{"id":111980,"date":"2019-02-11T00:00:14","date_gmt":"2019-02-10T23:00:14","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/videos\/ida-de-angelis-syndrome-de-traction-medullaire-syndrome-darnold-chiari-i-syringomyelie-et-scoliose-idiopathiques-discopathie-multiple\/"},"modified":"2026-03-03T12:52:56","modified_gmt":"2026-03-03T11:52:56","slug":"ida-syndrome-darnold-chiari-syringomyelie-scoliose","status":"publish","type":"videos","link":"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/","title":{"rendered":"Ida De Angelis. Syndrome de traction m\u00e9dullaire. Syndrome d\u2019Arnold Chiari I, Syringomy\u00e9lie et Scoliose idiopathiques. Discopathie multiple."},"content":{"rendered":"
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Date de l\u2019intervention: 12\/5\/2011
\nDate de tournage: 29\/10\/2018<\/strong><\/p>\n

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Mme De Angelis a 61 ans et elle nous raconte son histoire:
\nLe 31 d\u00e9cembre de2010 elle se sent\u00e9 bien et elle a c\u00e9l\u00e9br\u00e9 le nouvel an; \u00ab\u00a0ce jour l\u00e0 j\u2019avais que une l\u00e9g\u00e8re douleur au dos, rien qui ne pr\u00e9supposerait ce qui s\u2019est pass\u00e9 apr\u00e8s\u00a0\u00bb.<\/p>\n

\u00c0 9 heures du soir du premier janvier de 2011 il lui a paru avoir un peu la grippe, elle a demand\u00e9 \u00e0 son mari qu\u2019il aille acheter \u00e0 la pharmacie du Parac\u00e9tamol, pendant ce temps, elle est all\u00e9 au lavabo et elle a touss\u00e9 l\u00e9g\u00e8rement: c\u2019est alors quand sa vie \u00e0 chang\u00e9 compl\u00e9tement.<\/p>\n

Son mari lui a trouv\u00e9 sur par terre semi consciente, avec relaxation du sphincter. Il lui a amener aux urgences et pendant son hospitalisation, elle a su qu\u2019elle avait probablement un Arnold Chiari.<\/p>\n

Pendant les mois suivants, quand elle est retourn\u00e9 chez elle, ce type de crise c\u2019est r\u00e9p\u00e9t\u00e9; la douleur \u00e9tait tr\u00e8s intense, trop, et la patiente ne chache pas qu\u2019elle est arriv\u00e9 \u00e0 ne pas le supporter, \u00e0 vouloir renoncer \u00e0 vivirede cette mani\u00e8re: vertiges, vomissements violents, des bruits dans les oreilles, douleurs affreuses, sensation d\u2019avoir de l\u2019huil boullante sur le visage, photophobie, difficult\u00e9 pour aller \u00e0 la toilette, incapacit\u00e9 pour se concentrer, pour lire, de voir la t\u00e9l\u00e9vision. Elle est arriv\u00e9 \u00e0 avoir plus de 60 crises par jour, elle passait ces journ\u00e9es priant pour survivre \u00e0 la suivante crise et se demandant comment elle avait surmont\u00e9 la pr\u00e9c\u00e9dente.<\/p>\n

En cherchant des possibles solutions, elle a trouv\u00e9 sur Internet le Dr. Royo. \u00c0 Turin (Italie) il lui ont propos\u00e9 la crani\u00e8ctomie, elle c\u2019est inform\u00e9 sur les complications, elle a parl\u00e9 avec des amis m\u00e9decins et, finalement, elle a eu l\u2019opportunit\u00e9 d\u2019aller \u00e0 Barcelone.<\/p>\n

Elle est arriv\u00e9 ici d\u00e9j\u00e0 dans un \u00e9tat de d\u00e9t\u00e9rioration; elle ne pouvait pas boire \u00e0 cause d\u2019une d\u00e9viation de la luette, elle s\u2019\u00e9touffait, elle vomissait par le nez, \u00ab\u00a0c\u2019\u00e9tait vraiment l\u2019enfer\u00a0\u00bb.<\/p>\n

Le 12 mai 2011, le professeur l\u2019a op\u00e9r\u00e9, elle se souvient qu\u2019\u00e0 4 heures apr\u00e8s l\u2019intervention elle pouvait boire, le lendemain, elle pouvait marcher et le troisi\u00e8me jour, elle rentrait \u00e0 Turin.<\/p>\n

Depuis il y a un an et demi, donc quatre ans ont pass\u00e9, elle s\u2019est beaucoup am\u00e9lior\u00e9: elle rapporte qu\u2019elle peut faire des choses que jamais elle n\u2019aurait imagin\u00e9 jamais pouvoir refaire, pour lesquelles elle n\u2019a plus besoin de quelqu\u2019un.<\/p>\n

La patiente s\u2019attend \u00e0 que tous les malades atteignent l\u2019objectif qui repr\u00e9sente pour elle le r\u00e9tablissement de l\u2019autonomie et qu\u2019elle va encore s\u2019am\u00e9liorer.<\/p>\n<\/div>\n","protected":false},"featured_media":137556,"template":"","tipos-de-video":[590],"class_list":["post-111980","videos","type-videos","status-publish","has-post-thumbnail","hentry","tipos-de-video-videos-temoignages"],"yoast_head":"\nIda : Chiari, syringomy\u00e9lie & scoliose | ICSEB<\/title>\n<meta name=\"description\" content=\"Ida partage son exp\u00e9rience du syndrome d\u2019Arnold-Chiari, de la syringomy\u00e9lie et de la scoliose, avec chirurgie et am\u00e9lioration.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ida : Chiari, syringomy\u00e9lie & scoliose | ICSEB\" \/>\n<meta property=\"og:description\" content=\"Ida partage son exp\u00e9rience du syndrome d\u2019Arnold-Chiari, de la syringomy\u00e9lie et de la scoliose, avec chirurgie et am\u00e9lioration.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-03T11:52:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ida-de-angelis-sindrome-de-traccion-medular-sindrome-de-arnold-chiari-i-siringomielia-y-escoliosis-idiopaticas-discopatia-multiple.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"480\" \/>\n\t<meta property=\"og:image:height\" content=\"360\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/\",\"url\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/\",\"name\":\"Ida : Chiari, syringomy\u00e9lie & scoliose | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ida-de-angelis-sindrome-de-traccion-medular-sindrome-de-arnold-chiari-i-siringomielia-y-escoliosis-idiopaticas-discopatia-multiple.jpg\",\"datePublished\":\"2019-02-10T23:00:14+00:00\",\"dateModified\":\"2026-03-03T11:52:56+00:00\",\"description\":\"Ida partage son exp\u00e9rience du syndrome d\u2019Arnold-Chiari, de la syringomy\u00e9lie et de la scoliose, avec chirurgie et am\u00e9lioration.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ida-de-angelis-sindrome-de-traccion-medular-sindrome-de-arnold-chiari-i-siringomielia-y-escoliosis-idiopaticas-discopatia-multiple.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ida-de-angelis-sindrome-de-traccion-medular-sindrome-de-arnold-chiari-i-siringomielia-y-escoliosis-idiopaticas-discopatia-multiple.jpg\",\"width\":480,\"height\":360},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/ida-syndrome-darnold-chiari-syringomyelie-scoliose\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Videos\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/videos\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Ida De Angelis. 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