{"id":151370,"date":"2026-09-28T07:40:13","date_gmt":"2026-09-28T05:40:13","guid":{"rendered":"https:\/\/institutchiaribcn.com\/dia-internacional-sindrome-arnold-chiari-2026\/"},"modified":"2026-09-28T09:53:39","modified_gmt":"2026-09-28T07:53:39","slug":"journee-internationale-syndrome-arnold-chiari-2026","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/fr\/journee-internationale-syndrome-arnold-chiari-2026\/","title":{"rendered":"Syndrome d\u2019Arnold-Chiari I : Journ\u00e9e internationale 2026 (28 septembre)"},"content":{"rendered":"<p>La <strong>Journ\u00e9e internationale du <a href=\"https:\/\/institutchiaribcn.com\/fr\/arnold-chiari-syndrome\/\">syndrome d\u2019Arnold-Chiari I<\/a> <\/strong>se c\u00e9l\u00e8bre chaque <strong>28 septembre<\/strong>, une journ\u00e9e consacr\u00e9e \u00e0 faire conna\u00eetre cette maladie neurologique, \u00e0 promouvoir la recherche scientifique et \u00e0 soutenir les personnes concern\u00e9es ainsi que leurs familles.<\/p>\n<p>L\u2019<strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona (ICSEB)<\/strong> et la <strong>Chiari &amp; Syringomyelia &amp; Scoliosis Foundation (CSSf)<\/strong> s\u2019associent \u00e0 cette initiative internationale aux c\u00f4t\u00e9s de professionnels de sant\u00e9, d\u2019associations et d\u2019institutions engag\u00e9s dans le diagnostic, le traitement et la recherche sur le <strong>syndrome d\u2019Arnold-Chiari I<\/strong> et les pathologies qui lui sont associ\u00e9es.<\/p>\n<p>Le <strong>syndrome d\u2019Arnold-Chiari I<\/strong>, \u00e9galement appel\u00e9 <strong>malformation de Chiari de type I<\/strong>, se caract\u00e9rise anatomiquement par la descente des amygdales c\u00e9r\u00e9belleuses \u00e0 travers le foramen magnum, sans autres malformations associ\u00e9es de la moelle \u00e9pini\u00e8re. Son origine continue de faire l\u2019objet de recherches.<\/p>\n<p><span style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\">L\u2019objectif de cette journ\u00e9e est clair : <strong>sensibiliser, promouvoir la recherche et aider les patients<\/strong>.<\/span><\/p>\n<h2 style=\"font-size: 22px;\"><strong>Sensibiliser concernant le <a href=\"https:\/\/institutchiaribcn.com\/fr\/arnold-chiari-syndrome\/\">syndrome d\u2019Arnold-Chiari I<\/a><\/strong><\/h2>\n<p>De nombreuses personnes ignorent ce qu\u2019est le <strong>syndrome d\u2019Arnold-Chiari I<\/strong> ou pensent qu\u2019il affecte uniquement le cerveau. Pourtant, il s\u2019agit d\u2019une maladie pouvant pr\u00e9senter des manifestations tr\u00e8s diff\u00e9rentes d\u2019une personne \u00e0 l\u2019autre.<\/p>\n<p>Certains patients restent <strong>asymptomatiques<\/strong> et d\u00e9couvrent fortuitement la descente des amygdales c\u00e9r\u00e9belleuses lors d\u2019une imagerie par r\u00e9sonance magn\u00e9tique r\u00e9alis\u00e9e pour une autre raison.<\/p>\n<p>Dans d\u2019autres cas, la maladie peut provoquer des sympt\u00f4mes qui limitent consid\u00e9rablement la qualit\u00e9 de vie et peuvent m\u00eame entra\u00eener un handicap important.<\/p>\n<p>Les sympt\u00f4mes peuvent toucher pratiquement l\u2019ensemble du syst\u00e8me nerveux et comprendre :<\/p>\n<ul>\n<li>C\u00e9phal\u00e9es et douleurs cervicales.<\/li>\n<li>\u00c9tourdissements et vertiges.<\/li>\n<li>Perte de force au niveau des extr\u00e9mit\u00e9s.<\/li>\n<li>Troubles de la sensibilit\u00e9 et douleurs neuropathiques.<\/li>\n<li>Troubles de l\u2019\u00e9quilibre.<\/li>\n<li>Troubles de la d\u00e9glutition.<\/li>\n<li>Apn\u00e9es du sommeil.<\/li>\n<li>Insomnie.<\/li>\n<li>Troubles de la m\u00e9moire et de la concentration.<\/li>\n<li>Troubles de la parole.<\/li>\n<li>Douleurs dorsales et lombaires.<\/li>\n<\/ul>\n<p><span style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\">Chaque patient pr\u00e9sente une \u00e9volution diff\u00e9rente ; le diagnostic et le traitement doivent donc \u00eatre individualis\u00e9s.<\/span><\/p>\n<h2 style=\"font-size: 22px;\"><strong>La recherche de l\u2019ICSEB sur le syndrome d\u2019Arnold-Chiari I<\/strong><\/h2>\n<p>La recherche constitue l\u2019un des piliers fondamentaux de l\u2019<strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona<\/strong>.<\/p>\n<p>Avec le soutien de la <strong>Chiari &amp; Syringomyelia &amp; Scoliosis Foundation (CSSf)<\/strong>, le D\u00e9partement de recherche de l\u2019ICSEB \u00e9tudie la <strong>Maladie du Filum<\/strong> et sa relation possible avec le <strong>syndrome d\u2019Arnold-Chiari I<\/strong>, la syringomy\u00e9lie et d\u2019autres pathologies neurologiques.<\/p>\n<p>Cette ligne de recherche d\u00e9veloppe la <strong>th\u00e9orie de la traction caudale<\/strong>, selon laquelle un <strong>filum terminal cong\u00e9nitalement anormal et excessivement tendu<\/strong> pourrait exercer une traction permanente sur l\u2019ensemble du syst\u00e8me nerveux central, favorisant la descente des amygdales c\u00e9r\u00e9belleuses et l\u2019apparition de la symptomatologie caract\u00e9ristique.<\/p>\n<p>Cette approche a permis de d\u00e9velopper le <strong>Filum System\u00ae<\/strong>, un traitement neurochirurgical mini-invasif qui consiste \u00e0 <strong>sectionner le Filum terminale<\/strong>, dans le but d\u2019\u00e9liminer la traction pathologique et d\u2019arr\u00eater l\u2019\u00e9volution de la maladie.<\/p>\n<p>Selon l\u2019exp\u00e9rience clinique de l\u2019ICSEB, cette proc\u00e9dure r\u00e9duit consid\u00e9rablement les risques associ\u00e9s aux techniques neurochirurgicales conventionnelles utilis\u00e9es dans le traitement du syndrome d\u2019Arnold-Chiari I, telles que la <strong>craniectomie de d\u00e9compression<\/strong> et les diff\u00e9rentes variantes de <strong>d\u00e9compression sous-occipitale<\/strong>.<\/p>\n<p>L\u2019\u00e9quipe du <strong>Dr Miguel B. Royo Salvador<\/strong> poursuit le d\u00e9veloppement de nouvelles recherches sur cette hypoth\u00e8se physiopathologique et publie des \u00e9tudes scientifiques qui contribuent \u00e0 une meilleure connaissance de cette maladie.<\/p>\n<h2 style=\"font-size: 22px;\"><strong>Comment aider les personnes atteintes du <a href=\"https:\/\/institutchiaribcn.com\/fr\/arnold-chiari-syndrome\/\">syndrome d\u2019Arnold-Chiari<\/a><\/strong> I<\/h2>\n<p>La <strong>Chiari &amp; Syringomyelia &amp; Scoliosis Foundation (CSSf)<\/strong> \u0153uvre \u00e0 am\u00e9liorer la vie des personnes concern\u00e9es gr\u00e2ce \u00e0 :<\/p>\n<ul>\n<li>La diffusion des connaissances scientifiques.<\/li>\n<li>La formation des professionnels et l\u2019information des patients.<\/li>\n<li>Le soutien \u00e0 la recherche.<\/li>\n<li>L\u2019aide sociale aux personnes atteintes de maladies li\u00e9es \u00e0 la Maladie du Filum.<\/li>\n<\/ul>\n<p>De nombreux patients de diff\u00e9rents pays rencontrent des difficult\u00e9s pour acc\u00e9der \u00e0 des traitements hautement sp\u00e9cialis\u00e9s qui ne sont pas pris en charge par leurs syst\u00e8mes de sant\u00e9, tels que le <strong>Filum System\u00ae<\/strong>.<\/p>\n<p>Gr\u00e2ce aux dons, la CSSf peut apporter une aide financi\u00e8re aux patients disposant de ressources limit\u00e9es et ayant besoin de recevoir un traitement \u00e0 l\u2019<strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona<\/strong>.<\/p>\n<p><span style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\">Si vous souhaitez soutenir cette action solidaire et contribuer \u00e0 permettre \u00e0 davantage de personnes d\u2019acc\u00e9der \u00e0 un traitement sp\u00e9cialis\u00e9, vous pouvez faire un don \u00e0 la <strong>Chiari &amp; Syringomyelia &amp; Scoliosis Foundation<\/strong> via le lien suivant: <\/span><a style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\" href=\"https:\/\/chiarifoundationbcn.com\/donar\/\" target=\"_blank\" rel=\"noopener\"><strong>https:\/\/chiarifoundationbcn.com\/donar\/<\/strong><\/a><span style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\">.<\/span><\/p>\n<h2 style=\"font-size: 22px;\"><strong>Journ\u00e9e internationale du syndrome d\u2019Arnold-Chiari I: ensemble, faisons conna\u00eetre cette maladie<\/strong><\/h2>\n<p>La <strong>Journ\u00e9e internationale du syndrome d\u2019Arnold-Chiari I<\/strong> est l\u2019occasion de rappeler que des milliers de personnes vivent avec une maladie encore peu connue et, dans de nombreux cas, sous-diagnostiqu\u00e9e.<\/p>\n<p>La recherche scientifique, la diffusion des connaissances et la collaboration entre professionnels, institutions et patients sont essentielles pour am\u00e9liorer le diagnostic, d\u00e9velopper de nouveaux traitements et offrir une meilleure qualit\u00e9 de vie aux personnes atteintes de cette maladie.<\/p>\n<p><span style=\"font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, 'Noto Sans', sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';\">En ce <strong>28 septembre<\/strong>, l\u2019<strong>Institut Chiari &amp; Siringomielia &amp; Escoliosis de Barcelona<\/strong> et la <strong>Chiari &amp; Syringomyelia &amp; Scoliosis Foundation<\/strong> renouvellent leur engagement en faveur de la recherche, de la prise en charge sp\u00e9cialis\u00e9e et du soutien \u00e0 toutes les personnes concern\u00e9es par le <strong>syndrome d\u2019Arnold-Chiari I<\/strong>.<\/span><\/p>\n","protected":false},"featured_media":151238,"template":"","tipos-de-comunicacion":[510],"class_list":["post-151370","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-nouvelles"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Journ\u00e9e internationale du syndrome d\u2019Arnold-Chiari I 2026<\/title>\n<meta name=\"description\" content=\"D\u00e9couvrez le syndrome d\u2019Arnold-Chiari I, ses sympt\u00f4mes et les recherches men\u00e9es par l\u2019ICSEB \u00e0 l\u2019occasion de la Journ\u00e9e du 28 septembre 2026\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/fr\/journee-internationale-syndrome-arnold-chiari-2026\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" 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