{"id":111995,"date":"2018-04-27T00:00:16","date_gmt":"2018-04-26T22:00:16","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/videos\/maria-do-socorro-dos-santos-syndrome-neuro-cranio-vertebral-maladie-du-filum-descente-des-amygdales-cerebelleuses-dac-syndrome-darnold-chiari-i-discopathie-multiple\/"},"modified":"2026-03-03T10:13:42","modified_gmt":"2026-03-03T09:13:42","slug":"maria-do-chiari","status":"publish","type":"videos","link":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/","title":{"rendered":"Maria Do Socorro Dos Santos. Syndrome Neuro-Cr\u00e2nio-Vert\u00e9bral. Maladie du Filum. Descente des amygdales c\u00e9r\u00e9belleuses (DAC. Syndrome d\u2019Arnold-Chiari I). Discopathie multiple."},"content":{"rendered":"
\n

 <\/p>\n

\n
<\/div>\n<\/div>\n
\n
<\/div>\n<\/div>\n
\n
<\/div>\n<\/div>\n

Date de l\u2019intervention: 11 janvier 2018<\/strong>
\nDate de tournage: 25 janvier 2018<\/strong><\/p>\n

\"\"<\/a><\/p>\n

Dans cette vid\u00e9o, C\u00edcera dos Santos raconte l\u2019histoire de sa soeur Maria do Socorro, diagnostiqu\u00e9e avec le syndrome d\u2019Arnold Chiari I il y a 6 ans et op\u00e9r\u00e9e d\u2019une craniectomie sous-occipitale il y a 4 ans. Apr\u00e8s cette op\u00e9ration, la patiente a encore empir\u00e9; avec augmentation des douleurs, difficult\u00e9 \u00e0 respirer, perte de force des membres sup\u00e9rieurs et inf\u00e9rieurs et autres sympt\u00f4mes. En raison de l\u2019aggravation de son tableau, elle a d\u00fb commencer \u00e0 utiliser un fauteuil roulant \u00e0 partir d\u2019ao\u00fbt 2017. De plus, Maria do Socorro a perdu sa voix (*) en avril de l\u2019ann\u00e9e derni\u00e8re. C\u2019est pour cette raison que sa s\u0153ur C\u00edcera raconte son histoire dans cette vid\u00e9o.<\/p>\n

C\u00edcera explique qu\u2019apr\u00e8s la craniectomie, sa s\u0153ur a commenc\u00e9 \u00e0 enqu\u00eater sur sa pathologie sur Internet et a d\u00e9couvert l\u2019ICSEB, qui \u00e9tait comme voir \u00ab\u00a0une lumi\u00e8re au bout du tunnel\u00a0\u00bb. \u00c0 partir de ce moment-l\u00e0, toutes les deux elles ont commenc\u00e9 un vaste travail collectif pour rendre viable le voyage \u00e0 Barcelone.<\/p>\n

Deux semaines apr\u00e8s le traitement chirurgical effectu\u00e9 par l\u2019\u00e9quipe de l\u2019ICSEB, C\u00edcera dit que toutes les deux sont tr\u00e8s heureuses car \u00ab\u00a0les am\u00e9liorations ont \u00e9t\u00e9 exceptionnelles\u00a0\u00bb. C\u00edcera affirme que les deux savent que l\u2019objectif, avec la m\u00e9thode Filum System\u00ae, est d\u2019interrompre l\u2019\u00e9volution de la maladie et que les am\u00e9liorations des sympt\u00f4mes sont diff\u00e9rentes chez chaque patient, mais que les signes d\u2019am\u00e9lioration de sa s\u0153ur sont \u00e9vidents.<\/p>\n

L\u2019un des premiers changements remarqu\u00e9s par C\u00edcera a \u00e9t\u00e9 la r\u00e9cup\u00e9ration de la sensibilit\u00e9 des membres inf\u00e9rieurs du patient avec une circulation am\u00e9lior\u00e9e. \u00ab\u00a0Ses jambes \u00e9taient glac\u00e9es. Le m\u00eame jour (de l\u2019intervention), toujours sur le lit d\u2019h\u00f4pital, je me suis rapproch\u00e9e pour l\u2019aider \u00e0 descendre et j\u2019ai d\u00e9j\u00e0 senti que la temp\u00e9rature de ses jambes \u00e9tait normale. \u00ab\u00a0En outre, elle d\u00e9crit les pieds de Maria do Socorro, avant l\u2019intervention, ils \u00e9taient atrophi\u00e9s, vers l\u2019int\u00e9rieur. Quelques jours plus tard, les am\u00e9liorations \u00e9taient remarquables.\u00a0\u00bb Un pied s\u2019est d\u00e9j\u00e0 am\u00e9lior\u00e9.<\/p>\n

C\u00edcera rapporte \u00e9galement que les maux de t\u00eate de sa soeur ont disparu depuis le jour de l\u2019op\u00e9ration. \u00ab\u00a0Cela en a valu la peine, nous avons v\u00e9cu une exp\u00e9rience merveilleuse et, sans aucun doute, nous recommandons \u00e0 ceux qui ont le m\u00eame probl\u00e8me \u2013 ceux qui peuvent et qui ont cette opportunit\u00e9 \u2013 de se battre pour la possibilit\u00e9 de venir ici pour subir ce traitement. C\u2019est un travail tr\u00e8s s\u00e9rieux, tr\u00e8s bien fait. La chirurgie est excellente, les professionnels sont d\u2019un tr\u00e8s haut niveau et la prise en charge des patients sont imbattables. \u00a0\u00bb<\/p>\n

Pour conclure, C\u00edcera et Maria do Socorro ont profit\u00e9 du tournage de cette vid\u00e9o pour exprimer leur gratitude. \u00ab\u00a0Nous ne sommes reconnaissants que pour toute l\u2019\u00e9quipe m\u00e9dicale qui a fait la proc\u00e9dure et pour Marta qui nous a accueillie avec tant d\u2019amour. En tant que Marta br\u00e9silienne, nous nous sommes sentis un peu chez nous lorsque nous \u00e9tions avec elle ici. Nous vous remercions beaucoup (\u2026) Nous irons toujours o\u00f9 il le faudra pour t\u00e9moigner, moi en tant que s\u0153ur et elle [Socorro] en tant que patiente.\u00a0\u00bb<\/p>\n

Depuis l\u2019ICSEB, nous tenons \u00e9galement \u00e0 vous remercier pour le bel exemple de d\u00e9passement et de force que vous nous avez donn\u00e9. Merci beaucoup.<\/p>\n

(*) MISE \u00c0 JOUR: Maria do Socorro a retrouv\u00e9 la voix le 24 mars 2018, selon les informations de la famille du patient.<\/p>\n

E-mail de contact:\u00a0socorro_anilza1969@hotmail.com<\/a><\/p>\n<\/div>\n","protected":false},"featured_media":137753,"template":"","tipos-de-video":[590],"class_list":["post-111995","videos","type-videos","status-publish","has-post-thumbnail","hentry","tipos-de-video-videos-temoignages"],"yoast_head":"\nMaria do Chiari : t\u00e9moignage de patient | ICSEB<\/title>\n<meta name=\"description\" content=\"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Maria do Chiari : t\u00e9moignage de patient | ICSEB\" \/>\n<meta property=\"og:description\" content=\"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-03T09:13:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"480\" \/>\n\t<meta property=\"og:image:height\" content=\"360\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/\",\"url\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/\",\"name\":\"Maria do Chiari : t\u00e9moignage de patient | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg\",\"datePublished\":\"2018-04-26T22:00:16+00:00\",\"dateModified\":\"2026-03-03T09:13:42+00:00\",\"description\":\"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg\",\"width\":480,\"height\":360},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Videos\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/videos\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Maria Do Socorro Dos Santos. Syndrome Neuro-Cr\u00e2nio-Vert\u00e9bral. Maladie du Filum. Descente des amygdales c\u00e9r\u00e9belleuses (DAC. Syndrome d\u2019Arnold-Chiari I). Discopathie multiple.\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#website\",\"url\":\"https:\/\/institutchiaribcn.com\/fr\/\",\"name\":\"Institut Chiari de Barcelona\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/institutchiaribcn.com\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#organization\",\"name\":\"Institut Chiari de Barcelona\",\"url\":\"https:\/\/institutchiaribcn.com\/fr\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/10\/cropped-cropped-icsebNavLogo-1.png\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/10\/cropped-cropped-icsebNavLogo-1.png\",\"width\":245,\"height\":99,\"caption\":\"Institut Chiari de Barcelona\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#\/schema\/logo\/image\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Maria do Chiari : t\u00e9moignage de patient | ICSEB","description":"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/","og_locale":"fr_FR","og_type":"article","og_title":"Maria do Chiari : t\u00e9moignage de patient | ICSEB","og_description":"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.","og_url":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/","og_site_name":"Institut Chiari","article_modified_time":"2026-03-03T09:13:42+00:00","og_image":[{"width":480,"height":360,"url":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_misc":{"Dur\u00e9e de lecture estim\u00e9e":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/","url":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/","name":"Maria do Chiari : t\u00e9moignage de patient | ICSEB","isPartOf":{"@id":"https:\/\/institutchiaribcn.com\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage"},"image":{"@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage"},"thumbnailUrl":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg","datePublished":"2018-04-26T22:00:16+00:00","dateModified":"2026-03-03T09:13:42+00:00","description":"T\u00e9moignage de Maria do Chiari avec son parcours de soins, sympt\u00f4mes et am\u00e9liorations apr\u00e8s traitement \u00e0 l\u2019ICSEB.","breadcrumb":{"@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#primaryimage","url":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg","contentUrl":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2018\/04\/maria-do-socorro-dos-santos-sindrome-neuro-craneo-vertebral-enfermedad-del-filum-descenso-de-las-amigdalas-cerebelosas-sindrome-de-arnold-chiari-i-discopatia-multiple.jpg","width":480,"height":360},{"@type":"BreadcrumbList","@id":"https:\/\/institutchiaribcn.com\/fr\/maria-do-chiari\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/institutchiaribcn.com\/fr\/"},{"@type":"ListItem","position":2,"name":"Videos","item":"https:\/\/institutchiaribcn.com\/fr\/videos\/"},{"@type":"ListItem","position":3,"name":"Maria Do Socorro Dos Santos. Syndrome Neuro-Cr\u00e2nio-Vert\u00e9bral. Maladie du Filum. Descente des amygdales c\u00e9r\u00e9belleuses (DAC. Syndrome d\u2019Arnold-Chiari I). Discopathie multiple."}]},{"@type":"WebSite","@id":"https:\/\/institutchiaribcn.com\/fr\/#website","url":"https:\/\/institutchiaribcn.com\/fr\/","name":"Institut Chiari de Barcelona","description":"","publisher":{"@id":"https:\/\/institutchiaribcn.com\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/institutchiaribcn.com\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/institutchiaribcn.com\/fr\/#organization","name":"Institut Chiari de Barcelona","url":"https:\/\/institutchiaribcn.com\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/institutchiaribcn.com\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/10\/cropped-cropped-icsebNavLogo-1.png","contentUrl":"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2025\/10\/cropped-cropped-icsebNavLogo-1.png","width":245,"height":99,"caption":"Institut Chiari de Barcelona"},"image":{"@id":"https:\/\/institutchiaribcn.com\/fr\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/videos\/111995","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/videos"}],"about":[{"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/types\/videos"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/media\/137753"}],"wp:attachment":[{"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/media?parent=111995"}],"wp:term":[{"taxonomy":"tipos-de-video","embeddable":true,"href":"https:\/\/institutchiaribcn.com\/fr\/wp-json\/wp\/v2\/tipos-de-video?post=111995"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}