{"id":78657,"date":"2019-02-28T00:00:00","date_gmt":"2019-02-27T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/comunicacion\/28-fevrier-2019-journee-internationale-des-maladies-rares\/"},"modified":"2026-03-02T10:25:12","modified_gmt":"2026-03-02T09:25:12","slug":"28-fevrier-2019-journee-internationale-maladies-rares","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/fr\/28-fevrier-2019-journee-internationale-maladies-rares\/","title":{"rendered":"28 f\u00e9vrier 2019, Journ\u00e9e Internationale des Maladies Rares"},"content":{"rendered":"<p class=\"text-muted aniview centerTXT\">Published by <a title=\"Articles par ICSEB\" href=\"https:\/\/institutchiaribcn.com\/fr\/author\/anoop-2\/\" rel=\"author\">ICSEB<\/a> at 28 f\u00e9vrier, 2019<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"img-rounded img-responsive text-wrap alignright\" src=\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2019\/02\/ICSEB-RDD.jpg\" alt=\"\" width=\"371\" height=\"300\" \/><\/p>\n<p style=\"text-align: justify;\">La journ\u00e9e mondiale des Maladies Rares de cette ann\u00e9e a pour devise \u00ab\u00a0<strong>cr\u00e9er des ponts dans le service social et soins de sant\u00e9<\/strong>\u00bb, dans le but de promouvoir la communication et la coordination entre tous les services, pour le bien-\u00eatre du patient.<\/p>\n<p>La connaissance et l\u2019information sont des \u00e9l\u00e9ments cl\u00e9s, tant pour les professionnels du domaine m\u00e9dicale et social que pour le soutien du patient, ainsi que pour le patient et son environnement plus proche. Comprendre la maladie et les options disponibles pour la g\u00e9rer peut avoir une influence positive sur la qualit\u00e9 de vie du patient.<\/p>\n<p>Depuis sa cr\u00e9ation, l\u2019<strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona, conjointement avec la <a href=\"https:\/\/chiarifoundationbcn.com\/en\/\">Chiari &amp; Scoliosis &amp; Syringomyelia Foundation <\/a><\/strong>et la <strong>Filum Academy Barcelona<\/strong>, encourage la recherche, l\u2019enseignement et la diffusion des connaissances sur la nouvelle <strong>Maladie du Filum<\/strong>, acquise au cours de plus de 40 ans d\u2019\u00e9tudes.<\/p>\n<p>Avec sa th\u00e8se de doctorat de 1993, le Dr. Royo Salvador a confirm\u00e9 la th\u00e9orie selon laquelle plusieurs maladies de cause inconnue, telles que le <strong>Syndrome d\u2019Arnold Chiari I<\/strong>, la <a href=\"https:\/\/institutchiaribcn.com\/fr\/maladies-que-nous-traitons\/la-syringomyelie\/\"><strong>Syringomy\u00e9lie idiopathique<\/strong><\/a> \u00a0et la <a href=\"https:\/\/institutchiaribcn.com\/fr\/maladies-que-nous-traitons\/la-scoliose\/\"><strong>Scoliose idiopathique<\/strong><\/a>\u00a0, Platybasie, Impression Basilaire, R\u00e9trocession de l\u2019odonto\u00efde, Angulation du tronc c\u00e9r\u00e9bral, font partie du nouveau concept de la Maladie du Filum, partagent la m\u00eame cause: la traction de la moelle \u00e9pini\u00e8re et de tout le syst\u00e8me nerveux par un Filum Terminale excessivement tendu.<\/p>\n<p>La m\u00e9thode de sant\u00e9 Filum System\u00ae a \u00e9t\u00e9 con\u00e7ue pour le diagnostic, le traitement et le suivi de la Maladie du Filum et les pathologies li\u00e9es. Ce syst\u00e8me de protocole inclut parmi ses traitements la <strong>section du Filum Terminale<\/strong> par le biais d\u2019une technique chirurgicale mini-invasive qui, avec presque aucun risque et complications, arr\u00eate l\u2019\u00e9volution de la maladie et am\u00e9liore les sympt\u00f4mes.<\/p>\n<p>Le syndrome d\u2019Arnold Chiari I, la Syringomy\u00e9lie et la Scoliose idiopathiques, ainsi que d\u2019autres pathologies consid\u00e9r\u00e9es de cause inconnue, sont des manifestations de la Maladie du Filum et \u00e0 ce jour elles ont un traitement. D\u00e9couvrez comment nous pouvons vous aider<em>: <\/em><a href=\"https:\/\/institutchiaribcn.com\/fr\/test-maladie-filum\/\"><em>https:\/\/institutchiaribcn.com\/fr\/test-maladie-filum\/<\/em><\/a><\/p>\n","protected":false},"featured_media":78658,"template":"","tipos-de-comunicacion":[510],"class_list":["post-78657","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-nouvelles"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>28 f\u00e9vrier 2019 : Journ\u00e9e maladies rares | ICSEB<\/title>\n<meta name=\"description\" content=\"Le 28 f\u00e9vrier 2019, l\u2019ICSEB c\u00e9l\u00e8bre la Journ\u00e9e des maladies rares et souligne l\u2019importance de leur reconnaissance et prise en charge.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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