{"id":59034,"date":"2006-07-04T00:00:00","date_gmt":"2006-07-03T22:00:00","guid":{"rendered":"https:\/\/dev.institutchiaribcn.com\/testimonios\/%d8%aa%d9%8a%d8%b1%d9%8a%d8%b2%d8%a7-%d8%a8%d8%a7%d9%84%d9%85%d8%a7%d9%86%d9%8a%d8%a7-%d9%85%d8%aa%d9%84%d8%a7%d8%b2%d9%85%d8%a9-%d8%a3%d8%b1%d9%86%d9%88%d9%84%d8%af-%d8%b4%d9%8a%d8%a7%d8%b1%d9%8a\/"},"modified":"2026-04-27T10:08:53","modified_gmt":"2026-04-27T08:08:53","slug":"teresa-balmana-arnold-chiari-syndrome-i","status":"publish","type":"testimonios","link":"https:\/\/institutchiaribcn.com\/ar\/teresa-balmana-arnold-chiari-syndrome-i\/","title":{"rendered":"\u062a\u064a\u0631\u064a\u0632\u0627 \u0628\u0627\u0644\u0645\u0627\u0646\u064a\u0627 . \u0645\u062a\u0644\u0627\u0632\u0645\u0629 \u0623\u0631\u0646\u0648\u0644\u062f \u0634\u064a\u0627\u0631\u064a \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0623\u0648\u0644"},"content":{"rendered":"

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Hace poco me compr\u00e9 un ordenador. No sab\u00eda c\u00f3mo funcionaba, salvo que con conexi\u00f3n a internet pod\u00eda encontrar de todo. Curs\u00e9 cuatro asignaturas lo mejor que pude y empec\u00e9 a publicar art\u00edculos cient\u00edficos en l\u00ednea. No pod\u00eda descansar y pasaba largas horas, d\u00eda y noche, leyendo e informando sobre todo tipo de dolencias: desde dolores de cabeza y neuralgia hasta migra\u00f1as, neuralgia del trig\u00e9mino y m\u00e1s. Pasar horas haciendo preguntas era un alivio, pero a la vez un infierno. No lograba averiguar qu\u00e9 me pasaba exactamente y solo buscaba una soluci\u00f3n o un tratamiento para no sufrir tanto.<\/span><\/span><\/div>\n
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Cuando llev\u00e9 a mi neur\u00f3logo SS y los resultados de la resonancia magn\u00e9tica (RM) indicaron la presencia de malformaci\u00f3n de Arnold Chiari tipo 1, prob\u00e9 otros medicamentos y m\u00e1s, y \u00e9l fue muy paciente conmigo. Estoy agradecida por la atenci\u00f3n que me brind\u00f3 para conseguirme un tratamiento efectivo y evitar que tuviera una intervenci\u00f3n. Sab\u00eda que yo estaba indecisa al respecto, pero me quejaba mucho y no pod\u00eda tragar alimentos s\u00f3lidos. El neurocirujano me envi\u00f3 para informarme y fue de gran ayuda. Me explic\u00f3 que con atenci\u00f3n y amabilidad con todo respondi\u00f3 a todas mis preguntas, pero me dijo que ten\u00eda que trabajar y le dije que pensaba.<\/span><\/span><\/div>\n
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Todos los m\u00e9dicos y neur\u00f3logos que me visitaron dijeron que no me sometiera a ninguna intervenci\u00f3n. Hab\u00eda pasado muchas horas inform\u00e1ndome sobre qu\u00e9 era una enfermedad mental, y que era el m\u00e9todo tradicional de publicaci\u00f3n cient\u00edfica, y no hay fin cuando miras la computadora, todo bellamente detallado, una de estas intervenciones, y me maldije al pasar por eso, es poco probable que cure la agresi\u00f3n, una proporci\u00f3n que no acept\u00e9, y con muchas consecuencias, por supuesto, dependiendo de cada paciente, mientras sufre esta enfermedad y sus manifestaciones cl\u00ednicas actuales.<\/span><\/span><\/div>\n
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Estaba desesperado y no sab\u00eda qu\u00e9 hacer; ninguna otra soluci\u00f3n parec\u00eda posible. Volv\u00ed al ordenador, y hab\u00eda tanto que ver y leer, y estaba intentando comprender algo que desconoc\u00eda. Entonces fui a lo siguiente: instrucciones para la malformaci\u00f3n de Arnold Chiari tipo 1. Encontr\u00e9 varias publicaciones del Instituto Neurol\u00f3gico. Hice clic en ellas y encontr\u00e9 algunas publicaciones del Dr. Miguel Royo Salvador sobre la malformaci\u00f3n de Arnold Chiari o malformaci\u00f3n de Chiari tipo 1. La t\u00e9cnica de la sutura terminal era una intervenci\u00f3n sencilla con un riesgo m\u00ednimo, e incluso pod\u00eda proporcionar una cura completa para las causas subyacentes de la enfermedad. Con solo un d\u00eda de consulta cl\u00ednica, el paciente y muchos otros quedaron satisfechos con la intervenci\u00f3n y los resultados. La sutura terminal implica una peque\u00f1a abertura en el sacro, en el extremo de la columna vertebral, donde no hay inconveniente en alterar los mecanismos espinales. La sutura terminal se expone y se corta utilizando t\u00e9cnicas microsc\u00f3picas. As\u00ed lo explic\u00f3 el Dr. Royo con calma y paciencia.<\/span><\/span><\/div>\n
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Tras leer otras publicaciones sobre su vida, en las que creo que lo ve\u00eda como una persona muy profesional, no pens\u00e9 que investigar\u00eda m\u00e1s y me pondr\u00eda en contacto con el Dr. Royo, me confiar\u00eda su trabajo y me har\u00eda todas las pruebas necesarias para la intervenci\u00f3n. Por cierto, me hab\u00edan diagnosticado escoliosis leve y el 4 de julio de 2006 estaba trabajando y me dirig\u00eda a casa. El 6, al levantarme, no sent\u00eda nada. Desayun\u00e9 y no pod\u00eda tragar alimentos s\u00f3lidos, hasta que, con una puntuaci\u00f3n de 12 puntos, apenas sent\u00eda nada. Ya estaba muerta de risa, porque cada d\u00eda empeoraba r\u00e1pidamente. Ahora, gracias a Dios y al Dr. Royo, me siento viva y muy sana.<\/span><\/span><\/div>\n
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Estoy sumamente agradecida a la Dra. Royo y a todo su equipo. He le\u00eddo algunos de sus escritos, que reflejan casi 30 a\u00f1os de su vida dedicados a la investigaci\u00f3n e implementaci\u00f3n de esta t\u00e9cnica, la sutura con hilo, que contin\u00faa perfeccionando en su investigaci\u00f3n. Espero que siga perseverando y demostrando su valent\u00eda en su trabajo, tratando a muchos m\u00e1s pacientes y demostrando el valor de sus esfuerzos.<\/span><\/span><\/div>\n
Ahora bien, lo \u00fanico que puedo decir es que las personas que han padecido esta enfermedad, desde la malformaci\u00f3n de Arnold hasta otras relacionadas con la escoliosis, la siringomielia y otras, han dejado de sufrir y mejorado, los s\u00edntomas han desaparecido y se han recuperado. Creo que fue gracias a la detecci\u00f3n temprana, y yo soy un claro ejemplo de lo que me sucedi\u00f3, porque los dolores de cabeza que sufr\u00eda eran terribles. Nadie m\u00e1s puede sufrir as\u00ed; es importante tener una buena calidad de vida.<\/span><\/span><\/div>\n
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Es una enfermedad desconocida y rara. Esperamos que en esta secci\u00f3n del hilo final, hagamos lo que la gente sol\u00eda hacer (para que la gente ya no sufra). Sucede que muchos de ellos… No s\u00e9 c\u00f3mo me pas\u00f3 a m\u00ed. Continu\u00e9 leyendo la informaci\u00f3n basada en computadora, obstinada, por casualidad, y yo, el problem\u00e1tico, no, no quiero morir ni sufrir como yo. Con todo lo que hab\u00eda le\u00eddo, llegu\u00e9, aterrorizado por m\u00ed mismo como \u00faltimo recurso o jefe de intervenci\u00f3n.<\/span><\/span><\/div>\n
<\/div>\n
Por casualidad, tambi\u00e9n le\u00ed un pasaje con detalles muy humanos, que dice lo siguiente:<\/span><\/span><\/div>\n
Inf\u00f3rmese sobre las condiciones especiales para los pobres.<\/span><\/span><\/div>\n
<\/div>\n
Agradezco especialmente a mi familia, hermanos, hijos y pareja que me ayudaron a cruzar la calle, porque yo solo no habr\u00eda podido hacerlo. Fue un alivio dedicar varias horas largas y costosas a ayudar a ver que estaba sufriendo tanto.<\/span><\/span><\/div>\n
<\/div>\n
Tambi\u00e9n quiero agradecer a todos los m\u00e9dicos y neur\u00f3logos que me visitaron, ya que le dieron suma importancia a abordar las causas de mi enfermedad. Me permitieron contactarlos por tel\u00e9fono con la frecuencia que necesit\u00e9, y fueron muchos, y con gusto respond\u00ed. Al menos en esos momentos, me brindaron mucho apoyo, pero por supuesto, esto tambi\u00e9n fue una lucha para m\u00ed, ya que luchaba por sobrellevar el sufrimiento diario que experimentaba.<\/span><\/span><\/div>\n
<\/div>\n
Si alguien es diagnosticado con esta malformaci\u00f3n de Arnold Chiari (MAC) y habla conmigo, he facilitado mi direcci\u00f3n de correo electr\u00f3nico.<\/span><\/span><\/div>\n

matebadu@hotmail.com<\/span><\/span><\/a><\/p>\n

 <\/p>\n

O por tel\u00e9fono (+34) 937 612 963<\/span><\/span><\/div>\n
Si tienen alguna pregunta, con gusto hablar\u00e9 con quienes est\u00e9n interesados, simplemente porque deber\u00edan considerar que nadie deber\u00eda sufrir as\u00ed; se podr\u00eda haber evitado.<\/span><\/span><\/div>\n
Tel\u00e9fono: (+34) 937 612 963<\/span><\/span><\/div>\n
:correo electr\u00f3nico<\/span><\/span><\/div>\n

matebadu@hotmail.com<\/span><\/span><\/a><\/p>\n

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