{"id":56100,"date":"2019-04-29T00:00:00","date_gmt":"2019-04-28T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/maria-rocio-lois-suarez-%ec%8b%a0%ea%b2%bd-%eb%91%90%ea%b0%9c%ea%b3%a8-%ec%b2%99%ec%b6%94-%ec%a6%9d%ed%9b%84%ea%b5%b0-%ec%a2%85%ec%82%ac-%ec%a7%88%eb%b3%91-%ec%95%84%eb%86%80%eb%93%9c-%ed%82%a4\/"},"modified":"2026-04-13T13:45:21","modified_gmt":"2026-04-13T11:45:21","slug":"maria-rocio-lois-suarez-%ec%b2%99%ec%88%98%ea%b3%b5%eb%8f%99%ec%a6%9d-%ec%95%84%eb%86%80%eb%93%9c-%ed%82%a4%ec%95%84%eb%a6%ac-%ea%b8%b0%ed%98%95-1%ed%98%95","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ko\/maria-rocio-lois-suarez-%ec%b2%99%ec%88%98%ea%b3%b5%eb%8f%99%ec%a6%9d-%ec%95%84%eb%86%80%eb%93%9c-%ed%82%a4%ec%95%84%eb%a6%ac-%ea%b8%b0%ed%98%95-1%ed%98%95\/","title":{"rendered":"Maria Roc\u00edo Lois Su\u00e1rez. \uc2e0\uacbd-\ub450\uac1c\uace8-\ucc99\ucd94 \uc99d\ud6c4\uad70, \uc885\uc0ac \uc9c8\ubcd1, \uc544\ub180\ub4dc \ud0a4\uc544\ub9ac \uae30\ud615 1\ud615, \ub2e4\ubc1c\uc131 \ucd94\uac04\ud310 \uc9c8\ud658"},"content":{"rendered":"

 <\/p>\n

\"\"<\/a><\/u>Fecha <\/span><\/u>de la cirug\u00eda <\/span><\/u><\/span>: <\/span><\/span><\/u>22 <\/span><\/u>de noviembre <\/span><\/u>de <\/span><\/u><\/span>2018<\/span><\/span><\/u><\/u><\/u><\/u><\/u><\/strong><\/p>\n

\"\"<\/p>\n

En primer lugar, quisiera expresar mi sincero agradecimiento al personal m\u00e9dico del instituto, representado por el Dr. Marco V. Fiallos, y al Dr. Royo Salvador con motivo del d\u00e9cimo aniversario de la fundaci\u00f3n del instituto.<\/span><\/span><\/p>\n

Escribo esta rese\u00f1a para expresar mi gratitud por su arduo trabajo en el dise\u00f1o de las t\u00e9cnicas del sistema de empleo del instituto de investigaci\u00f3n.<\/span><\/span><\/p>\n

Adem\u00e1s, espero que mi mensaje llegue tambi\u00e9n a profesores y m\u00e9dicos de la comunidad m\u00e9dica. Les pido que reconsideren la importancia de esta formaci\u00f3n para que casos como el m\u00edo no vuelvan a ser ignorados ni administrativa ni socialmente.<\/span><\/span><\/p>\n

Adem\u00e1s, tambi\u00e9n quisiera mencionar la conciencia de algunos m\u00e9dicos que tratan a los pacientes de forma inhumana y con indiferencia hacia su sufrimiento.<\/span><\/span><\/p>\n

Antes de contactar con ICSEB, es decir, hasta mayo de 2018, nadie relacion\u00f3 la causa de mis problemas de salud con la tracci\u00f3n de la m\u00e9dula espinal. Nadie siquiera sospech\u00f3 la existencia de la malformaci\u00f3n de Chiari tipo 1, ni tampoco vincularon mis s\u00edntomas con la grave afecci\u00f3n conocida como “siringomielia” (edema isqu\u00e9mico del centro de la m\u00e9dula espinal).<\/span><\/span><\/p>\n

Mis recuerdos de infancia est\u00e1n plagados de dolores musculares, plantillas ortop\u00e9dicas, dolores de garganta persistentes y bronquitis. Durante la adolescencia, mi cuerpo y mi mente estaban siempre tan agotados que estudiar era una verdadera lucha.<\/span><\/span><\/p>\n

Por la \u00e9poca en que comenc\u00e9 a trabajar, empec\u00e9 a experimentar palpitaciones, dolor en el pecho, dificultad para respirar, dolor de garganta persistente, inflamaci\u00f3n que se hab\u00eda extendido a los o\u00eddos y mareos. Incluso el m\u00e1s m\u00ednimo esfuerzo me hac\u00eda perder la voz y constantemente me sent\u00eda como si tuviera gripe.<\/span><\/span><\/p>\n

Los antibi\u00f3ticos y los antiinflamatorios se han convertido en mis amigos.<\/span><\/span><\/p>\n

Al cumplir los treinta, comenc\u00e9 a sentir dolores espor\u00e1dicos en los hombros y los brazos. No pod\u00eda descansar bien debido al dolor en las piernas que sent\u00eda incluso estando en la cama. (Alguien sugiri\u00f3 que se trataba de fiebre reum\u00e1tica, pero con el tiempo se confirm\u00f3 que no era as\u00ed). El dolor empeor\u00f3 gradualmente y se volvi\u00f3 cr\u00f3nico; perd\u00ed fuerza en las manos e incluso experiment\u00e9 entumecimiento y p\u00e9rdida de sensibilidad.<\/span><\/span><\/p>\n

Tras ver esto, me diagnosticaron s\u00edndrome del t\u00fanel carpiano bilateral y me aconsejaron someterme a una cirug\u00eda.<\/span><\/span><\/p>\n

Tambi\u00e9n decidimos realizar una cirug\u00eda para tratar la inflamaci\u00f3n de la laringe, que solo hab\u00eda recibido un efecto temporal de la penicilina.<\/span><\/span><\/p>\n

Al cumplir los cuarenta, el dolor muscular, la rigidez y la fatiga empeoraron. Pensando que podr\u00eda deberse al estr\u00e9s, consider\u00e9 tomarme un descanso y tal vez jubilarme. Sin embargo, en aquel entonces, no era una decisi\u00f3n f\u00e1cil para alguien de mi edad.<\/span><\/span><\/p>\n

El dolor de cuello y la tort\u00edcolis se hicieron frecuentes, y comenzaron los dolores articulares. Debido a las palpitaciones, me somet\u00ed a un examen card\u00edaco m\u00e1s exhaustivo y recib\u00ed tratamiento con bisoprolol.<\/span><\/span><\/p>\n

Al cabo de un tiempo, me dijeron que podr\u00eda tratarse de fibromialgia. Consult\u00e9 con un reumat\u00f3logo y, tras realizarme una prueba, me diagnosticaron polimialgia. Me recomendaron tratamiento con esteroides y relajantes musculares. Inicialmente, el dolor disminuy\u00f3 con la medicaci\u00f3n, pero con el tiempo regres\u00f3 con mayor intensidad. Desarroll\u00e9 insomnio, mis mareos empeoraron y mi sistema inmunitario se debilit\u00f3.<\/span><\/span><\/p>\n

Al cumplir los 50, adem\u00e1s de los s\u00edntomas de la menopausia, sufr\u00eda de mareos y dolor en las extremidades, ambas costillas y las rodillas; como consecuencia, no pod\u00eda doblar las rodillas ni bajar escaleras. Tambi\u00e9n desarroll\u00e9 ci\u00e1tica.<\/span><\/span><\/p>\n

La resonancia magn\u00e9tica confirm\u00f3 la presencia de enfermedad discal intervertebral en la columna lumbar y cervical. Hace dos a\u00f1os, tambi\u00e9n se detectaron problemas discales intervertebrales en la columna tor\u00e1cica.<\/span><\/span><\/p>\n

Me diagnosticaron s\u00edndrome miotensivo cervical. Perder la voz ya forma parte de mi d\u00eda a d\u00eda. Tambi\u00e9n desarroll\u00e9 dificultad para tragar cuando estaba cansada y perd\u00eda el equilibrio con frecuencia.<\/span><\/span><\/p>\n

En 2016, tuve un accidente al caerme por las escaleras del trabajo. Me fractur\u00e9 la mu\u00f1eca izquierda y ca\u00ed sobre la parte baja de la espalda. Comenc\u00e9 a sentir dolor y punzadas.<\/span><\/span><\/p>\n

Una prueba de densidad \u00f3sea realizada en el departamento de ortopedia arroj\u00f3 un resultado de -3, lo que indica osteoporosis.<\/span><\/span><\/p>\n

Comenc\u00e9 un tratamiento con bisfosfonatos. Como consecuencia, desarroll\u00e9 una rigidez severa en la columna vertebral y qued\u00e9 completamente incapacitado para mover el brazo y la pierna izquierdos. Me recetaron una gammagraf\u00eda (a\u00fan desconozco el motivo). Tras un periodo de recuperaci\u00f3n, continu\u00e9 con el tratamiento para la artrosis y la artritis. Recib\u00ed inyecciones de ozono, pero no hubo mejor\u00eda. El dolor neurop\u00e1tico en la pierna y el pie izquierdos, junto con el dolor lumbar, persisti\u00f3.<\/span><\/span><\/p>\n

Entre 2017 y 2018, comenc\u00e9 a experimentar temblores y una sensaci\u00f3n salada en la boca, junto con dolor en la parte baja de la columna vertebral.<\/span><\/span><\/p>\n

Sent\u00eda como si mi mand\u00edbula se torciera d\u00eda tras d\u00eda, y experimentaba neuralgia, un dolor punzante en los ojos, una sensaci\u00f3n de obstrucci\u00f3n en la garganta y afon\u00eda persistente.<\/span><\/span><\/p>\n

El departamento de neurolog\u00eda diagnostic\u00f3 compresi\u00f3n cervical y me recet\u00f3 fisioterapia. Los resultados fueron desastrosos. Recib\u00ed tratamiento cuatro veces, pero no pude recuperar la fuerza en la pierna.<\/span><\/span><\/p>\n

Mi sistema inmunitario colaps\u00f3. Desarroll\u00e9 cistitis y, poco despu\u00e9s de curarme, me sali\u00f3 herpes en el brazo. Me trataron con medicamentos antivirales y anticonvulsivos. Experiment\u00e9 dolor al defecar y tambi\u00e9n sufr\u00ed estre\u00f1imiento severo. Adem\u00e1s, contraje hipotermia, llegando a tener una temperatura corporal de hasta 32 \u00b0C.<\/span><\/span><\/p>\n

Cuando las cosas llegaron a ese punto, solo me quedaban dos opciones: esperar a que Dios me acogiera o encontrar otra soluci\u00f3n.<\/span><\/span><\/p>\n

Comenc\u00e9 a investigar mis s\u00edntomas en internet. Casualmente vi un video sobre Chiari en YouTube. El contenido me resultaba familiar. Al revisar la informaci\u00f3n en la p\u00e1gina web del ICSEB, pens\u00e9 que el Instituto de Barcelona podr\u00eda ayudarme. En mayo de 2018, solicit\u00e9 una consulta m\u00e9dica.<\/span><\/span><\/p>\n

Tras revisar una de mis im\u00e1genes de resonancia magn\u00e9tica, el equipo m\u00e9dico afirm\u00f3 que, adem\u00e1s de padecer enfermedad de m\u00faltiples discos intervertebrales, sufro de una enfermedad de tracci\u00f3n de la m\u00e9dula espinal causada por el descenso de las am\u00edgdalas cerebelosas y una contracci\u00f3n excesivamente fuerte.<\/span><\/span><\/p>\n

Cuando me enter\u00e9 de esto, sent\u00ed tristeza y rabia al mismo tiempo. \u00bfC\u00f3mo se lleg\u00f3 a este punto…?<\/span><\/span><\/p>\n

Comenzamos a recaudar los fondos necesarios y solicitamos la cirug\u00eda el pasado mes de noviembre.<\/span><\/span><\/p>\n

Todo sali\u00f3 bien, tal como me hab\u00edan dicho antes de la cirug\u00eda. En ese momento no esperaba gran cosa.<\/span><\/span><\/p>\n

El hecho de haber podido salir del hospital caminando y viajar m\u00e1s de 1.000 km me produjo una gran sensaci\u00f3n de alivio.<\/span><\/span><\/p>\n

En los \u00faltimos tres meses, he experimentado dolor, sobre todo en la zona lumbar, pero es diferente del dolor punzante que sol\u00eda tener. El dolor entre las nalgas, que se sent\u00eda como si me clavaran clavos, ha desaparecido. El dolor en los pies ha disminuido y solo aparece cuando estoy cansado.<\/span><\/span><\/p>\n

La rigidez est\u00e1 desapareciendo y la flexibilidad est\u00e1 mejorando. La actividad intestinal tambi\u00e9n ha vuelto a la normalidad.<\/span><\/span><\/p>\n

Los \u00fanicos inconvenientes son la irritabilidad (que podr\u00eda deberse a mi personalidad o a mi trabajo) y la dificultad para ver con claridad (parece que cambia varias veces al d\u00eda). Espero que, a medida que mejore la circulaci\u00f3n cerebral, estos dos s\u00edntomas desaparezcan tambi\u00e9n.<\/span><\/span><\/p>\n

Correo electr\u00f3nico:\u00a0 <\/span><\/span>rolusu@edu.xunta.es<\/span><\/span><\/a>
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