{"id":49764,"date":"2017-12-07T00:00:00","date_gmt":"2017-12-06T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/nicholas-amico-sindrome-de-traccio-medullar-descens-de-les-amigdales-cerebelloses-dac-siringomielia-idiopatica\/"},"modified":"2026-04-02T10:52:39","modified_gmt":"2026-04-02T08:52:39","slug":"nicholas-amico-sindrome-traccio-medul%c2%b7lar-descens-amigdales-cerebel%c2%b7loses-dac-siringomielia-idiopatica","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ca\/nicholas-amico-sindrome-traccio-medul%c2%b7lar-descens-amigdales-cerebel%c2%b7loses-dac-siringomielia-idiopatica\/","title":{"rendered":"Nicholas Amico. S\u00edndrome de tracci\u00f3 medul\u00b7lar. Descens de les Am\u00edgdales cerebel\u00b7loses (DAC). Siringomi\u00e8lia idiop\u00e0tica."},"content":{"rendered":"

 <\/p>\n

Actualitzaci\u00f3 del Testimoni de Nicholas Amico
\n21\/06\/2017<\/strong><\/p>\n

Imatges de les Resson\u00e0ncies Magn\u00e8tiques (RM) d\u2019en Nicholas<\/u><\/strong><\/p>\n

Abans de la intervenci\u00f3 de SFT segons el FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n

Despr\u00e9s de la intervenci\u00f3 del SFT segons el FS\u00ae<\/sup><\/strong><\/p>\n

\"\"<\/a><\/div>\n
\"\"<\/a><\/div>\n

L\u2019informe de l\u2019\u00faltim control de les RMs indica: \u201cActualment s\u2019observa una evident disminuci\u00f3 de la petita cavitat hidrosiringomi\u00e8lica entre C6 i D1\u201d<\/em>.<\/p>\n

\n

\"Nicolas_Amicos\"<\/a>
\nData de la intervenci\u00f3: 5 de juliol del 2012<\/p>\n

Hola a tots! Em dic Nicholas i s\u00f3c un nen de 6 anys que viu a Mil\u00e0.<\/p>\n

Quan tenia 3 anys, els metges van fer saber als meus pares que patia d\u2019una malaltia rara: la S\u00edndrome d\u2019Arnold Chiari I i Siringomi\u00e8lia. La meva mare i el meu pare es van enfonsar. Van portar-me a molts metges i tamb\u00e9 en van contactar a molts m\u00e9s per tel\u00e8fon, per correu, etc.. per\u00f2 tots els hi deien que m\u2019havia de fer una craniotomia sent l\u2019\u00fanica intervenci\u00f3 que resoldria el problema. La meva mare i el meu pare no es quedaven tranquils; volien i havien de trobar una altra soluci\u00f3. M\u00e9s tard, van descobrir l\u2019Institut Chiari de Barcelona i van portar-m\u2019hi a fer una visita en la qual el Dr. Royo va dir que era necessari intervenir-me urgentment amb una Secci\u00f3 de Filum Terminale.<\/p>\n

Haig d\u2019admetre que en un principi la meva mare estava bastant esc\u00e8ptica; no creia que fos una intervenci\u00f3 \u00fatil, aleshores va decidir contactar amb moltes persones italianes que ja s\u2019havien sotm\u00e8s a la intervenci\u00f3. Despr\u00e8s de parlar-hi, els meus pares van decidir que s\u00ed que m\u2019operaria i el 5 de juliol del 2012 vaig ser operat. Vaig ingressar la nit anterior i al mat\u00ed, prop de les 10 del mat\u00ed van entrar-me a quir\u00f2fan. Plorava i ho feia perqu\u00e8 no volia deixar als meus pares per\u00f2, sincerament, la intervenci\u00f3 no va durar ni una hora, i els vaig poder abra\u00e7ar poc despr\u00e9s.<\/p>\n

Poc temps despr\u00e8s, molts dels s\u00edmptomes que tenia van millorar: per la nit ja no em feia pip\u00ed al llit, no queia, les meves apnees es van reduir a la meitat i tamb\u00e9 va millorar el so de la meva veu. Avui en dia porto una vida normal: em barallo amb la meva germana, vaig a l\u2019escola, jugo a futbol, corro, salto i, sobretot, no paro mai. El dia 13 de mar\u00e7 del 2015 vaig realitzar la resson\u00e0ncia anual de control i no ha variat res. No he empitjorat i espero seguir aix\u00ed.<\/p>\n

Malauradament el dia 1 de juliol del 2015 vaig anar a la visita de control i es van adonar que tinc el bra\u00e7 esquerra que no respon b\u00e9 als reflexes i probablement aix\u00f2 es degut a la Siringomi\u00e8lia. No se sap si \u00e9s d\u2019abans o despr\u00e8s de la intervenci\u00f3. Heu de saber que abans no hem deixava ni visitar. Era petit i quan veia a un doctor plorava sempre. Aleshores, no tenint una exploraci\u00f3 anterior, els doctors no saben quan va passar. Per\u00f2 en general tot va b\u00e9: tinc la vida d\u2019un nen \u201cnormal\u201d de set anys.<\/p>\n

De moment vull dedicar un agra\u00efment especial al Dr. Royo , a ell, a un gran home i a un gran metge. Alg\u00fa qui ha dedicat tota la vida a l\u2019estudi d\u2019aquesta patologia, i que gr\u00e0cies a ell, persones com jo tenim una vida m\u00e9s digna i millor. Tamb\u00e9 vull agrair a la Dra. Gioia Lu\u00e8 i a tot l\u2019equip per la seva professionalitat i amabilitat.<\/p>\n

Despr\u00e9s vull dirigir-me a vosaltres: als malalts. No abandoneu mai l\u2019esperan\u00e7a, resistiu. \u00danicament la for\u00e7a i l\u2019esperan\u00e7a ajuden a segui. No deixeu de somriure perqu\u00e8 la vida \u00e9s bella i nom\u00e9s passa una vegada. Aleshores gaudiu.<\/p>\n

Ad\u00e9u a tothom.<\/p>\n

Nicholas Amico.<\/p>\n

Per qualsevol informaci\u00f3 podeu contactar amb l\u2019Elena, la meva mare: +39 327\/1887662<\/p>\n","protected":false},"featured_media":43615,"template":"","tipos-de-testimonio":[320],"class_list":["post-49764","testimonios","type-testimonios","status-publish","has-post-thumbnail","hentry","tipos-de-testimonio-testimonis-sindrome-darnold-chiair-i"],"yoast_head":"\nS\u00edndrome de Chiari i | Institut Chiari Barcelona<\/title>\n<meta name=\"description\" content=\"Actualitzaci\u00f3 del Testimoni de Nicholas Amico 21\/06\/2017 Imatges de les Resson\u00e0ncies Magn\u00e8tiques (RM) d\u2019en Nicholas Abans de... \u00a0 Llegir m\u00e9s \u2192\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/institutchiaribcn.com\/ca\/nicholas-amico-sindrome-traccio-medul%c2%b7lar-descens-amigdales-cerebel%c2%b7loses-dac-siringomielia-idiopatica\/\" \/>\n<meta property=\"og:locale\" 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