{"id":78566,"date":"2020-02-28T00:00:00","date_gmt":"2020-02-27T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/comunicacion\/soyez-bien-informe-pour-savoir-vaincre-les-maladies-rares\/"},"modified":"2026-02-20T10:11:48","modified_gmt":"2026-02-20T09:11:48","slug":"bien-informe-savoir-vaincre-maladies-rares","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/fr\/bien-informe-savoir-vaincre-maladies-rares\/","title":{"rendered":"SOYEZ BIEN INFORM\u00c9 POUR SAVOIR VAINCRE LES MALADIES RARES"},"content":{"rendered":"<p class=\"text-muted aniview centerTXT\">Published by <a title=\"Articles par ICSEB\" href=\"https:\/\/institutchiaribcn.com\/fr\/author\/anoop-2\/\" rel=\"author\">ICSEB<\/a> at 28 f\u00e9vrier, 2020<\/p>\n<p style=\"text-align: justify;\">\u00c0 l\u2019occasion du prochain <strong>29 f\u00e9vrier, Journ\u00e9e Internationale des Maladies Rares<\/strong>, l\u2019Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona (ICSEB) attire l\u2019attention sur l\u2019importance d\u2019un diagnostic et traitement corrects, car des informations erron\u00e9es peuvent conduire le patient \u00e0 prendre une mauvaise d\u00e9cision; ce qui entra\u00eenerait des cons\u00e9quences tr\u00e8s graves pour la sant\u00e9.<\/p>\n<p>Alors, l\u2019ICSEB ainsi que la<a href=\"https:\/\/chiarifoundationbcn.com\/en\/\"> Chiari &amp; Scoliosis &amp; Syringomyelia Foundation<\/a> et la <a href=\"https:\/\/institutchiaribcn.com\/fr\/filum-academy-barcelona\/\">Filum Academy Barcelona<\/a>, encouragent la recherche, l\u2019enseignement et la diffusion des connaissances sur la <a href=\"https:\/\/institutchiaribcn.com\/fr\/maladie-du-filum\/\"><strong>Maladie du Filum<\/strong><\/a><strong>, <\/strong>qui comprend des pathologies actuellement consid\u00e9r\u00e9es comme rares.<\/p>\n<p>Entre ces pathologies incluent le <strong><a href=\"https:\/\/institutchiaribcn.com\/fr\/maladies-que-nous-traitons\/arnold-chiari-syndrome\/\">S\u00edndrome d\u2019Arnold Chiari I<\/a><\/strong> et la <a href=\"https:\/\/institutchiaribcn.com\/fr\/maladies-que-nous-traitons\/la-syringomyelie\/\"><strong>Syringomy\u00e9lie Idiopathique<\/strong><\/a>, partagent une m\u00eame cause \u2013 la tension de la moelle \u00e9pini\u00e8re et de tout le syst\u00e8me nerveux par un Filum Terminale excessivement tendu -. Aujourd\u2019hui, les deux maladies ont un traitement peu invasif qui pr\u00e9vient les complications graves (ou m\u00eame la mort).<\/p>\n<p>Allons diffuser les informations qui sauvent des vies! Ce 29 f\u00e9vrier, et toujours, allons lutter contre les Maladie Rares!.<\/p>\n","protected":false},"featured_media":78567,"template":"","tipos-de-comunicacion":[510],"class_list":["post-78566","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-nouvelles"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Bien inform\u00e9 : vaincre maladies rares | ICSEB<\/title>\n<meta name=\"description\" content=\"Conseils et informations pour mieux comprendre et affronter les maladies rares, avec ressources et soutien pour les patients.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/bien-informe-savoir-vaincre-maladies-rares\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" 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