, wysi\u0142ku. W 2004 roku podda\u0142am si\u0119 pierwszy raz badaniu rezonansem odcinka szyjnego, jednak nie wykryto Arnolda Chiari. Nie wiedz\u0105c co dalej robi\u0107 kontynuowa\u0142am masa\u017ce i fizjoterapi\u0119. Dopiero kiedy odkry\u0142am przyczyn\u0119 mojej choroby u\u015bwiadomi\u0142am sobie na jakie ryzyko si\u0119 nara\u017ca\u0142am poddaj\u0105c si\u0119 niew\u0142a\u015bciwym terapiom przez trzydzie\u015bci lat.<\/p>\n

W ostatnim czasie b\u00f3l narasta\u0142, wi\u0119c postanowi\u0142am zapisa\u0107 si\u0119 na si\u0142owni\u0119, my\u015bl\u0105c \u017ce gimnastyka mog\u0142aby mi pom\u00f3c i pocz\u0105tkowo czu\u0142am si\u0119 troch\u0119 lepiej. Jednak po trzech miesi\u0105cach b\u00f3l zacz\u0105\u0142 narasta\u0107, czu\u0142am si\u0119 coraz gorzej, mia\u0142m coraz mniej si\u0142y, bola\u0142a mnie szyja, mia\u0142am trudno\u015bci z prze\u0142ykaniem i zaburzenia rytmu serca.<\/p>\n

Podda\u0142am si\u0119 kolejnym badaniom, terapiom i bra\u0142am leki przeciwzapalne, jednak bez skutku. Zrobi\u0142am jeszcze jeden rezonans i okaza\u0142o si\u0119 \u017ce cierpi\u0142am na chorob\u0119 Arnold Chiari I oraz na Syringomieli\u0119.<\/p>\n

Tak zacz\u0119\u0142y si\u0119 nieko\u0144cz\u0105ce si\u0119 i zupe\u0142nie bezcelowe wizyty u neurolog\u00f3w, fizjoterapeut\u00f3w, ortoped\u00f3w. Ortopeda zaleci\u0142 mi noszenie protezy dentystycznej i przepisa\u0142 miesi\u0105c kuracji lekami rozlu\u017aniaj\u0105cymi mi\u0119\u015bnie. Jedynym skutkiem tego leczenia by\u0142o zatrucie i problemy ze skr\u00f3r\u0105. Fizjoterapeuta zaleci\u0142 mi gimnastyk\u0119 a neurolog zasugerowa\u0142 ponowne zrobienie rezonansu po 6 miesi\u0105cach.<\/p>\n

Skonsultowa\u0142am si\u0119 r\u00f3wnie\u017c z kilkoma neurochirurgami. Pierwszy powiedzia\u0142mi \u017ce trzeba przeprowadzi\u0107 operacj\u0119 kranioktomii, kolejny zaleci\u0142 powt\u00f3rzenie rezonansu, a nast\u0119pny potwierdzi\u0142 potrzeb\u0119 operacji.<\/p>\n

Zrobi\u0142am wszystkie badania i zanios\u0142am je do neurochirurga kt\u00f3ry zaleci\u0142 dekompresj\u0119, poniewa\u017c w odwrotnym przypadku by\u0142am nara\u017cona na w\u00f3zek inwalidzki. By\u0142am przera\u017cona, lekarz wyja\u015bni\u0142 mi \u017ce operacja polega\u0142a na przeci\u0119ciu wi\u0119zad\u0142a cieniutkiego jak w\u0142os, i wstawieniu malutkiej metalowej p\u0142ytki. W ko\u0144cu zdecydowa\u0142am si\u0119 na operacj\u0119 kranioktomii.<\/p>\n

B\u0119d\u0105c ju\u017c w szpitalu okaza\u0142o si\u0119 \u017ce operacja nie by\u0142a tak prosta jak mi j\u0105 opisano., piel\u0119gniarka przygotowuj\u0105ca mnie do interwencji powiedzia\u0142a mi \u017ce nie dojd\u0119 do siebie przez kilka kolejnych miesi\u0119cy. W nocy przed operacj\u0105 dosta\u0142am ataku paniki, zacz\u0119\u0142am wymiotowa\u0107 i rano zdecydowa\u0142am \u017ce nie poddam si\u0119 tak skomplikowanej interwencji.<\/p>\n

Kolejni lekarz powiedzieli mi \u017ce powinnam by\u0142a podda\u0107 si\u0119 operacji. Na szcz\u0119\u015bcie m\u00f3j brat natrafi\u0142 w internecie na histori\u0119 osoby kt\u00f3ra podda\u0142a si\u0119 sekcji filum terminale, interwencji du\u017co mniej skomplikowanej ni\u017c poprzednia. Skontaktowa\u0142am si\u0119 z t\u0105 osob\u0105 i zdcydowa\u0142am \u017ce tak droga walki z chorob\u0105 by\u0142a dla mnie du\u017co lepsza.<\/p>\n

Przyjecha\u0142am do Instytutu Chiari w Barcelonie, po wizycie zosta\u0142am zoperowana przez dr. Royo i nast\u0119pnego dnia wr\u00f3ci\u0142am do Rzymu.<\/p>\n

Po dw\u00f3ch latach od operacji b\u00f3le z ka\u017cdym dnie s\u0105 mniejsze. Znowu mog\u0119 spotyka\u0107 si\u0119z ludzmi w miejscach z g\u0142o\u015bn\u0105 muzyk\u0105 i nie mam zawrot\u00f3w g\u0142owy, mam wi\u0119cej sl\u0142y i mog\u0119 robi\u0107 w\u0142a\u015bciwie wszystko. Czasami kiedy jestem bardziej zestresowana troch\u0119 Boli mnie g\u0142owa i odczuwam lekkie zawroty przechylaj\u0105c g\u0142ow do ty\u0142u, ale zn\u00f3ww mog\u0119 ta\u0144czy\u0107! Wyniki bada\u0144 pooperacyjnych wykaza\u0142y \u017ce rozw\u00f3j chor\u00f3b na kt\u00f3re cierpia\u0142am zosta\u0142 zatrzymany, tak jak mi to obiecano.<\/p>\n

Kilka late temu w najtrudniejszym momencie mojego \u017cycia pewien w\u0142oski neurochirurg powiedzai\u0142 mi \u017ce nie maj\u0105c guza i nie b\u0119d\u0105cna na w\u00f3zku inwalidzkim musz\u0119 sama zdecydowa\u0107 co zrobi\u0107 z moim \u017cyciem. Powiedzia\u0142 \u017cebym sprawdzi\u0142a wszystkie mo\u017cliwe opcje zanim poddam si\u0119 operacji otwarcia czaszki.<\/p>\n

Email:\u00a0<\/strong>ritacapobianco@libero.it<\/a><\/strong><\/p>\n","protected":false},"featured_media":51745,"template":"","tipos-de-testimonio":[344],"class_list":["post-51744","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-syndrom-arnolda-chiari-i"],"yoast_head":"\nRita Capobianco: Arnold Chiari I i Mielopatia | ICSEB<\/title>\n<meta name=\"description\" content=\"Rita Capobianco opisuje przebieg chor\u00f3b Arnold Chiari I, siringomielii i skoliozy oraz popraw\u0119 po operacji Filum Terminale.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rita Capobianco: Arnold Chiari I i Mielopatia | ICSEB\" \/>\n<meta property=\"og:description\" content=\"Rita Capobianco opisuje przebieg chor\u00f3b Arnold Chiari I, siringomielii i skoliozy oraz popraw\u0119 po operacji Filum Terminale.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-18T09:43:50+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Rita_Capobianco-1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"200\" \/>\n\t<meta property=\"og:image:height\" content=\"200\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/\",\"url\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/\",\"name\":\"Rita Capobianco: Arnold Chiari I i Mielopatia | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Rita_Capobianco-1.jpg\",\"datePublished\":\"2010-05-15T22:00:00+00:00\",\"dateModified\":\"2026-03-18T09:43:50+00:00\",\"description\":\"Rita Capobianco opisuje przebieg chor\u00f3b Arnold Chiari I, siringomielii i skoliozy oraz popraw\u0119 po operacji Filum Terminale.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Rita_Capobianco-1.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Rita_Capobianco-1.jpg\",\"width\":200,\"height\":200},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/rita-capobianco-myelopathy-with-arnold-chiari-i-syndrome-syingomyelia-and-idiopathic-scoliosis\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Testimonios\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/testimonios\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Rita Capobianco. 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