{"id":50311,"date":"2017-12-07T00:00:00","date_gmt":"2017-12-06T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/nicholas-amico-syndrome-de-traction-medullaire-descente-des-amygdales-cerebelleuses-dac-syringomyelie-idiopathique\/"},"modified":"2026-03-18T10:35:28","modified_gmt":"2026-03-18T09:35:28","slug":"nicholas-amico-syndrome-de-traction-medullaire-descente-des-amygdales-cerebelleuses-dac-syringomyelie-idiopathique","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/fr\/nicholas-amico-syndrome-de-traction-medullaire-descente-des-amygdales-cerebelleuses-dac-syringomyelie-idiopathique\/","title":{"rendered":"Nicholas Amico. Syndrome de traction m\u00e9dullaire. Descente des amygdales c\u00e9r\u00e9belleuses (DAC). Syringomy\u00e9lie idiopathique."},"content":{"rendered":"

 <\/p>\n

Actualisation du t\u00e9moignage de Nicholas Amico
\n21\/06\/2017<\/strong><\/p>\n

Images des R\u00e9sonances Magn\u00e9tiques (IRM) de Nicholas <\/u><\/strong><\/p>\n

Avant l\u2019intervention de SFT selon FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n

Apr\u00e8s l\u2019intervention de la SFT selon FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n
\"\"<\/a><\/div>\n

Le rapport m\u00e9dical du dernier control d\u2019IRM indique: \u201cactuellement une claire diminution de la petite cavit\u00e9 hydro-syringomy\u00e9lique entre C6 et D1\u201d.<\/p>\n

\n

\"Nicolas_Amicos\"
\nDate d\u2019intervention 5\/7\/2012<\/strong><\/p>\n

Bonjour \u00e0 tous, je m\u2019appelle Nicholas, je suis un enfant \u00e2g\u00e9e de 6 ans qui habite en Milan.<\/p>\n

Quand j\u2019avais 3 ans mes parents ont d\u00e9couvert que j\u2019avais une maladie rare, celle de l\u2019Arnold Chiari I<\/strong>, avec\u00a0Syringomy\u00e9lie<\/strong>.<\/p>\n

Ma maman et mon papa se sont \u00e9croul\u00e9, ils m\u2019ont amen\u00e9 chez beaucoup de m\u00e9decins, aussi ils ont contact\u00e9 beaucoup de num\u00e9ros de t\u00e9l\u00e9phones, par courriel, etc.\u2026 mais tous disaient que je devais me faire faire une craniectomie et que celle-ci \u00e9t\u00e9 la seule intervention qui r\u00e9soudrait le probl\u00e8me. Ma maman et mon papa ne se reposaient jamais et devaient absolument trouver une autre solution.<\/p>\n

Un jour, ils ont d\u00e9couvert l\u2019Institut Chiari de Barcelone et ils m\u2019ont amen\u00e9 chez une visite, o\u00f9 le Dr. Royo a dit qu\u2019il \u00e9tait n\u00e9cessaire op\u00e9rer avec urgence avec une Section du Filum terminale.<\/p>\n

Je dois reconna\u00eetre qu\u2019au d\u00e9but ma maman \u00e9tait assez sceptique et elle ne croyait pas que cette intervention all\u00e9 \u00eatre utile, alors elle d\u00e9cida contacter \u00e0 beaucoup de personnes italiennes qui avaient d\u00e9j\u00e0 \u00e9t\u00e9 soumis \u00e0 cette intervention.<\/p>\n

Apr\u00e8s avoir parl\u00e9 avec beaucoup de monde, mes parents ont d\u00e9cid\u00e9 que je me fasse op\u00e9rer, et le 5 juillet 2012, j\u2019ai \u00e9t\u00e9 op\u00e9r\u00e9.<\/p>\n

On m\u2019a hospitalis\u00e9 la nuit pr\u00e9c\u00e9dente, apr\u00e8s vers 10 heures du matin ils m\u2019ont amen\u00e9 \u00e0 la salle s\u2019op\u00e9ration\u00a0: j\u2019ai beaucoup pleur\u00e9 parce que je ne voulais pas laisser mes parents, mais sinc\u00e8rement l\u2019intervention n\u2019a m\u00eame pas dur\u00e9 une heure, et j\u2019ai pu retourner \u00e0 les embraser peu de temps apr\u00e8s.<\/p>\n

Un peu plus tard, beaucoup de sympt\u00f4mes que j\u2019avais ont se sont am\u00e9lior\u00e9; je ne faisais plus pipi au lit pendant la nuit, je ne tomb\u00e9 pas, mes apn\u00e9es se sont r\u00e9duites \u00e0 la moiti\u00e9, et aussi le son de ma voix c\u2019est am\u00e9lior\u00e9.<\/p>\n

Aujourd\u00b4hui je m\u00e8ne une vie normale, je vais \u00e0 l\u2019\u00e9cole, je joue au foot et surtout je n\u2019arr\u00eate jamais, je cours, saute et je me bagarre avec ma s\u0153ur.<\/p>\n

Le 13\/03\/2015 j\u2019ai refait l\u2019IRM annuelle de contr\u00f4le, et que puis-je dire, elle est telle comme avant, je n\u2019ai pas empir\u00e9 et j\u2019esp\u00e8re continuer comme \u00e7a!<\/p>\n

Le 1 juillet 2015 je suis all\u00e9 pour une visite de contr\u00f4le, ils se sont rendu compte que j\u2019ai mon bras gauche qui ne r\u00e9pond pas bien au reflexes, cela \u00e0 cause de la Syringomy\u00e9lie, nous ne savons pas si depuis avant ou apr\u00e8s l\u2019intervention, parce-que vous devez savoir qu\u2019avant je ne me laiss\u00e9 pas faire pendant la visite m\u00e9dicale, j\u2019\u00e9tais petit et quand je voyer un docteur je pleur\u00e9 toujours. Alors, sans avoir un examen ant\u00e9rieur, les docteurs ne savent pas quand est-ce que cela est arriv\u00e9, mais en g\u00e9n\u00e9ral tout va bien\u00a0: j\u2019ai une vie normale d\u2019un enfant de 7 ans.<\/p>\n

Pour le moment je remercie au Dr. Royo, \u00e0 Mme Gioia Lu\u00e8 et \u00e0 toute l\u2019\u00e9quipe pour sa professionnalit\u00e9 et gentillesse.<\/p>\n

Un remerciement sp\u00e9cial \u00e0 lui, un homme, grand m\u00e9decin, le Dr. Royo qui a d\u00e9di\u00e9 toute la vie aux \u00e9tudes de cette pathologie, et gr\u00e2ce \u00e0 lui, les personnes come moi ont une vie meilleure et honorable.<\/p>\n

Ensuite je me dirige \u00e0 vous, les malades; n\u2019abandonnez jamais l\u2019espoir, r\u00e9sistez, parce-que que la force et l\u2019espoir aident \u00e0 continuer, et n\u2019arr\u00eatez pas de sourir, parce-que la vie est belle et surtout c\u2019est une seule, alors profitez \u00e0 fond!<\/p>\n

Au revoir \u00e0 tous!<\/p>\n

Nicholas Amico<\/p>\n

Pour quelconque information veuillez contacter ma maman: Elena:\u00a0+39 327\/1887662<\/strong><\/p>\n","protected":false},"featured_media":50312,"template":"","tipos-de-testimonio":[337],"class_list":["post-50311","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-syndrome-darnold-chiari-i"],"yoast_head":"\nNicholas\u202fAmico\u202f\u2013\u202fTestimonie\u202fChiari | ICSEB<\/title>\n<meta name=\"description\" content=\"Nicholas Amico raconte son syndrome de traction m\u00e9dullaire, DAC et syringomy\u00e9lie, avec am\u00e9lioration apr\u00e8s traitement \u00e0 l\u2019ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/nicholas-amico-syndrome-de-traction-medullaire-descente-des-amygdales-cerebelleuses-dac-syringomyelie-idiopathique\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" 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