{"id":111970,"date":"2021-01-26T00:00:11","date_gmt":"2021-01-25T23:00:11","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/videos\/yoli-chacon-syndrome-neuro-cranio-vertebral-maladie-du-filum-syringomyelie-idiopathique-scoliose-idiopathique-et-discopathie-multiple\/"},"modified":"2026-02-20T12:42:16","modified_gmt":"2026-02-20T11:42:16","slug":"yoli-chacon-syndrome-neuro-cranio-vertebral-maladie-filum-syringomyelie-idiopathique-scoliose-idiopathique-discopathie-multiple","status":"publish","type":"videos","link":"https:\/\/institutchiaribcn.com\/fr\/yoli-chacon-syndrome-neuro-cranio-vertebral-maladie-filum-syringomyelie-idiopathique-scoliose-idiopathique-discopathie-multiple\/","title":{"rendered":"Yoli Chac\u00f3n. Syndrome Neuro-cr\u00e2nio-vert\u00e9bral, Maladie du Filum*, Syringomy\u00e9lie idiopathique, Scoliose idiopathique et Discopathie multiple."},"content":{"rendered":"
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Link: https:\/\/www.youtube.com\/embed\/3t-kBAYUUdE<\/a><\/p>\n

Date de l\u2019intervention: 22\/10\/2020<\/strong>
\nDate du tournage: 29\/10\/2020<\/strong><\/p>\n

\"EEUU\"<\/p>\n

Yoli, patiente am\u00e9ricaine d\u2019origine p\u00e9ruvienne, explique son exp\u00e9rience de sa maladie 7 jours apr\u00e8s l\u2019intervention de la Section du Filum Terminale (SFT) selon la m\u00e9thode Filum System\u00ae<\/sup>.<\/p>\n

La patiente explique qu\u2019elle a subi une intervention de syringostomie aux \u00c9tats-Unis, mais l\u2019op\u00e9ration a \u00e9chou\u00e9 et lui a laiss\u00e9 des s\u00e9quelles, notamment une faiblesse \u00e0 la jambe droite. Pendant un certain temps, elle cherchait des informations pour sa r\u00e9\u00e9ducation et c\u2019est ainsi qu\u2019elle est tomb\u00e9 sur une personne qui lui a inform\u00e9 de la proc\u00e9dure du Filum System\u00ae<\/sup>. Elle a alors commenc\u00e9 \u00e0 se renseigner sur l\u2019Institut Chiari de Barcelone et sur les recherches men\u00e9es par la Dr. Miguel B. Royo Salvador, et quand elle a eu assez de confiance sur les informations d\u00e9couvertes, elle a d\u00e9cid\u00e9 de prendre rendez-vous pour l\u2019intervention.<\/p>\n

Elle commente que maintenant, apr\u00e8s la SFT du Filum System\u00ae<\/sup>, elle se sent bien, avec quelques changements favorable. Elle ajoute qu\u2019elle est tr\u00e8s reconnaissante de tout le personnel de l\u2019Institut et de l\u2019H\u00f4pital CIMA, en particulier le neurochirurgien qui l\u2019a op\u00e9r\u00e9e et le Dr. Royo, qu\u2019elle a eu la chance de rencontrer en personne.<\/p>\n

\u201cJe suis tr\u00e8s heureuse et voulant donner ce t\u00e9moignage aux personnes qui peuvent le lire pour qu\u2019elles puissent enqu\u00eater et prendre en compte que c\u2019est une proc\u00e9dure qui peut beaucoup les aider dans leur r\u00e9tablissement\u2026 Si elles veulent des informations de ma part, je leur r\u00e9pondrai avec plaisir\u201d.<\/p>\n

Courrier \u00e9lectronique de Yoli:\u00a0yolilike@yahoo.com<\/a><\/p>\n

    \n
  1. (*) Royo-Salvador, M.B., Fiallos-Rivera, M.V., Salca, H.C. et al. The Filum disease and the Neuro-Cranio-vertebral syndrome: definition, clinical picture and imaging features. BMC Neurol 20, 175 (2020). https:\/\/doi.org\/10.1186\/s12883-020-01743-y<\/a> , https:\/\/rdcu.be\/b36Pi<\/a><\/li>\n<\/ol>\n<\/div>\n","protected":false},"featured_media":137398,"template":"","tipos-de-video":[590],"class_list":["post-111970","videos","type-videos","status-publish","has-post-thumbnail","hentry","tipos-de-video-videos-temoignages"],"yoast_head":"\nMaladie du Filum et syringomy\u00e9lie | Yoli Chac\u00f3n | ICSEB<\/title>\n<meta name=\"description\" content=\"T\u00e9moignage de Yoli Chac\u00f3n, diagnostiqu\u00e9e avec Maladie du Filum, syringomy\u00e9lie et scoliose, trait\u00e9e \u00e0 l\u2019ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/yoli-chacon-syndrome-neuro-cranio-vertebral-maladie-filum-syringomyelie-idiopathique-scoliose-idiopathique-discopathie-multiple\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" 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