Date de l\u2019intervention: 06.02.20<\/strong><\/p>\nOlga Belova (Russie). \u00a0Nous nous sommes rendus \u00e0 l\u2019Institut Chiari de Barcelona pour recevoir de l\u2019aide et un traitement pour un kyste m\u00e9dullaire de notre fille. En Russie, ils n\u2019ont propos\u00e9 qu\u2019un traitement invasif de la section du kyste. Nous avons donc d\u00e9cid\u00e9 de suivre une voie moins invasive. Beaucoup nous ont dit de ne pas aller \u00e0 Barcelone et nous ont d\u00e9conseill\u00e9 de subir une intervention chirurgicale l\u00e0-bas. Ils ont dit que ce serait inutile. Mais comme notre fille ressentait une g\u00eane au dos, nous avons d\u00e9cid\u00e9 de faire intervenir la section du filum terminale. L\u2019intervention s\u2019est tr\u00e8s bien pass\u00e9e ; le lendemain, notre fille a pu marcher toute seule et n\u2019a ressenti presque aucune douleur.<\/p>\n
Aujourd\u2019hui, un an et demi plus tard, elle a des douleurs mineures au dos (bien qu\u2019Olga ne fasse pratiquement pas de sport, par paresse). Dans les images d\u2019IRM que nous venons de faire, les m\u00e9decins ont v\u00e9rifi\u00e9 que le kyste syringomy\u00e9lique (qui faisait 9 mm de diam\u00e8tre avant l\u2019intervention), a diminu\u00e9 dans les parties les plus larges \u00e0 2 mm., Et dans d\u2019autres parties il est devenu filiforme. Nous remercions l\u2019\u00e9quipe de l\u2019Institut pour son travail et nous vous souhaitons bonne chance.<\/p>\n
Cordialement, les parents de Olga; Maxim et Alla.<\/p>\n
Adresse mail: [email\u00a0protected]<\/span><\/a><\/p>\n\n- (*) Royo-Salvador, M.B., Fiallos-Rivera, M.V., Salca, H.C. et al. The Filum disease and the Neuro-Cranio-vertebral syndrome: definition, clinical picture and imaging features. BMC Neurol 20, 175 (2020). https:\/\/doi.org\/10.1186\/s12883-020-01743-y<\/a> , https:\/\/rdcu.be\/b36Pi<\/a><\/li>\n<\/ol>\n","protected":false},"featured_media":50945,"template":"","tipos-de-testimonio":[339],"class_list":["post-50944","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-syringomyelie-idiopathique-temoignages"],"yoast_head":"\nOlga Belova \u2013 Maladie du Filum, Chiari I et Scoliose | ICSEB<\/title>\n<meta name=\"description\" content=\"Olga Belova t\u00e9moigne de la maladie du Filum, Arnold-Chiari I, syringomy\u00e9lie et scoliose, trait\u00e9e avec Filum System\u00ae et ses am\u00e9liorations.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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