{"id":143387,"date":"2025-12-19T09:00:05","date_gmt":"2025-12-19T08:00:05","guid":{"rendered":"https:\/\/institutchiaribcn.com\/la-calidad-de-vida-de-los-pacientes-con-la-enfermedad-del-filum\/"},"modified":"2025-12-19T12:42:56","modified_gmt":"2025-12-19T11:42:56","slug":"jakosc-zycia-pacjentow-z-choroba-filum-i-syndromem-arnolda-chiari-typu-i-syringomielia","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/pl\/jakosc-zycia-pacjentow-z-choroba-filum-i-syndromem-arnolda-chiari-typu-i-syringomielia\/","title":{"rendered":"Jako\u015b\u0107 \u017cycia pacjent\u00f3w z Chorob\u0105 Filum i Syndromem Nerwowo-Czaszkowo-Kr\u0119gowym z Syndromem Arnolda Chiari typu I, Syringomieli\u0105 idiopatyczn\u0105 oraz Idiopatyczn\u0105 Skolioz\u0105."},"content":{"rendered":"<p>4 grudnia 2025 r. Dr Royo Salvador opublikowa\u0142 plakat naukowy podczas <strong>V Mi\u0119dzynarodowego <\/strong>Webinarium z Neuronauki i Psychiatrii w ramach <strong>Mi\u0119dzynarodowej Konferencji Neuropsychiatrii<\/strong> w Pary\u017cu. Przedstawiono w nim badanie, kt\u00f3rego celem by\u0142o opisanie zaburze\u0144 neuropsychologicznych u pacjent\u00f3w z Chorob\u0105 Filum, <strong>Syndromem Nerwowo-Czaszkowo-Kr\u0119gowym <\/strong>oraz patologiami powi\u0105zanymi, a tak\u017ce analiza ich wp\u0142ywu na jako\u015b\u0107 \u017cycia chorych.<\/p>\n<p>Badanie retrospektywne opisuje wywiady kliniczne 372 losowo wybranych pacjent\u00f3w z wymienionymi diagnozami i ocenia samoopisywany stan zdrowia psychiczno-emocjonalnego u kolejnych 34 os\u00f3b.<\/p>\n<p><strong>Autorzy<\/strong> podkre\u015blaj\u0105 w wynikach, \u017ce w Chorobie Filum i patologiach z ni\u0105 zwi\u0105zanych <strong>mog\u0105 zosta\u0107 zaburzone: nastr\u00f3j, funkcje poznawcze oraz funkcje seksualne<\/strong>, a tak\u017ce mog\u0105 wyst\u0119powa\u0107 objawy somatyczne, takie jak b\u00f3le g\u0142owy, b\u00f3l, niestabilno\u015b\u0107, brak czucia lub si\u0142y oraz niedow\u0142ady (zob. wykresy na ryc. 1). Wielu pacjent\u00f3w informuje, \u017ce <strong>post\u0119p objaw\u00f3w pogarsza samoocen\u0119 zdrowia fizycznego i psychicznego, wp\u0142ywaj\u0105c na oczekiwania dotycz\u0105ce jako\u015bci i d\u0142ugo\u015bci \u017cycia.<\/strong><\/p>\n<p style=\"text-align: center;\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-143246 size-full\" src=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/12\/Graficos-de-la-frecuencia-de-los-sintomas.png\" alt=\"Gr\u00e1ficos de la frecuencia de los s\u00edntomas en las dos muestras de casos cl\u00ednicos del estudio \u201cFilum Disease and Neuro-Cranio-vertebral Syndrome with Arnold-Chiari Syndrome I, Idiopathic Syringomyelia, Idiopathic Scoliosis: Quality of Life.\u201d\" width=\"879\" height=\"431\" srcset=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/12\/Graficos-de-la-frecuencia-de-los-sintomas.png 879w, https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/12\/Graficos-de-la-frecuencia-de-los-sintomas-300x147.png 300w, https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/12\/Graficos-de-la-frecuencia-de-los-sintomas-768x377.png 768w\" sizes=\"(max-width: 879px) 100vw, 879px\" \/><\/p>\n<p style=\"text-align: center;\"><em><strong>Ryc. 1.<\/strong> Wykresy cz\u0119sto\u015bci wyst\u0119powania objaw\u00f3w w dw\u00f3ch pr\u00f3bach przypadk\u00f3w klinicznych w badaniu \u201eChoroba Filum i Syndrom Nerwowo-Czaszkowo-Kr\u0119gowy z Syndromem Arnolda Chiari typu I, Syringomieli\u0105 idiopatyczn\u0105 oraz Idiopatyczn\u0105 Skolioz\u0105: Jako\u015b\u0107 \u017cycia\u201d. M. B. Royo-Salvador, G. Lu\u00e8, 2025.<\/em><\/p>\n<p>Konsekwencje zwi\u0105zane z <strong>Syndromem Nerwowo-Czaszkowo-Kr\u0119gowym<\/strong> w kontekstach spo\u0142ecznych i \u015brodowiskowych dodatkowo obni\u017caj\u0105 jako\u015b\u0107 \u017cycia. Ograniczenia fizyczne, dyskomfort neuropsychologiczny oraz post\u0119puj\u0105cy charakter objaw\u00f3w w istotny spos\u00f3b wp\u0142ywaj\u0105 na codzienne funkcjonowanie.<\/p>\n<p>W \u015bwietle wynik\u00f3w badania autorzy zach\u0119caj\u0105 wszystkich specjalist\u00f3w do <strong>uwzgl\u0119dniania perspektywy etiologicznej<\/strong> ka\u017cdej z powi\u0105zanych patologii, <strong>w celu w\u0142a\u015bciwego zrozumienia diagnozy <\/strong>oraz unikni\u0119cia b\u0142\u0119d\u00f3w, op\u00f3\u017anie\u0144 lub nieporozumie\u0144 diagnostycznych. <strong>R\u00f3wnie istotne jest jak najlepsze prowadzenie pacjenta <\/strong>w procesie zdrowienia po leczeniu, wobec z\u0142o\u017conego i zmiennego obrazu klinicznego, kt\u00f3ry charakteryzuje <strong>trakcj\u0119 kaudaln\u0105 przenoszon\u0105 na ca\u0142y uk\u0142ad nerwowy \u2014 spowodowan\u0105 nadmiernie napi\u0119tym Filum Terminale.<\/strong><\/p>\n<p><strong>Wnioski z <\/strong>badania wskazuj\u0105, \u017ce dla <strong>diagnozy, prognozy, leczenia i oceny pooperacyjnej<\/strong> niezb\u0119dne jest uwzgl\u0119dnienie wszystkich aspekt\u00f3w opisanych w pocz\u0105tkowej anamnezie (wywiadzie lekarskim); aby <strong>zapewni\u0107 kompleksowe podej\u015bcie skoncentrowane na pacjencie, co pozwoli uzyska\u0107 lepsz\u0105 jako\u015b\u0107 \u017cycia pacjent\u00f3w z Chorob\u0105 Filum.<\/strong><\/p>\n<p>Plakat opublikowany w ramach wydarzenia mo\u017cna pobra\u0107 pod adresem: <a href=\"https:\/\/institutchiaribcn.com\/pl\/miedzynarodowa-konferencja-neuropsychiatrii-2025\/\">https:\/\/institutchiaribcn.com\/pl\/miedzynarodowa-konferencja-neuropsychiatrii-2025\/<\/a><\/p>\n","protected":false},"featured_media":143271,"template":"","tipos-de-comunicacion":[530],"class_list":["post-143387","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-komunikaty"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - 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