{"id":59522,"date":"2007-09-13T00:00:00","date_gmt":"2007-09-12T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/%d8%b1%d9%8a%d9%86%d8%a7%d9%84%d8%af%d9%88-%d8%b1%d9%88%d9%8a%d8%b2-%d9%84%d9%88%d8%a8%d9%8a%d8%b2-%d8%b3%d9%8a%d8%b1%d9%8a%d9%86%d9%82%d9%88%d9%85%d9%8a%d9%84%d9%8a%d9%89%d8%a7-%d8%aa%d9%83%d9%87\/"},"modified":"2026-04-15T13:02:53","modified_gmt":"2026-04-15T11:02:53","slug":"reinaldo-andres-yegres-ruiz-dorsal-syringomyelia-and-idiopathic-scoliosis","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ar\/reinaldo-andres-yegres-ruiz-dorsal-syringomyelia-and-idiopathic-scoliosis\/","title":{"rendered":"\u0631\u064a\u0646\u0627\u0644\u062f\u0648 \u0631\u0648\u064a\u0632 \u0644\u0648\u0628\u064a\u0632 . \u0633\u064a\u0631\u064a\u0646\u0642\u0648\u0645\u064a\u0644\u064a\u0649\u0627\/ \u062a\u0643\u0647\u0641 \u0627\u0644\u0646\u062e\u0627\u0639 \u0638\u0647\u0631\u064a \u0648 \u0625\u0633\u0643\u0644\u064a\u0648\u0633\u064a\u0633 \/ \u0627\u0644\u062c\u0646\u0641 \u0645\u062c\u0647\u0648\u0644 \u0627\u0644\u0633\u0628\u0628"},"content":{"rendered":"

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Fecha de la cirug\u00eda: septiembre <\/span><\/span><\/strong>\u00a0de 2007<\/span><\/span><\/strong><\/div>\n
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\u00a0Reinaldo L\u00f3pez (ID: 5083465) y Carmen Ruiz de Ygers (ID: 508197), de Venezuela, padres de Reinaldo Ruiz Andr\u00e9s, de 11 a\u00f1os. Queremos compartir nuestra experiencia al descubrir la enfermedad de nuestro hijo.<\/span><\/span><\/div>\n
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Todo comenz\u00f3 en julio de 2006 durante una operaci\u00f3n de hernia umbilical. Como requisito para la cobertura, la compa\u00f1\u00eda de seguros exigi\u00f3 una ecograf\u00eda de la zona p\u00e9lvica. Estas ecograf\u00edas revelaron que la pelvis y el ri\u00f1\u00f3n izquierdo eran m\u00e1s grandes de lo normal. Tras consultar con especialistas, se descubri\u00f3 que la vejiga estaba agrandada (vejiga neur\u00f3gena), lo que agravaba el problema digestivo cr\u00f3nico de estre\u00f1imiento.<\/span><\/span><\/div>\n
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Nuestro ur\u00f3logo pedi\u00e1trico nos deriv\u00f3 para que nos hicieran una resonancia magn\u00e9tica de la columna vertebral, que revel\u00f3 siringomielia (en septiembre de 2006).<\/span><\/span><\/div>\n
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En aquel momento, nadie sab\u00eda qu\u00e9 era esa enfermedad. El ur\u00f3logo orden\u00f3 repetir las pruebas para confirmar el diagn\u00f3stico. Efectivamente, se confirm\u00f3 que se trataba de siringomielia.<\/span><\/span><\/div>\n
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Sab\u00edamos que esta enfermedad no ten\u00eda cura y que seguir\u00eda progresando hasta destruir la salud del ni\u00f1o.<\/span><\/span><\/div>\n
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Fue un shock para nosotros darnos cuenta de que nuestro hijo ten\u00eda esta enfermedad, a pesar de que aparentemente estaba sano.<\/span><\/span><\/div>\n
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Consultamos a varios especialistas en Venezuela, cada uno con una opini\u00f3n diferente: uno sugiri\u00f3 insertar una sonda en la m\u00e9dula espinal, otro propuso una cirug\u00eda craneal, pero claramente no hab\u00eda garant\u00edas. Nos sent\u00edamos impotentes, sin saber qu\u00e9 hacer excepto orar a Dios para que nos guiara a una soluci\u00f3n. Y \u00c9l respondi\u00f3 a nuestras oraciones. Uno de los padres nos envi\u00f3 informaci\u00f3n por internet sobre un instituto en Barcelona donde un m\u00e9dico, el Dr. [Nombre], se hab\u00eda especializado en la investigaci\u00f3n de esta afecci\u00f3n durante cuatro a\u00f1os. Contactamos a la coordinadora del instituto, la Sra. Isabel Montesinos, quien nos envi\u00f3 las pruebas necesarias. El doctor y su equipo examinaron al ni\u00f1o y confirmaron el diagn\u00f3stico de siringomielia y escoliosis idiop\u00e1tica. Tambi\u00e9n nos aseguraron que el ni\u00f1o era un candidato adecuado para una cirug\u00eda de bajo riesgo. Adem\u00e1s de este diagn\u00f3stico, consultamos con m\u00e9dicos en Estados Unidos, pero la respuesta fue insatisfactoria. Comenzamos a explorar la posibilidad de trasladarlo a Barcelona. Nos faltaban los recursos necesarios, pero superamos todas las dificultades y, un a\u00f1o despu\u00e9s del diagn\u00f3stico, llevamos a nuestro hijo al Dr. Royo en septiembre de 2007. Lo examin\u00f3 y se descubri\u00f3 que el ni\u00f1o ten\u00eda menos fuerza en la mano derecha y a\u00fan presentaba el s\u00edndrome de Babinski, que solo se manifiesta en ni\u00f1os y es causado por esta enfermedad que afecta la columna vertebral. Al d\u00eda siguiente, 13 de septiembre de 2007, el doctor y su equipo operaron al ni\u00f1o y, un d\u00eda despu\u00e9s del examen cl\u00ednico, el s\u00edndrome de Babinski desapareci\u00f3 por completo. Quince d\u00edas despu\u00e9s de la cirug\u00eda, recuper\u00f3 la fuerza en la mano derecha y su problema de estre\u00f1imiento comenz\u00f3 a resolverse. Damos gracias a Dios y estaremos eternamente agradecidos al doctor, cuya perseverancia en el estudio de esta enfermedad fue lo que detuvo su progresi\u00f3n. Le dio a nuestro hijo la oportunidad de crecer como los dem\u00e1s.<\/span><\/span><\/div>\n
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\u00a0Y esperamos que otras personas aprendan que existe una soluci\u00f3n para esta enfermedad.<\/span><\/span><\/div>\n
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Este es nuestro testimonio, que nos gustar\u00eda compartir con todos.<\/span><\/span><\/div>\n
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:correo electr\u00f3nico<\/span><\/span><\/strong><\/div>\n
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