{"id":49974,"date":"2012-11-22T00:00:00","date_gmt":"2012-11-21T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/sabine-bergmann-escoliosi-idiopatica-siringomielia-idiopatica-reculada-odonteidea-impressio-basilar-i-mielopatia\/"},"modified":"2026-03-17T11:42:37","modified_gmt":"2026-03-17T10:42:37","slug":"sabine-bergmann-scoliosi-idiopatica-siringomielia-idiopatica-inversione-del-proceso-odontoide-invaginazione-basilare-e-mielopatia","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ca\/sabine-bergmann-scoliosi-idiopatica-siringomielia-idiopatica-inversione-del-proceso-odontoide-invaginazione-basilare-e-mielopatia\/","title":{"rendered":"Sabine Bergmann. Escoliosi idiop\u00e0tica. Siringomi\u00e8lia idiop\u00e0tica. Reculada odonteidea. Impressi\u00f3 Basilar i Mielopatia."},"content":{"rendered":"

 <\/p>\n

Data d\u2019intervenci\u00f3: setembre del 2012<\/strong><\/p>\n

Hola des de Berl\u00edn, em dic Sabine Bergmann i tinc 50 primaveres.<\/p>\n

Des de la infantesa tinc escoliosi (ca. 30\u00ba), que es va tractar intensament des dels 12 anys fins al final de la fase de creixement, amb fisioter\u00e0pia. Despr\u00e9s em deien que fes una mica d\u2019esport, tot i aix\u00ed, a la vellesa que arribaria tenint problemes.<\/p>\n

Als vint anys i escaig, vaig tenir una forta caiguda sobre el c\u00f3ccix (vaig sentir dolor fins a hores d\u2019ara) i el 1994 vaig tenir un traumatisme cervical greu.
\nA partir d\u2019aquell moment havia de conviure amb el vertigen, n\u00e0usees, alteracions de la vista, mal de cap i tensions musculars. No podia fer servir ulleres per llegir per res del m\u00f3n, perqu\u00e8 llavors s\u2019agreujaven les mol\u00e8sties.<\/p>\n

Des del 1999 per culpa de l\u2019escoliosi, tenia tamb\u00e9 cada cop m\u00e9s mol\u00e8sties a la zona lumbar que irradiaven a les cames i tenia la funci\u00f3 de la bufeta perjudicada. Van seguir els tractaments d\u2019infiltracions per tomografia computada, un sens fi de medicaments, tractaments de rehabilitaci\u00f3 intensius i fisioter\u00e0pia, fins arribar a la proposta d\u2019operar l\u2019escoliosi, cosa que ja no em feia el pes.<\/p>\n

Als darrers anys es van intensificar totes aquestes mol\u00e8sties, cada cop m\u00e9s. La meva qualitat de vida anava empitjorant dia a dia. Fer tan sols una mica d\u2019exercici lleu per estabilitzar la musculatura, em resultava impossible, perqu\u00e8 la columna cervical, dorsal i lumbar sempre resultaven afectades. Si feia senderisme o rutes en bicicleta, sempre acabava amb problemes extrems. Fins i tot anar al cinema, podia fer que es bloquessin les cervicals. Les c\u00e0rregues de la vida quotidiana normal, es van convertir en un problema. El meu sistema nervi\u00f3s vegetatiu estava completament alterat. De dia fent esfor\u00e7os normals, s\u2019havien d\u2019afegir els problemes amb la columna cervical, sovint dolor i enrampades a les cames i peus. La columna dorsal i les costelles moltes vegades em treien de polleguera a la nit pel dolor. A vegades el ioga ajudava una mica, m\u00e9s que res mentalment. Els oste\u00f2pates m\u2019alleugerien amb \u00e8xit peri\u00f2dicament (cada tres setmanes aix\u00ed com tamb\u00e9 en situacions agudes). Per\u00f2 al cap d\u2019un curt espai de temps i \/ o un mal gest, tot tornava a estar igual de greu que abans.<\/p>\n

Malgrat aquests tractaments realment bons, a la nit apareixien a m\u00e9s cada cop m\u00e9s problemes circulatoris, taquic\u00e0rdia i ac\u00fafens. Sovint dormia nom\u00e9s dues o tres hores, i mai seguit. Si em tombava aconseguia alleujament per una cosa per\u00f2 em feia mal una altra i em donava problemes una altra. Vaig provar un gran nombre de coixins. Als matins sempre estava feta pols i em preguntava com se suposava que podia sobreviure al dia, la feina i la rutina di\u00e0ria. El meu cos, tot sencer, fallava cada cop m\u00e9s.<\/p>\n

Avui em pregunto com ho he pogut resistir.<\/p>\n

Nous resultats se\u2019m presentaven com diverses discopaties amb mielopatia, reculada odonteidea amb impressi\u00f3 basilar i la s\u00edndrome de l\u2019art\u00e8ria vertebral.<\/p>\n

El juny del 2012 em trobava un cop m\u00e9s buscant per Internet, absolutament desesperada i vaig trobar aquesta p\u00e0gina web. Estava, i segueixo estant, impressionada amb el plantejament que la s\u00edndrome de tracci\u00f3 medul\u00b7lar (provocada per un filum terminale tibant i gruixut), fos la causa de la meva escoliosi\u00a0 i les lesions secund\u00e0ries, aix\u00ed com el fet que les mol\u00e8sties provocades pel traumatisme cervical, no havien millorat encara despr\u00e9s de 18 anys i que els professionals de la meva ciutat em podien ajudar nom\u00e9s temporalment.<\/p>\n

Vaig enviar immediatament un correu electr\u00f2nic a Barcelona i vaig rebre la resposta en alemany, de l\u2019amable Srta. K\u00fchn. Despr\u00e9s tot va anar molt r\u00e0pid i el 27 de setembre del 2012 em va operar el Dr. Royo i la Dra. M\u00e9ndez. La decisi\u00f3 de volar a Barcelona i deixar-me operar va ser molt f\u00e0cil. Des de la dist\u00e0ncia, em sentia absolutament segura d\u2019estar-ho fent tot b\u00e9. A les visites preoperat\u00f2ries\u00a0in situ<\/em>, un dia abans de la intervenci\u00f3 prevista, estava mentalment totalment tranquil\u00b7la, sense dubtes i entusiasmada amb l\u2019equip i la seva compet\u00e8ncia. Sentia que mai fins llavors m\u2019havien explorat tan b\u00e9 i tan a fons.<\/p>\n

La intervenci\u00f3 va transc\u00f3rrer b\u00e9 i a l\u2019endem\u00e0 ja volava de tornada a casa.<\/p>\n

Immediatament despr\u00e9s de la intervenci\u00f3, em va fer la sensaci\u00f3 que les meves v\u00e8rtebres cervicals estaven millor \u201cparades\u201d. Quatre hores despr\u00e9s de la intervenci\u00f3, van explorar-me els mateixos reflexos que abans de l\u2019operaci\u00f3. Els resultats van ser sensacionals. Per exemple la for\u00e7a ja havia augmentat de quatre quilos a cada m\u00e0 despr\u00e9s d\u2019aquestes poques hores.<\/p>\n

Quan em vaig despertar, despr\u00e9s de la primera nit posterior a la intervenci\u00f3, em queien ll\u00e0grimes d\u2019alegria; havia dormit meravellosament per primer cop despr\u00e9s d\u2019anys de no fer-ho!!.<\/p>\n

Set setmanes despr\u00e9s de la intervenci\u00f3, miro el futur de nou amb alegria. El m\u00f3n \u00e9s fant\u00e0stic quan has descansat.<\/p>\n

Ara pocs cops tinc problemes amb la circulaci\u00f3 o ac\u00fafens per la nit, i si en tinc, s\u00f3n de manera molt redu\u00efda. Des de la intervenci\u00f3 no tinc enrampades als peus i a les cames, vertigen i n\u00e0usees, nom\u00e9s rarament. El mal d\u2019esquena i el dolor a les cames, tornen a apar\u00e8ixer algun cop per un minut, i despr\u00e9s tot desapareix de nou!!! Totes les mol\u00e8sties abans eren els meus companys constants.<\/p>\n

El meu oste\u00f2pata diu que m\u2019estic redre\u00e7ant cada cop m\u00e9s i que es fa evident tot hi haver passat tan poc temps, i malgrat aix\u00f2 es veu un canvi positiu evident!.<\/p>\n

En aquests moments lluito per un reemborsament per part de l\u2019asseguran\u00e7a m\u00e8dica. El preu de la intervenci\u00f3 va ser una ganga tenint en compte el qu\u00e8 he guanyat. \u00c9s una ll\u00e0stima que la burocr\u00e0cia i altres del sistema de salut alemany, impedeixin un reemborsament, malgrat que l\u2019\u00e8xit \u00e9s visible i mesurable i que la secci\u00f3 del filum terminale, ajudaria de manera \u00f2ptima a molts pacients d\u2019escoliosi, Arnold Chiari i Siringomi\u00e8lia, i aix\u00ed es minimitzarien \/ evitarien costos de tractaments ulteriors i fins i tot prejubilacions. De tota manera, segueixo lluitant amb i per l\u2019associaci\u00f3 internacional de pacients AI.SAC.SI.SCO (Associaci\u00f3 Internacional S\u00edndrome Arnold Chiari I \u2013 Siringomi\u00e8lia \u2013 Escoliosi \u2013 Filum-Tomizados).<\/p>\n

MIL GR\u00c0CIES a l\u2019equip de l\u2019Institut Chiari & Siringomi\u00e8lia & Escoliosi de Barcelona (ICSEB); torno a ser una persona feli\u00e7 \u2013 podria abra\u00e7ar al m\u00f3n sencer de tanta felicitat!!!<\/strong><\/p>\n

Sabine Bergmann (sabberg@gmx.de<\/strong><\/a>), novembre del 2012<\/p>\n","protected":false},"featured_media":44507,"template":"","tipos-de-testimonio":[331],"class_list":["post-49974","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-testimonis-escoliosi-idiopatica"],"yoast_head":"\nSabine Bergmann: escoliosi i siringomielia | ICSEB<\/title>\n<meta name=\"description\" content=\"Data d\u2019intervenci\u00f3: setembre del 2012 Hola des de Berl\u00edn, em dic Sabine Bergmann i tinc 50 primaveres. 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