{"id":51480,"date":"2017-12-07T00:00:00","date_gmt":"2017-12-06T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/nicholas-amico-syndrom-napiecia-rdzenia-obnizenie-migdalkow-mozdzku-dac-idiopatyczna-jamistosc-rdzenia\/"},"modified":"2026-03-17T11:51:37","modified_gmt":"2026-03-17T10:51:37","slug":"nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/","title":{"rendered":"Nicholas Amico. Syndrom napi\u0119cia rdzenia. Obni\u017cenie migda\u0142k\u00f3w m\u00f3\u017cd\u017cku (DAC). Idiopatyczna jamisto\u015b\u0107 rdzenia."},"content":{"rendered":"

 <\/p>\n

Aktualizacja historii Nicholasa Amico
\n21\/06\/2017<\/strong><\/p>\n

Obrazy Rezonansu Magnetycznego (RM) Nicholasa<\/u><\/strong><\/p>\n

Przed operacj\u0105 SFT wed\u0142ug FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n

Po operacji SFT wed\u0142ug z FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n
\"\"<\/a><\/div>\n

Opis z ostatniego kontrolnego RM wskazuje: \u201eobecnie obserwuje si\u0119 widoczne zmniejszenie ma\u0142ej jamy hydro-syryngomielicznej mi\u0119dzy C6 a Th1.<\/p>\n

\n

\"Nicolas_Amicos\"
\nData operacji: 5\/7\/2012<\/strong><\/p>\n

Cze\u015b\u0107 wszystkim! Mam na imi\u0119 Nicholas, mam 6 lat i mieszkam w Mediolanie.<\/p>\n

Gdy mia\u0142em 3 latka, moi rodzice odkryli, \u017ce cierpi\u0119 na rzadk\u0105 chorob\u0119,\u00a0syndrom Arnolda Chiari I i jamisto\u015b\u0107 rdzenia<\/strong>.<\/p>\n

Moi rodzice bardzo zmartwili si\u0119 t\u0105 wiadomo\u015bci\u0105 i zacz\u0119li chodzi\u0107 ze mn\u0105 po przer\u00f3\u017cnych lekarzach, r\u00f3wnie\u017c kontaktowali si\u0119 z nimi przez telefon i poczt\u0119\u2026 Wszyscy jednak jednog\u0142o\u015bnie twierdzili, \u017ce jedynym rozwi\u0105zaniem mojego problemu jest zabieg odbarczenia podpotylicznego. To jednak nie uspokaja\u0142o moich rodzic\u00f3w i ca\u0142y czas szukali innych rozwi\u0105za\u0144.<\/p>\n

Wkr\u00f3tce dowiedzieli si\u0119 o istnieniu Instytutu Chiari de Barcelona i zabrali mnie na konsultacj\u0119, podczas kt\u00f3rej dr. Royo powiedzia\u0142, \u017ce koniczna jest jak najszybsza operacja przeci\u0119cia filum terminale.<\/p>\n

Musz\u0119 przyzna\u0107, \u017ce na pocz\u0105tku moja mama podchodzi\u0142a do tego pomys\u0142u bardzo sceptycznie, nie wierzy\u0142a, \u017ce ten zabieg cokolwiek zmieni. Dlatego te\u017c, postanowi\u0142a skontaktowa\u0107 si\u0119 z innymi pacjentami z W\u0142och, kt\u00f3rzy poddali si\u0119 tej operacji.<\/p>\n

Po rozmowach z wieloma osobami, moi rodzice zdecydowali, \u017ce zostan\u0119 poddany operacji. Zosta\u0142a ona przeprowadzona 5 lipca 2012 roku<\/p>\n

Do szpitala zosta\u0142em przyj\u0119ty w przeddzie\u0144 operacji i nast\u0119pnego dnia ok. godziny 10 rano zabrali mnie do sali operacyjnej. Bardzo p\u0142aka\u0142em, poniewa\u017c chcia\u0142em by\u0107 ca\u0142y czas z moimi rodzicami. Operacja jednak nie trwa\u0142a d\u0142u\u017cej ni\u017c godzin\u0119 i zanim si\u0119 obejrza\u0142em, na nowo by\u0142em z nimi.<\/p>\n

Nied\u0142ugo potem wiele z moich objaw\u00f3w poprawi\u0142o si\u0119: nie moczy\u0142em si\u0119 ju\u017c w nocy, nie upada\u0142em, m\u00f3j bezdech nocny zmala\u0142 o po\u0142ow\u0119 i r\u00f3wnie\u017c poprawi\u0142 si\u0119 m\u00f3j glos.<\/p>\n

Dzi\u015b mam normalne \u017cycie, chodz\u0119 do szko\u0142y, gram w pi\u0142k\u0119 i co najwa\u017cniejsze ca\u0142y czas jestem w ruchu, biegam, skacz\u0119 i k\u0142\u00f3c\u0119 si\u0119 z moj\u0105 siostr\u0105.<\/p>\n

Dnia 13\/03\/2015 zrobili\u015bmy nowy rezonans kontrolny i jest on niezmieniony, lekarze nie zaobserwowali \u017cadnego pogorszenia i mam nadziej\u0119, \u017ce tak pozostanie!<\/p>\n

1 lipca 2015 roku pojecha\u0142em na nowo do Barcelony na wizyt\u0119 kontroln\u0105, podczas kt\u00f3rej lekarze zauwa\u017cyli, \u017ce moje lewe rami\u0119 nie ma poprawnych odruch\u00f3w, co najprawdopodobniej wywo\u0142ane jest jamisto\u015bci\u0105 rdzenia. Jednak nie s\u0105 oni w stanie stwierdzi\u0107, czy pojawi\u0142o si\u0119 to przed czy ju\u017c po zabiegu, poniewa\u017c podczas wizyty przedoperacyjnej nie da\u0142em si\u0119 zbada\u0107. By\u0142em wtedy du\u017co mniejszy i na widok lekarzy zawsze p\u0142aka\u0142em. Dlatego te\u017c, lekarze nie maj\u0105 z czym por\u00f3wna\u0107 mojego kontrolnego badania i nie wiedz\u0105, kiedy ten objaw si\u0119 pojawi\u0142. To co najwa\u017cniejsze, to \u017ce wszystko jest w porz\u0105dku, a ja wiod\u0119 szcz\u0119\u015bliwe \u017cycie siedmiolatka.<\/p>\n

Chcia\u0142bym bardzo serdecznie podzi\u0119kowa\u0107 dr. Royo, Gioii Lu\u00e8 oraz ca\u0142ej ekipie za profesjonalizm i sympati\u0119.<\/p>\n

W szczeg\u00f3lno\u015bci za\u015b szczeg\u00f3lne podzi\u0119kowania dla niego, wielkiego lekarza, doktora Royo, za po\u015bwiecenie swojego \u017cycia na badania nad t\u0105 chorob\u0105, dzi\u0119ki czemu osoby takie jak ja maj\u0105 szans\u0119 na lepsze i godne \u017cycie.<\/p>\n

Na sam koniec, zwracam si\u0119 do Was, chorych: nie tra\u0107cie nadziei, walczcie, poniewa\u017c tylko si\u0142a i nadzieja pozwalaj\u0105 i\u015b\u0107 naprz\u00f3d. I przede wszystkim, nie przestawajcie si\u0119 u\u015bmiecha\u0107, poniewa\u017c \u017cycie jest pi\u0119kne i co najwa\u017cniejsze, mamy tylko jedno, wiec korzystajcie z niego!<\/p>\n

Pozdrowienia dla wszystkich!<\/p>\n

Nicholas Amico<\/p>\n

W razie potrzeby, kontaktujcie si\u0119 z moj\u0105 mam\u0105, Elen\u0105:\u00a0+39 327\/1887662<\/strong><\/p>\n","protected":false},"featured_media":51481,"template":"","tipos-de-testimonio":[344],"class_list":["post-51480","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-syndrom-arnolda-chiari-i"],"yoast_head":"\nNicholas Amico: Chiari\u202fI i skolioza | ICSEB<\/title>\n<meta name=\"description\" content=\"Opowie\u015b\u0107 Nicholasa Amico o zespole trakcji rdzenia, obni\u017ceniu migda\u0142k\u00f3w m\u00f3\u017cd\u017cku i idiopatycznej syringomielii po leczeniu w ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nicholas Amico: Chiari\u202fI i skolioza | ICSEB\" \/>\n<meta property=\"og:description\" content=\"Opowie\u015b\u0107 Nicholasa Amico o zespole trakcji rdzenia, obni\u017ceniu migda\u0142k\u00f3w m\u00f3\u017cd\u017cku i idiopatycznej syringomielii po leczeniu w ICSEB.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-17T10:51:37+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Nicolas_Amicos-1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"200\" \/>\n\t<meta property=\"og:image:height\" content=\"200\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data1\" content=\"4 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/\",\"url\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/\",\"name\":\"Nicholas Amico: Chiari\u202fI i skolioza | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Nicolas_Amicos-1.jpg\",\"datePublished\":\"2017-12-06T23:00:00+00:00\",\"dateModified\":\"2026-03-17T10:51:37+00:00\",\"description\":\"Opowie\u015b\u0107 Nicholasa Amico o zespole trakcji rdzenia, obni\u017ceniu migda\u0142k\u00f3w m\u00f3\u017cd\u017cku i idiopatycznej syringomielii po leczeniu w ICSEB.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Nicolas_Amicos-1.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/09\/Nicolas_Amicos-1.jpg\",\"width\":200,\"height\":200},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/pl\/nicholas-amico-cord-traction-syndrome-descent-of-the-cerebellar-tonsils-dct-idiopathic-syringomyelia-2\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Testimonios\",\"item\":\"https:\/\/institutchiaribcn.com\/pl\/testimonios\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Nicholas Amico. 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