{"id":76040,"date":"2025-01-24T00:00:00","date_gmt":"2025-01-23T23:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/comunicacion\/els-simptomes-de-la-malaltia-del-filum-i-sindrome-neuro-cranio-vertebral-abans-i-despres-del-tractament-mitjancant-el-filum-system\/"},"modified":"2026-03-20T10:43:30","modified_gmt":"2026-03-20T09:43:30","slug":"simptomes-malaltia-filum-sindrome-neuro-cranio-vertebral-despres-tractament-mitjancant-filum-system","status":"publish","type":"comunicacion","link":"https:\/\/institutchiaribcn.com\/ca\/simptomes-malaltia-filum-sindrome-neuro-cranio-vertebral-despres-tractament-mitjancant-filum-system\/","title":{"rendered":"Els s\u00edmptomes de la Malaltia del Filum i S\u00edndrome Neuro-cranio-vertebral, abans i despr\u00e9s del tractament mitjan\u00e7ant el Filum System\u00ae"},"content":{"rendered":"

Publicat per\u00a0ICSEB<\/a>\u00a0el 24 gener, 2025<\/p>\n

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Molts pacients afectats per la\u00a0S\u00edndrome d\u2019Arnold Chiari I, Siringomi\u00e8lia i Escoliosi Idiop\u00e0tiques<\/strong>\u00a0o altres patologies implicades en\u00a0la Malaltia del Filum (EF),<\/strong>\u00a0es pregunten si alguns dels\u00a0s\u00edmptomes<\/strong>\u00a0que pateixen s\u00f3n deguts a aquests diagn\u00f2stics, ja que no semblen t\u00edpics d\u2019aquests.<\/p>\n

Fins i tot, molts metges a vegades no coneixen\u00a0l\u2019ampli espectre de trastorns<\/strong>\u00a0que l\u2019EF pot causar als pacients, i acaben dubtant que existeixin altres patologies concomitants; allargant d\u2019aquesta manera la fase diagn\u00f2stica per no recon\u00e8ixer el quadre cl\u00ednic.<\/p>\n

Durant els gaireb\u00e9 cinquanta anys d\u2019experi\u00e8ncia amb pacients afectats d\u2019aquestes patologies, el Dr. M. B. Royo Salvador i el seu equip han pogut constatar que la\u00a0S\u00edndrome Neuro-Cranio-Vertebral (SNCV<\/strong>) \u2013 expressi\u00f3 de la tracci\u00f3 an\u00f2mala del Sistema Nervi\u00f3s Central transmesa per un Filum terminale que apareix tens -, pot portar a un\u00a0quadre cl\u00ednic ric en s\u00edmptomes, complex i, de vegades, imprevisible fins i tot per als experts<\/strong>.<\/p>\n

Gr\u00e0cies als seus estudis sobre la causa etiol\u00f2gica del descens de les am\u00edgdales cerebel\u00b7loses, de les cavitats intramedul\u00b7lars, de les desviacions de la columna, etc., els nostres especialistes aborden cada situaci\u00f3 cl\u00ednica de cada pacient sabent que el seu\u00a0quadre simptomatol\u00f2gic pot anar m\u00e9s enll\u00e0 del que s\u2019atribueix comunament a aquestes afeccions.<\/strong><\/p>\n

En el Gr\u00e0fic I reportat, es mostren els s\u00edmptomes en una mostra de 373 pacients amb EF i SNCV. Podem observar com, juntament amb els m\u00e9s t\u00edpics i coneguts de l\u2019Arnold Chiari I \u2013\u00a0cefalea i marejos, dolors de la columna vertebral, parest\u00e8sies, cansament, ac\u00fafens, disf\u00e0gia<\/strong>\u00a0\u2013 i de la Siringomielia idiop\u00e0tica \u2013\u00a0alteracions de l\u2019equilibri, dolors a les extremitats, alteraci\u00f3 de la marxa, alteraci\u00f3 de la percepci\u00f3 t\u00e8rmica<\/strong>\u00a0\u2013 hi ha altres s\u00edmptomes significativament freq\u00fcents en el percentatge:\u00a0nerviosisme (53%), alteracions dels esf\u00ednters (52%), insomni (49%), deteriorament de la mem\u00f2ria (43%), alteraci\u00f3 de l\u2019atenci\u00f3 (38%), depressi\u00f3 (27%), trastorns del llenguatge (25%), diplopia (16%), rampes (12%).<\/strong><\/p>\n

Entre les alteracions dels esf\u00ednters m\u00e9s comunes, tenim la\u00a0urg\u00e8ncia urin\u00e0ria, la incontin\u00e8ncia urin\u00e0ria, la diarrea i l\u2019estrenyiment fecal, algun cas amb incontin\u00e8ncia fecal.<\/strong>\u00a0Aquests s\u00edmptomes solen associar-se a d\u2019altres s\u00edndromes, com el de la medul\u00b7la ancorada i el de la medul\u00b7la ancorada oculta, causant confusi\u00f3; ja que la Malaltia del Filum \u00e9s tamb\u00e9 causa d\u2019Arnold Chiari I, siringomi\u00e8lies i escoliosis idiop\u00e0tiques pures.<\/p>\n

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\nGr\u00e0fic I- Extracte de \u201cEnfermedad del Filum- Gu\u00eda para Pacientes\u201d de M. B. Royo Salvador, 2024, El Diagn\u00f2stic.<\/em><\/strong><\/div>\n

Juntament amb la\u00a0diplopia<\/strong>, es poden observar altres alteracions visuals com la\u00a0visi\u00f3 borrosa i la fotof\u00f2bia<\/strong>. En l\u2019\u00e0mbit de l\u2019o\u00efda, juntament amb els ac\u00fafens, tamb\u00e9 es constaten\u00a0hipoac\u00fasia i sonof\u00f2bia<\/strong>. Molts metges deriven els pacients a especialistes oftalm\u00f2legs o otorrinos, respectivament, per valorar aquests s\u00edmptomes.<\/p>\n

Els\u00a0trastorns de car\u00e0cter neuropsicol\u00f2gic s\u00f3n cognitius<\/strong>\u00a0\u2013 d\u2019atenci\u00f3 i concentraci\u00f3, de la mem\u00f2ria (anter\u00f2grada i retr\u00f2grada) i del llenguatge (nominals i articulars) \u2013\u00a0i an\u00edmics<\/strong>\u00a0(irritabilitat, tristesa i incl\u00fas ansietat). Fa relativament poc temps que els s\u00edmptomes psicol\u00f2gics comencen a tenir-se en compte per al diagn\u00f2stic de l\u2019Arnold-Chiari I, per\u00f2 encara s\u00f3n causa de confusions diagn\u00f2stiques amb l\u2019esfera psicol\u00f2gica.<\/p>\n

En realitat,\u00a0aquests s\u00edmptomes poden limitar i afectar notablement la qualitat de vida<\/strong>\u00a0dels pacients, tant com els m\u00e9s reconeguts, i es troben sovint a la poblaci\u00f3 afectada.<\/p>\n

L\u2019objectiu del tractament del Filum System\u00ae (FS\u00ae) \u00e9s aturar l\u2019evoluci\u00f3 de la malaltia<\/strong>, evitant que les lesions del sistema nervi\u00f3s augmentin. No obstant aix\u00f2, en la major part de la casu\u00edstica del nostre equip, es poden observar millores importants en la majoria dels pacients.<\/p>\n

En el Gr\u00e0fic II, es poden veure els\u00a0resultats<\/strong>\u00a0en una altra mostra de 240 pacients,\u00a0despr\u00e9s d\u2019un any de cirurgia de secci\u00f3 del filum terminale\u00a0<\/strong>amb la t\u00e8cnica m\u00ednimament invasiva del FS\u00ae.<\/p>\n

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\nGr\u00e0fic II- Extracte de \u201cEnfermedad del Filum- Gu\u00eda para Pacientes\u201d de M. B. Royo Salvador, 2024, Resultats del FS\u00ae en la EF.<\/em><\/strong><\/div>\n

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Es pot apreciar\u00a0l\u2019elevada freq\u00fc\u00e8ncia dels casos en els quals els s\u00edmptomes<\/strong>, tant els considerats t\u00edpics d\u2019aquestes patologies com els no reconeguts com a tals,\u00a0milloren, amb elevats percentatges en cadascun<\/strong>. En la \u201cGu\u00eda para Pacientes\u201d (link a Amazon:\u00a0https:\/\/amzn.eu\/d\/ae3gqkr<\/a><\/em>)\u00a0 poden veure\u2019s tamb\u00e9 els resultats en cada patologia.<\/p>\n

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En conclusi\u00f3<\/strong>, malgrat la gran varietat i el desconeixement general dels s\u00edmptomes de la EF i de la SNCV, els pacients poden confiar que\u00a0el tractament de la Malaltia del Filum i el SNCV amb el m\u00e8tode FS\u00ae, pot millorar de manera significativa la seva qualitat de vida.<\/strong><\/p>\n","protected":false},"featured_media":76041,"template":"","tipos-de-comunicacion":[509],"class_list":["post-76040","comunicacion","type-comunicacion","status-publish","has-post-thumbnail","hentry","tipos-de-comunicacion-noticies"],"yoast_head":"\nS\u00edmptomes Malaltia del Filum i tractament | ICSEB<\/title>\n<meta name=\"description\" content=\"Molts pacients afectats per la S\u00edndrome d\u2019Arnold Chiari I, Siringomi\u00e8lia i Escoliosi Idiop\u00e0tiques o altres patologies... \u00a0 Llegir m\u00e9s \u2192\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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