{"id":49778,"date":"2013-02-06T00:00:00","date_gmt":"2013-02-05T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/paola-faedda-sindrome-de-traccio-medullar-descens-de-les-amigdales-cerebelloses\/"},"modified":"2026-01-20T09:34:45","modified_gmt":"2026-01-20T08:34:45","slug":"paola-faedda-sindrome-traccio-medul%c2%b7lar-descens-amigdales-cerebel%c2%b7loses","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ca\/paola-faedda-sindrome-traccio-medul%c2%b7lar-descens-amigdales-cerebel%c2%b7loses\/","title":{"rendered":"Paola Faedda. S\u00edndrome de tracci\u00f3 medul\u00b7lar, descens de les Am\u00edgdales Cerebel\u00b7loses."},"content":{"rendered":"

 <\/p>\n

\"Paola_Faedda\"<\/a>
\nData de la intervenci\u00f3: Juny 2012<\/strong><\/p>\n

\u00c9s incre\u00efble com aquesta patologia, malgrat no ser tant rara com es creu, sigui tan poc coneguda; fins i tot pels mateixos metges. Els hi explicar\u00e9 la meva hist\u00f2ria intentant resumir tres mesos de la meva vida en poques l\u00ednies.<\/p>\n

Un mat\u00ed, de mitjans del mes de mar\u00e7 del 2012, despr\u00e9s d\u2019aixecar alguna cosa pesada vaig notar una estrebada que des d\u2019entre les esc\u00e0pules pujava al coll. Res preocupant, simplement tenia una estrebada.. ja es passaria. De fet, despr\u00e9s d\u2019uns dies va semblar que s\u2019alleujava, per\u00f2 hi havia alguna cosa rara. Una forta co\u00efssor que abans havia notat en el coll, i amb el pas dels dies va pujar per tot el cap. Vaig comen\u00e7ar a entendre que hi havia alguna cosa estranya, qu\u00e8 era aquella co\u00efssor?. Aleshores vaig comen\u00e7ar a anar i venir al metge de cap\u00e7alera qui cada vegada em donava les mateixes respostes: no \u00e9s res greu, s\u00f3n s\u00edmptomes que no volen dir res, \u00fanicament est\u00e0s estressada\u201d. Cada setmana anava a pitjor i notava noves sensacions: tensi\u00f3 a les cames i bra\u00e7os, formigueig a les mans, xiulets a les o\u00efdes. Vaig fer tot tipus de visites, \u00f2bviament a trav\u00e9s de la via privada, perqu\u00e8 el meu metge no veia necessari aprofundir, per a ell era nom\u00e9s estr\u00e8s.<\/p>\n

Res. No es va entendre el que em passava fins un dia que un neur\u00f2leg, el tercer!, per fi em va demanar una resson\u00e0ncia en la que es va veure que les am\u00edgdales cerebel\u00b7loses estaven baixes, per\u00f2 tamb\u00e9 aqu\u00ed vaig tenir la resposta de: \u201cno \u00e9s res, vaig n\u00e9ixer aix\u00ed, viur\u00e0s aix\u00ed i morir\u00e0s aix\u00ed\u201d. Sense preguntar-se com \u00e9s que aquestes am\u00edgdales havien descendit.<\/p>\n

Vaig decidir buscar per internet perqu\u00e8 volia saber m\u00e9s sobre el tema de les am\u00edgdales i vaig descobrir tenir una patologia: la S\u00edndrome d\u2019Arnold Chiari, que no era tan inn\u00f2cua, tot al contrari.<\/p>\n

Cada vegada estava pitjor. Vaig trobar que a Espanya, a Barcelona, hi havia un metge especialista: el Dr. Royo Salvador. Vaig trucar de seguida i vaig parlar amb la Sra. Lu\u00e8, que forma part de l\u2019equip del Dr. Royo. Molt amablement ella em va explicar i, el m\u00e9s important, em va informar sobre com aquesta patologia es pot aturar amb una intervenci\u00f3. Com vam poder, amb l\u2019ajuda de parents i amics, vam aconseguir els diners per a la intervenci\u00f3. Al juny vaig marxar seguda i decidida cap a Barcelona. Quan vaig arribar em van visitar minuciosament i em van confirmar que podien operar-me. De tal manera que en tres dies vaig fer la visita, la intervenci\u00f3 i al tercer dia em van donar l\u2019alta i vaig poder tornar cap a casa meva.<\/p>\n

D\u2019aquesta manera, amb una petita incisi\u00f3 al nivell del sacre, vaig poder recomen\u00e7ar la meva vida. Per fi em vaig sentir \u201csalvada\u201d, ja estava segura que havia bloquejat tots els s\u00edmptomes que la patologia em provocava, per\u00f2 encara va anar millor. Cada m\u00e9s m\u2019anava sentint millor, els s\u00edmptomes i les mol\u00e8sties van disminuir fins a desapar\u00e8ixer!.<\/p>\n

Fins i tot, amb l\u2019\u00faltima resson\u00e0ncia magn\u00e8tica que m\u2019he fet per a un control, resulta que les meves am\u00edgdales han tornar a ascendir; han tornat al seu lloc. Aquesta \u00e9s una prova per a tots aquells metges que em van desaconsellar fer aquesta intervenci\u00f3 dient que no servia per a la patologia del Chiari i que per aquest motiu em van negar tamb\u00e9 el reemborsament per a les despeses d\u2018intervenci\u00f3 a l\u2019estranger.<\/p>\n

A tots els que llegiran el meu testimoni, els hi vull dir: \u201cvalorin vost\u00e8s mateixos\u201d. Jo per part meva dono les gr\u00e0cies al Dr. Royo i a tot el seu equip.<\/p>\n","protected":false},"featured_media":43727,"template":"","tipos-de-testimonio":[320],"class_list":["post-49778","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-testimonis-sindrome-darnold-chiair-i"],"yoast_head":"\nPaola Faedda. 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