{"id":49947,"date":"2018-01-11T00:00:00","date_gmt":"2018-01-10T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/dayse-aparecida-ferreira-sindrome-neuro-cranio-vertebral-descens-de-les-amigdales-cerebelloses-sindrome-darnold-chiari-i-quist-intramedullar-siringomielia-idiopatica\/"},"modified":"2026-04-02T10:52:38","modified_gmt":"2026-04-02T08:52:38","slug":"dayse-aparecida-ferreira-sindrome-neuro-cranio-vertebral-descens-amigdales-cerebelloses-sindrome-darnold-chiari-quist-intramedullar-siringomielia-idiopatica","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ca\/dayse-aparecida-ferreira-sindrome-neuro-cranio-vertebral-descens-amigdales-cerebelloses-sindrome-darnold-chiari-quist-intramedullar-siringomielia-idiopatica\/","title":{"rendered":"Dayse Aparecida Ferreira. S\u00edndrome Neuro-Cranio-Vertebral. Descens de les am\u00edgdales cerebel\u00b7loses (S\u00edndrome d\u2019Arnold Chiari I). Quist intramedul\u00b7lar (Siringomi\u00e8lia idiop\u00e0tica)"},"content":{"rendered":"

 <\/p>\n

\"\"<\/a>Data de la intervenci\u00f3: Mar\u00e7 del 2017<\/strong><\/p>\n

\"\"<\/a><\/p>\n

Em dic Dayse, tinc 34 anys i des dels 28 que tenia dolors que venien i despr\u00e9s se n\u2019anaven sense que ning\u00fa en descobr\u00eds la causa. Al juliol del 2014 aquests dolors es van intensificar i vaig haver d\u2019anar d\u2019urg\u00e8ncies, ja que eren molt forts. Em van diagnosticar lumb\u00e0lgia, depressi\u00f3 i fibromi\u00e0lgia. Seguia els tractaments i els medicaments proposats conforme a les orientacions m\u00e8diques, per\u00f2 res calmava els meus dolors.<\/p>\n

Durant una crisi molt forta, vaig anar a l\u2019hospital i li vaig explicar a la doctora de gu\u00e0rdia que ja no suportava m\u00e9s tant de dolor ni haver de prendre medicaci\u00f3 sense notar cap millora. La doctora em va demanar que em fes una resson\u00e0ncia de la meva columna (zona lumbosacra) i, amb els resultats, em va derivar a un ortopedista.<\/p>\n

L\u2019ortopedista, despr\u00e9s d\u2019avaluar la meva resson\u00e0ncia, em va dir que havia detectat una alteraci\u00f3; per\u00f2 no me la va explicar. Tamb\u00e9 em va dir que hauria de consultar amb un especialista de la columna. Quan vaig arribar a casa, em vaig posar a investigar el terme \u201csiringomi\u00e8lia\u201d per internet, i tots els resultats deien que es tractava d\u2019una \u201cpatologia minorit\u00e0ria i degenerativa de la medul\u00b7la espinal, sense cura i que podria, amb el temps, obligar al pacient a anar amb cadira de rodes\u201d. En aquell moment, em vaig adonar que tenia una \u201cbomba\u201d a les meves mans. Ja en aquesta primera recerca per internet, vaig trobar la p\u00e0gina web de l\u2019institut Chiari & Siringomielia & Escoliosis de Barcelona, per\u00f2 no em vaig fixar molt en la seva informaci\u00f3; ja que deia exactament el contrari del que jo havia llegit abans.<\/p>\n

Despr\u00e9s d\u2019investigar m\u00e9s informaci\u00f3 sobre la malaltia, vaig veure que hi havia grups de recolzament al Facebook formats per malalts i, r\u00e0pidament, vaig entendre que aquesta malaltia no era tan minorit\u00e0ria, perqu\u00e8 hi ha molts membres en aquests grups. En el primer grup, vaig contactar amb algunes persones que s\u2019havien operat a Barcelona i els seus testimonis eren els millors, i molt diferents d\u2019altres pacients que s\u2019havien operat aqu\u00ed a Brasil a trav\u00e9s del m\u00e8tode convencional.<\/p>\n

Vaig enviar els meus informes a l\u2019Institut Chiari de Barcelona i ells em van enviar un document en el qual m\u2019informaven de que jo tenia la S\u00edndrome Neuro-Cranio-Vertebral, i a m\u00e9s Siringomi\u00e8lia i Arnold Chiari I. Tamb\u00e9 em van enviar un pressupost del cost de la intervenci\u00f3.<\/p>\n

A l\u2019abril del 2016, vaig decidir fer una campanya, que va durar aproximadament un any, per a recaptar l\u2019import necessari i el dia 21 de mar\u00e7 del 2017 es va fer realitat la tant desitjada cirurgia de la Secci\u00f3 del Filum Terminale. Vuit hores despr\u00e9s de la intervenci\u00f3 ja es van observar millores significatives com: la recuperaci\u00f3 de la for\u00e7a als bra\u00e7os i cames. Tres dies despr\u00e9s, durant la visita de control del post-operatori, es van detectar altres millores. La que m\u00e9s em va cridar l\u2019atenci\u00f3 va ser la disminuci\u00f3 de la hiperrefl\u00e8xia en tres zones i en el bra\u00e7 dret (en el qual ja hi tenia una p\u00e8rdua motora). Senzillament, els meus reflexes s\u2019havien normalitzat; un quadre de millora que, segons em van informar, podria ser verificat nom\u00e9s despr\u00e9s d\u2019un any de la cirurgia.<\/p>\n

La principal millora ha estat la desaparici\u00f3 dels dolors constants que sentia en la zona de: nuca, cap, cervical, espatlla dreta i regi\u00f3 lumbar, cosa que m\u2019han aportat millor qualitat de vida. Porto tres mesos operada i, des d\u2019aleshores, no he pres cap m\u00e9s antidepressiu (que me\u2019ls receptaven perqu\u00e8 deien que els meus dolors eren psicol\u00f2gics..).<\/p>\n

Amb la cirurgia, els metges de l\u2019institut intenten aturar l\u2019evoluci\u00f3 de la malaltia, per\u00f2, m\u00e9s que aix\u00f2, he ven\u00e7ut, i puc dir que aquests han sigut els diners m\u00e9s ben gastats en tota la meva vida.<\/p>\n

Agraeixo a D\u00e9u i a tots els que m\u2019han ajudat a fer aquest somni realitat. Espero que, amb el meu testimoni i el d\u2019altres pacients, puguem cridar l\u2019atenci\u00f3 dels nostres metges per a que m\u00e9s persones puguin beneficiar-se d\u2019aquest m\u00e8tode.<\/p>\n

Correu de contacte:\u00a0ayse.ap@hotmail.com<\/a><\/p>\n","protected":false},"featured_media":44262,"template":"","tipos-de-testimonio":[327],"class_list":["post-49947","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-testimonis-siringomelia-idiopatica"],"yoast_head":"\nS\u00edndrome d'Arnold-Chiari i | Institut Chiari Barcelona<\/title>\n<meta name=\"description\" content=\"Data de la intervenci\u00f3: Mar\u00e7 del 2017 Em dic Dayse, tinc 34 anys i des dels 28 que tenia dolors que venien i despr\u00e9s se... \u00a0 Llegir m\u00e9s \u2192\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/ca\/dayse-aparecida-ferreira-sindrome-neuro-cranio-vertebral-descens-amigdales-cerebelloses-sindrome-darnold-chiari-quist-intramedullar-siringomielia-idiopatica\/\" \/>\n<meta property=\"og:locale\" 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