{"id":52621,"date":"2017-09-04T00:00:00","date_gmt":"2017-09-03T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/nieves-wang-cord-traction-syndrome-arnold-chiari-syndrome-type-i-cervical-disc-disease\/"},"modified":"2026-03-05T12:34:09","modified_gmt":"2026-03-05T11:34:09","slug":"chinese-lady-arnold-chiari-story","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/","title":{"rendered":"Nieves Wang, Cord-Traction Syndrome. Arnold-Chiari Syndrome Type I, cervical disc disease."},"content":{"rendered":"

 <\/p>\n

Surgery date: June 2011<\/strong><\/p>\n

\"\"<\/a><\/p>\n

Hi everybody!<\/p>\n

I want to share an article with you that I wrote in 2010 where I describe my difficult journey trying to find a physician who would heal me. Back then I did not know if what was being offered in Spain was the truth or not, so to get real information, I decided to make my story public online.<\/p>\n

I am the third patient from China who went to the Institut Chiari de Barcelona. On eof the first Chinese patients called me and said to me: \u201cWang, your story really moved me and I wanted to assure that it is not an Urban Legend, it\u2019s true! I just came back from Barcelona and the surgery that they recommend WORKS!<\/em>\u201d She told me everything about her experience and how she got to the ICSEB.<\/p>\n

I decided to share my story so that people do not choose the wrong path. The treatment in Spain is the wisest and most correct option. If I could have done the sectioning of the filum terminale 20 years ago, I would not have had to go through all of this painful experience.<\/p>\n

I am very happy today. Even though I still have trouble walking and sometimes with a cough with vomiting, I am much better than before. The most important thing is that our disease has stopped and was really our ultimate goal.<\/p>\n

Barcelona is a very nice city and even though I rested in the hotel for the first days after the SFT because the wound was a little tender, on the third day I was already out doing sightseeing with my husband, eating seafood, going shopping, etc.<\/p>\n

My Email:\u00a0953770260@qq.com<\/a><\/p>\n

\u2014\u2014\u2014\u2014 My story published on the Internet in 2010\u2014\u2014\u2014\u2013<\/p>\n

\u201cA bitter journey\u201d<\/strong><\/p>\n

I am Nieves Wang, I am 49 years old and as most people, I have a happy family: a wonderful daughter and husband. Nevertheless, my life is not as great as it seems, because I have rare disease (Arnold-Chiari Syndrome I) and I live everyday with stress, pain and panic because of it.<\/p>\n

I realized more than 20 years ago that I walked in a manner that was not coordinated and, sometimes, I would stumble into doorframes. I was very busy with work, the family and my daughter back then. I didn\u2019t pay much attention to these small problems until I started falling when bicycling, I needed to really focus to be able to hold my balance, I had to stop wearing high heels and was not able to look after my daughter anymore. It was 1991, and together with my husband we set out on a long search for a doctor who could help me.<\/p>\n

The doctors that I saw said very different things: some said that I had rheumatism of cerebral atrophy and again others said that I had cerebrovascular problems. I saw many doctors, as much from occidental as from oriental medicine: I tried acupuncture, the electric treatments and I even went to see a sorcerer; but nothing improved my illness and my problems continued to increase.<\/p>\n

Until one day, a doctor told me that I was suffering form a rare disease that could not be healed with any medication, but with a surgical procedure that brings many risks with it and does not stop the disease. So his recommendation was to follow conservative treatments.<\/p>\n

Time went by the year 2000 came. During that period I already had a number of symptoms like: lack of balance when walking, lack of stability standing up, cough and vomiting, headache, insomnia, etc. On 19 October of that same year I reluctantly accepted the suboccipital craniectomy and I will never forget the pain I was in. The surgery lasted five hours and I had 14 stitches in the head. I had fever for a month following the surgery.<\/p>\n

My husband and my sister took turns in looking after me at the hospital. My husband slept sitting next to my stretcher for 36 days. I was very emotional and thankful but my eyes filled up with tears when I saw him so tired and worried.<\/p>\n

I had some improvements after the surgery, but with time my disease continued to get worse. When I left the house, people used to say to me: \u201cBut what is wrong with you? Drunk already in the morning? You will suffer a brain stroke if you drink so much\u201d<\/em> Do you see what people are like? I don\u2019t know if laugh or cry about their comments and mocking looks. I was jealous of the healthy people who walked well and dreamt of wearing the beautiful high heel shoes I saw in the shopping malls.<\/p>\n

In 2006, after saying good by to my daughter who was leaving for university, my husband accompanied me once more to Bejing to see a \u201cspecialist\u201d. Upon seeing me he asked me: \u201cWhat have you come here for if you already had surgery? This disease cannot be cured\u201d<\/em> and he finished the consultation with these cold words. I was so hurt that I started to cry. I told myself: \u201cYes, it\u2019s true, I can\u2019t put myself through more surgeries, I\u2019d prefer to die before going through another craniectomy!\u201d <\/em>Back then I was was not walking in a coordinated way, I lacked stability when I was standing, I had a cough and had to throw up badly, I had difficulties to swallow and insomnia. Despite it all, I never gave in. I started to look up information about my condition. I was looking to find a miracle every day, an advancement in medicine. I knew that the progression of the disease would lead to sphincter incontinence and paralysis; there are even cases of death due to the pain\u2026.would that be my future?<\/p>\n

In 2010, the follow up MRI reports showed that there was a descent of the cerebellar tonsils of 3.00 mm. By chance, I found an institute that is specialized in this illness and say that they can stop the progression of the disease. They offer a procedure with a minimally invasive technique that takes 45 minutes only. It was not painful and you were discharged from hospital on the day after the surgery. I was really excited about the news for days! I couldn\u2019t believe it, was it a legend or a dream?? I am hoping to have calm and happy life, and not a bitter journey.<\/p>\n

Nieve Wang
\n10 May 2010.<\/p>\n","protected":false},"featured_media":0,"template":"","tipos-de-testimonio":[353],"class_list":["post-52621","testimonios","type-testimonios","status-publish","hentry","tipos-de-testimonio-sft-after-suboccipital-craniectomy-soc"],"yoast_head":"\nNieves Wang: Arnold\u2011Chiari I Story | ICSEB<\/title>\n<meta name=\"description\" content=\"Nieves Wang from China shares her Arnold\u2011Chiari I and cord traction recovery journey after surgery at ICSEB.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nieves Wang: Arnold\u2011Chiari I Story | ICSEB\" \/>\n<meta property=\"og:description\" content=\"Nieves Wang from China shares her Arnold\u2011Chiari I and cord traction recovery journey after surgery at ICSEB.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/\" \/>\n<meta property=\"og:site_name\" content=\"Institut Chiari\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-05T11:34:09+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/\",\"url\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/\",\"name\":\"Nieves Wang: Arnold\u2011Chiari I Story | ICSEB\",\"isPartOf\":{\"@id\":\"https:\/\/institutchiaribcn.com\/en\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2015\/05\/china.jpg\",\"datePublished\":\"2017-09-03T22:00:00+00:00\",\"dateModified\":\"2026-03-05T11:34:09+00:00\",\"description\":\"Nieves Wang from China shares her Arnold\u2011Chiari I and cord traction recovery journey after surgery at ICSEB.\",\"breadcrumb\":{\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/#primaryimage\",\"url\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2015\/05\/china.jpg\",\"contentUrl\":\"https:\/\/institutchiaribcn.com\/wp-content\/uploads\/2015\/05\/china.jpg\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/institutchiaribcn.com\/en\/chinese-lady-arnold-chiari-story\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/institutchiaribcn.com\/en\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Testimonios\",\"item\":\"https:\/\/institutchiaribcn.com\/en\/testimonios\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Nieves Wang, Cord-Traction Syndrome. 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