{"id":111979,"date":"2019-04-08T00:00:14","date_gmt":"2019-04-07T22:00:14","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/videos\/regina-maria-desbesell-santos-syndrome-neuro-cranio-vertebral-maladie-du-filum-syndrome-darnold-chiari-i-syringomyelie-idiopathique-invagination-basilaire-platybasie-angulation-du-tron\/"},"modified":"2026-02-26T12:14:48","modified_gmt":"2026-02-26T11:14:48","slug":"bresilienne-recuperee-chiari-syringomyelie","status":"publish","type":"videos","link":"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/","title":{"rendered":"Regina Maria Desbesell Santos. Syndrome Neuro-Cr\u00e2nio-Vert\u00e9bral, Maladie du Filum, Syndrome d\u2019Arnold Chiari I, Syringomy\u00e9lie idiopathique, Invagination basilaire, Platybasie, Angulation du tronc c\u00e9r\u00e9bral, R\u00e9tropulsion de l\u2019Odonto\u00efde, Assimilation de l\u2019atlas et Discopathie multiple."},"content":{"rendered":"
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Date de l\u2019intervention: 01 f\u00e9vrier 2018<\/strong>
\nDate de tournage: 12 f\u00e9vrier 2018<\/strong><\/p>\n

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Tout a commenc\u00e9 par un simple test de renouvellement du permis de conduire. Apr\u00e8s avoir \u00e9t\u00e9 examin\u00e9e par un m\u00e9decin, Mme Regina Desbesell a suspendu le test parce qu\u2019un probl\u00e8me lui avait \u00e9t\u00e9 d\u00e9tect\u00e9 dans les yeux. Quand elle c\u2019est rendu en visite \u00e0 un ophtalmologue, elle a su qu\u2019elle avait un nystagmus et c\u2019est pourquoi elle a \u00e9t\u00e9 r\u00e9f\u00e9r\u00e9e \u00e0 un neurologue.<\/p>\n

Lors de la visite neurologique et d\u2019autres tests diff\u00e9rents, la cause de son probl\u00e8me n\u2019a pas \u00e9t\u00e9 d\u00e9couverte. Quelques ann\u00e9es plus tard, Mme Desbesell a commenc\u00e9 \u00e0 souffrir d\u2019une instabilit\u00e9 et de nombreux malaises, incapable de monter et de descendre les escaliers. Elle a de nouveau subi une s\u00e9rie de tests, avec des diagnostiques erron\u00e9s de labyrinthite et d\u2019anxi\u00e9t\u00e9, en plus du soup\u00e7on de scl\u00e9rose en plaques. Quand ils ont fait de nouvelles r\u00e9sonances magn\u00e9tiques, ils ont d\u00e9couvert qu\u2019elle \u00e9tait atteint du Syndrome d\u2019Arnold Chiari I et syringomy\u00e9lie.<\/p>\n

Selon Mme Desbesell, ses m\u00e9decins au Br\u00e9sil lui ont propos\u00e9 une craniectomie sous-occipitale, \u00ab\u00a0qui est une op\u00e9ration tr\u00e8s agressive, qui pourrait me laisser de nombreuses s\u00e9quelles\u00a0\u00bb. Elle dit qu\u2019elle a demand\u00e9 \u00e0 son m\u00e9decin: \u00ab\u00a0Et que se passera-t-il si je ne m\u2019op\u00e8re pas?\u00a0\u00bb Et il a r\u00e9pondu: \u00ab\u00a0Vous devrez peut-\u00eatre vivre dans un fauteuil roulant et perdre votre force compl\u00e8tement\u00a0\u00bb<\/p>\n

Mme Desbesell a d\u00e9clar\u00e9 qu\u2019elle avait essay\u00e9 de rester silencieuse afin de pouvoir obtenir plus d\u2019informations sur son diagnostic. \u00ab\u00a0J\u2019ai commenc\u00e9 \u00e0 enqu\u00eater et tout me disait \u201cInstitut Chiari de Barcelone\u201d, \u201cInstitut Chiari de Barcelone\u201d\u2026 Au d\u00e9but, j\u2019ai pens\u00e9: \u201cMon Dieu! L\u2019Espagne est loin, c\u2019est hors de ma r\u00e9alit\u00e9!\u201d Mais lorsque j\u2019ai approfondi mes recherches sur la m\u00e9thode de chirurgie au Br\u00e9sil, compar\u00e9e \u00e0 celle d\u2019ici \u00e0 Barcelone, qui est peu invasive, une chirurgie qui peut interrompre la maladie et faire que je puisse am\u00e9liorer, je n\u2019ai donc pas h\u00e9sit\u00e9 \u00e0 subir cette op\u00e9ration ici \u00e0 Barcelone.<\/p>\n

\u00c0 la fin de son histoire dans cette vid\u00e9o, Mme Regina a laiss\u00e9 un message \u00e0 d\u2019autres patients. \u201cJe sais que parfois, \u00e7a fait peur, mais quiconque a ce doute \u2026 il ne faut pas l\u2019avoir. Venez \u00e0 l\u2019Institut et profitez-en, vous aurez, comme moi, une nouvelle occasion d\u2019am\u00e9liorer votre qualit\u00e9 de vie.\u201d<\/p>\n

E-mail de contact:\u00a0oa_mn@hotmail.com<\/a><\/p>\n<\/div>\n","protected":false},"featured_media":138574,"template":"","tipos-de-video":[590],"class_list":["post-111979","videos","type-videos","status-publish","has-post-thumbnail","hentry","tipos-de-video-videos-temoignages"],"yoast_head":"\nBr\u00e9silienne r\u00e9cup\u00e9r\u00e9e apr\u00e8s Chiari et syringomy\u00e9lie | ICSEB<\/title>\n<meta name=\"description\" content=\"T\u00e9moignage d\u2019une patiente br\u00e9silienne ayant r\u00e9cup\u00e9r\u00e9 apr\u00e8s chirurgie ICSEB pour Chiari et syringomy\u00e9lie, avec am\u00e9lioration de sa vie.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Br\u00e9silienne r\u00e9cup\u00e9r\u00e9e apr\u00e8s Chiari et syringomy\u00e9lie | ICSEB\" \/>\n<meta property=\"og:description\" content=\"T\u00e9moignage d\u2019une patiente br\u00e9silienne ayant r\u00e9cup\u00e9r\u00e9 apr\u00e8s chirurgie ICSEB pour Chiari et syringomy\u00e9lie, avec am\u00e9lioration de sa vie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/\" \/>\n<meta property=\"og:site_name\" content=\"institutchiaribcn\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-26T11:14:48+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/04\/arnold-chiari-siringomielia-brasil.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"200\" \/>\n\t<meta property=\"og:image:height\" content=\"200\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/\",\"url\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/\",\"name\":\"Br\u00e9silienne r\u00e9cup\u00e9r\u00e9e apr\u00e8s Chiari et syringomy\u00e9lie | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/04\/arnold-chiari-siringomielia-brasil.jpg\",\"datePublished\":\"2019-04-07T22:00:14+00:00\",\"dateModified\":\"2026-02-26T11:14:48+00:00\",\"description\":\"T\u00e9moignage d\u2019une patiente br\u00e9silienne ayant r\u00e9cup\u00e9r\u00e9 apr\u00e8s chirurgie ICSEB pour Chiari et syringomy\u00e9lie, avec am\u00e9lioration de sa vie.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/04\/arnold-chiari-siringomielia-brasil.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/04\/arnold-chiari-siringomielia-brasil.jpg\",\"width\":200,\"height\":200},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/fr\/bresilienne-recuperee-chiari-syringomyelie\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Videos\",\"item\":\"https:\/\/institutchiaribcn.com\/fr\/videos\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Regina Maria Desbesell Santos. 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